... NOONE ever knows! The "ruffles" don't show or anything like that, and I assume they are for boys OR girls! However, I THINK, don't quoteme, but I think...
Hi, there! I am a new-ish member of the club and I just wanted to say, "Hello" to everyone! I was a member back in 2000 as well, but as Neuroprincess14, I...
L Stevens has invited you to join hi5. By joining hi5, you will be connected to L and all of L's friends. hi5 is the place where friends meet. You can use hi5...
This is the way i see it if there group is going to help other people out then why not post so others can join it .As long as it isn't dirty because this is a...
Visit WIFEministry@..., it's a website for women in ministry. A place to share God, what's going on in their lives, bith good and bad, and just make...
I have a question... I am 34 years old and I have Spina Bifida. I also have PAIN!!! I never used to... I don't know if it's age related or from my messed up...
Well, thank you for the input... Problem is...unless it's REALLY bad, doctors won't touch me!!! (After having the one surgery messed up in 1999, it was for...
By any chance did you have your surgery done at Children's Hospital in Detroit? I was glad the state made her give up her license to practice and we don't...
... OH MY GOSH!!!! How did you know that????? YES!!! I DID have my surgery done there!!! THE STATE MADE HER GIVE UP HER LICENSE??? WOW!!! Her office had been...
My husband is 40 and was having severe pain and spasms. He eventually ended up at Gillette Children's in Minnesota having a cord detethering surgery done by...
Have you tried putting a small diaper sideways across the tummy and turning down the top edge and then putting the regular diaper over that? I know a family...
Hello everyone!! I'm sorry that I haven't been around in quite some time. I have been busy with a bunch of things. First of all, I have been busy with...
Hello Nicole, Sorry to hear all u have been going through , my prayers are with u and i wish u the best. Lynn ... been busy with a bunch of things. ... year of...
Hi, my name is Brandi and my daughter is Hannah. She is 5 years old. We have just found out that she has Spina Bifida. We have a appontment to go to a...
First, it's not a disease, it's a birth defect. There are several forms of Spina Bifida with myelomeningocele or myelo meaning open spine. This is the most...
Hello everyone!! I'm sorry that I haven't been around in quite some time. I have been busy with a bunch of things. First of all, I have been busy with...
I work at a hospital that specializes in kids with special needs. First you have to remember that she is still the same beautiful girl you have always loved...
Hi, my name is Alex, I'm 25 and have Spina Bifida. I am able to walk and move my legs. I have just started a relationship with a girl who has Cerebral Palsy....
Hello everyone!! I am sorry that I haven't posted in awhile. Actually I trying to post to see if it actually works. I hope everyone is well. Have a great day!!...
My name is Mike, I live in Elyria, Ohio which is near Cleveland. I am 38 years old. Born with Spina Bifida L3-4. I would like to converse with others who...
... Brock, hello my name is Mike. I sympathize with your problem. About 20 years ago I had a surgical procedure called Continent Urinary Diversion or Indiana...
Hi! I am a 19 year old female and I was born with Spina Bifida. I saw this group and wanted to join because it would be nice to meet some people with the same...
I just want anyone and everyone here to know that if they need someone to talk to who "has been there", I am MORE THAN willing to talk to ANYONE who needs to...
I just recently found out that my daughter is going to be born with Spina Bifida. I found this support group and decided to join and see what all I could learn...
Hello Nice to have you join this group. If you would like to talk you can e-mail me or im me at teeanna1989 . I am a mom of a 18 year old with sb--- In...
hey*** about this time last year i was getting ready to have a baby girl that was going to be born with spina bifida and hydrocephalas, i was really scared but...
