Happy New Year to everyone. I was wondering if it has happened that someone has had their cord untethered twice and the second untethering was successful in...
Hi Rachel, I just read your post, I hope Jacob and yourself is doing better. There is a group on yahoo that has lots of information on Chiari. My son, 22, was...
I was startled to see your msg there, as I was just going to post a question about tethered cord syndrome myself. I had tether cord release surgery in 1990,...
Hello, I'm in the market for a new wheelchair and currently I have one that folds in the middle of the seat( I hope that makes sense). I'm wondering what other...
I just thought I would come in and say hi and to say I hope everybody is having a good weekend and I hope everybody had a great holiday well if you would like...
Well, take this as you will, but my friend with SB had a sore in the same area (under his hip bone) - they tried the flap surgery. It didn't work. Well, it did...
Hi everyone I've been gone from this site for a long time. But today I decided to look around and see what I could find out. My son Austin is 8 yrs old and on...
Hi all.. i just joined today. my GF has had sb since she was born. she is 32. she complaines at times she wishes she was like everyone else around, and could...
Hi all.. i just joined today. my GF has had sb since she was born. she is 32. she complaines at times she wishes she was like everyone else around, and could...
I AM LOOKING FOR SOME HELP .SINCE MY SON HAD UNTEETHERING BACK SURGERY IN SEPT/2000 HE HAS HAD POOR CIRCULATION IN HIS FEET AND RED BLOTCHS ALL OVER HIS FEET ....
Hi, I'm Toni and the grandmother; they call me Nana of a little girl who will be 3 the first of Feb. Hannah was born with S.B. she has the lesser kind. She has...
Just wanted to introduce myself. I thought I did already but I don't see anything from me so here goes! :) I'm John Dvorak, I'm 50 yrs old as of November. I...
There is no set time for the chatroom , but if you would like to go in post on the board you are in there and then go in and wait a little while and you will...
Thank-you so much for sharing your story with me. Hannah's also level S1 approx. This is exactly what my daughter feared, the social issue for Hannah later on....
HELLO, MY SON HAS LIPOMENINGOCELE SPINA BIFIDA. IN SEPTEMBER OF 2000 MY SON JONATHAN HAD HIS CORD UNTETHERED.SINCE HE HAD THIS HE IS NO BETTER OF. ONE BIG...
Hi my name is Courtnay I have just joined this group and would like to tell everyone a little bit about me. I am 25 and I have sb. I had my first untethering...
Hi Everyone, Would like to take a moment to introduce myself. My name is Brynn and I am 21 yrs old. I have a 16 month old daughter with SB and and a really...
My name is Amy, i am 23 yrs old and am currently pregnant with my second child. This baby has been diagnosed with having sb and possibly hydrocephalas. Her...
Hi Brynn and Amy. Welcome to the group! Babies with SB are actually blessings, though it doesn't seem that way in the beginning. My daughter is now 15, and...
-do you mean a third surgery as to untethering? i do not understand, did the car accident cause your cord to retether??? well in another group i belong to i...
Hello everyone, it has been a long time since I have been here, and lots of experiences along the way. Erica is now almost 9 years old and I am sure a year...
My grandaughter is 3 years old. I notice curling of her feet. Is this normal in sb. Her father has a somewhat different looking foot but I'm just asking?...
When you say "curling of her feet", are talking about the toes curling under? If so, then that is common-- my daughter's toes curl under. The orthopedist has...
hello, my son needs your help? can you tell us if any body has had there cord untethered a third time? My son has had it done twice already,and he is only 16...
Hi my name is Jason Parry i just found out about this group so i thought i would introduce myself I am 34 Years old and was born with Spina Bifida and Hydro i...
