Have You guys heard of this new exciting feature? This is the future of the web. I did this and wanted to share it with you. If you like to read about...
I am in the process of conducting research on the psycho-social impact of Spina Bifida on males. If you or someone you know may be willing to participate in...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday November 5, 2004 10:00 am...
spinabifidacentral@ya...
Nov 4, 2004 2:57 pm
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Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday November 5, 2004 10:00 am...
spinabifidacentral@ya...
Nov 5, 2004 1:56 pm
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... in ... am ... i just became a member, i am willing to chat anytime. in march 2004 i had a baby boy born with spina bifida and other birth defects. email me...
i just recently became a member. in march 2004 i had a baby boy born with spina bifida located in his cervical/upper thoracic region(he has several openings.)...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday November 12, 2004 10:00 am...
spinabifidacentral@ya...
Nov 11, 2004 2:56 pm
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Hi, my name is Lisa from Australia. My son has Spina Bifida with Hydrocephalus he is 8 I am having a terrible time with continence. He has a microlax enema...
Hi everyone, I really need some insight on a skin graft or flap being done on stage 4 decub. My son is a paraplegic and has been fighting with this decub for...
Hi Lisa, my name is Cindy. I am the mother of 22 yr male with sb/ hydrocephelus. When my son started school he had the same bladder problem. He learned to...
Hi Lisa, Chris here, father of Samuel, 6 years old S.B., level 4, ACE Stome and shunt. Our son is also on Oxybutin (generic for Ditropan), his urologist...
Maybe you should try to catherize him more often. If that doesnt work ask the doctor if he can up the dosage of Ditropan. I myself take Ditropan XL (the one a...
How common is it for kids or babies to go undiagnosed? I may be grasping at straws, but my 5 year old son has a dimple on the base of his spine and he has...
Hi Lisa-- I have a 15 yar old daughter with SB. Regarding your bladder issues, my daughter is also cathed and on ditropan. She used to dribble down her legs...
don't know how many of you remember me, im kheira's mom she's almost4 now and has sb L4/5 she recently started walking using hkafo's and a walker she's doing...
Chris, my son was born with a dimple turn to sinus opening on the far end of his spine. The doctor said he would have never noticed it, or even given it a...
Hi Fellows, First I should say that this is not a spam. I am sending you this info since our group is a health realted group. Have You heard of this new...
Chris-- If I were you, I would have an MRI for peace of mind. Several years after my daughter was born with SB, we discovered my adult first cousin has SB...
Thank you and the others who responded. I am definitely going to ask for an MRI. I've started by making an appointment with the pediatrician and hopefully...
["Is clumsiness related?"] Absolutely. That is one of the reasons I want to have an MRI on myself. Not only do I have the "strawberry" on my lower back, but...
hi my name is lori stevens I am looking for news friends on here I really like to make some new friend just someone to talk to about the spina bifida please...
-- hi lori my name is mel, you can email me anytime to talk. i have a child 8 months that has sb and other medical problems. my email melmiller25@... mel...
Hi Chris, as a mom of 22 yr old son with sb, I have heard of lots of cases where doctors didn't know because the symptom are mild, compared to other spina...
Hi, I am a new mom with a 3 month old son with spina bifida. He has been home only about 3 weeks out of the 3 months he has been here. He underwent Chiari...
We are all thinking about you and Jacob. Good luck. Although almost all SB kids are born with Chiari Malformation, many never have any side effects of it at...
Hi. I'm new to this group. I am planning to move out on my own in the next few months - well not on my own, move in w/ my girlfriend really. I was wondering...
I have been praying for Jacob and you, and just wanted you to know it. I pray that he will have strength in and comfort for his little body and that you will...
