Hi Amy- My name is Maureen and this is the 1st post I have ever answered. It is interesting you say she is on medicaid with only 6 visits a year; I am 23 years...
Has your daughter needed a shunt? I am 23 and have ACM2 (i believe) i had the decompression surgery when I was about 10. I have had many revisions and then...
Hi Sara- I am 23 and have spina bifida S1 with hydrocephalus diagnosed at birth in my case I had to have the closing surgery..but I have actually heard of...
Shannon- Hi! I used to have a VP shunt and when I would have or they thought I was having my shunt go bad I would get sunset eyes, vommiting, headaches, double...
Hello First of all I would like to thank a group member who had given me an address that I can get a lot of information on. I have an inquiry for the group if...
Hello everyone, I am sorry that I have been out of touch lately. I have been busy with finishing up school and other things. I hope everyone is doing well. I...
Hi, My name is Sandy, I have a 9y/o who is a twin with SB, level lower lumbar. He can walk and run. But cannot control his bowels, only his bladder. He has...
Hello Sandy and all the other New Members. Hope everyone enjoys this group. there is alot of great people here can be slow at time but you post and people will...
Does anyone else get really wound up when they hear us being described as "victims of Spina Bifida" or "Spina Bifida sufferer"? Personally I have Spina Bifida....
Amen! It is hard to look at everyone else and think "I WISH..." I mean, I use to be able to do ALOT more than I can now (I was butchered by a quack in Detroit,...
But not every one can be angry over this because having sb was not from agent orange or caused by a doctors messing up.Spina bifida happens because of soething...
Well, we got home from the hospital yesterday and Michael has been doing great!!! The Neurosurgeon decided to go ahead and do the surgery now since his bump...
Hello everybody! It's Steve again. This may seem like an advertisement but it's not. I do work for a medical supply company and I help people obtain their...
Hi Lynn, I haven't been in here for such a long time, but I wanted to say that I agree 100% with what you said! Where would anyone be in this world if they...
Hello Jaqui, Glad to hear you soon is doing great , Aamanda she is trouper , She will be 18 next month and still live a very long and happy life , doing...
Beware of a guy named Jerry or anyone from medical supply watch dog, or email quickie_xtr.This is a single person with a grudge against a reputable company in...
Hello everybody! I help people obtain their catheters. This is a system designed for people with frequent UTI'S. It involves straight catheters or closed...
I would like to say hello to all the new Members . Hope you find what you are looking for in this sight we have a bunch of wonderful people here.If you have a...
Good evening. I have an almost 6 year old son with neurogenic bladder. He's been on oral Ditropan since November 2003. This was recently changed to Oxybutinin...
You Don't understand what I was saying... I was saying that GOD did not curse me with Spina Bifida, that yes, it is caused before the person is born, blah,...
Hi everyone, I just want to say that I am sorry that I haven't been in here for a while but I thought that I would let you all know that I agree with what...
Here is a Article that I had gotten when Aimee was born, I wanted to share with you all: I hope that this is ok to post. Having God's Ear Handicapped Children...
Hi everyone. I had another MRI done on my neck cuase I was in so much pain. Here is the results, I am hoping someone can help me understand this. It says there...
Hi everyone, I am having a hard time with this and I am hoping that I can get some adveice. My daughter Aimee has had 3 surgeries now on a pressure sore. Her...
hi all Im a (fairly) new member that has poked my head in a couple of times, but I thought I ought to say hello. I have a 16 month old who was diagnosed before...
