Where are you from? and how old are u? Here on Vermont we have a place called Vocational rehad that will help people with a disablity to get there self self...
Hi-- My daughter was born with a closed myelomeningocele 16 years ago. As I understood it, a "closed" myelo just means that it is not leaking any fluid....
Thanks for the advice. I feel like we have a pretty good Neurologist, well kinda. I'm very unfamiliar with doctors (don't like them much, but who does, huh?)...
... is ... keeping ... you ... far ... older ... as ... He ... bottom. ... am ... lay ... right ... info ... hey sara, my name is amy i have a baby girl who is...
Here are the SB clinics that are listed in Tennessee on the SBAA website www.sbaa.org One of them is probably the one recommended to you already. Boehm...
I don't know if any of you remember me or not, but I was a member a few years ago, (2000-ish)and I just wanted to say that I am back! My screen name then was...
I was just wondering if anyone knows what children with sb and hydrocephalas qualify for as far as financial help. I live in North Carolina and am not sure...
My daughter is 20 months and has spina bifida, as well as, ACMII. Her spina bifida is not what causes all of her problems. It is her chiari. She was...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal dBug Swap Meet Sunday June 12, 2005 10:00 am - 2:00 pm ...
spinabifidacentral@ya...
Jun 11, 2005 1:56 pm
1463
How do I reply to the messages here? It isn't like it use to be, and I can't seem to figure it out! When I click on the "reply" button, I just get what the...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal dBug Swap Meet Sunday June 12, 2005 10:00 am - 2:00 pm ...
spinabifidacentral@ya...
Jun 12, 2005 12:57 pm
1465
Hit the reply button, and then just delete the prior message that appears. Then type your message. Welcome back-- Bobbie...
Well, we went to the Neurosurgeon Wednesday. She said that the cyst has gotten bigger... I didn't realize myself, I thought maybe it had, but I wasn't sure.. I...
Hi! My name is Steve and I work for a medical supply company. I joined the childrenwithspinabifida group to try and help people with getting what they need in...
Hi Sara-- Sorry to hear that the cyst has grown, but it sounds like you are getting things under control. A kid with SB will always be followed by a...
just about every thing has a ribbon, and a while ago i seen one for sb i was wondering if anyone has any idea where you could purchase them or order them...
i would like to know if there has been change in spinal bifida treatment over the last 20 years i am a spinal bifida victem i live in ethiopia (east africa)i...
Hi! My name is Steve and I work for a medical supply company. I am in the urological field and help people obtain their catheters. I usually work with the...
Hi Amy- My name is Maureen and this is the 1st post I have ever answered. It is interesting you say she is on medicaid with only 6 visits a year; I am 23 years...
Has your daughter needed a shunt? I am 23 and have ACM2 (i believe) i had the decompression surgery when I was about 10. I have had many revisions and then...
Hi Sara- I am 23 and have spina bifida S1 with hydrocephalus diagnosed at birth in my case I had to have the closing surgery..but I have actually heard of...
Shannon- Hi! I used to have a VP shunt and when I would have or they thought I was having my shunt go bad I would get sunset eyes, vommiting, headaches, double...
Hello First of all I would like to thank a group member who had given me an address that I can get a lot of information on. I have an inquiry for the group if...
Hello everyone, I am sorry that I have been out of touch lately. I have been busy with finishing up school and other things. I hope everyone is doing well. I...
Hi, My name is Sandy, I have a 9y/o who is a twin with SB, level lower lumbar. He can walk and run. But cannot control his bowels, only his bladder. He has...
Hello Sandy and all the other New Members. Hope everyone enjoys this group. there is alot of great people here can be slow at time but you post and people will...
Does anyone else get really wound up when they hear us being described as "victims of Spina Bifida" or "Spina Bifida sufferer"? Personally I have Spina Bifida....
