Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday October 1, 2004 10:00 am -...
spinabifidacentral@ya...
Oct 1, 2004 12:55 pm
1156
Hi Folks, I have created an SB web site with photos if anyone wants to check it out it is at http://www.geocities.com/linda8160/ Linda...
The ways in which we cope with pain, especially chronic back pain, can greatly influence how it affects our ability to function and our emotional reactions....
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday October 8, 2004 10:00 am -...
spinabifidacentral@ya...
Oct 7, 2004 11:47 pm
1159
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday October 8, 2004 10:00 am -...
spinabifidacentral@ya...
Oct 8, 2004 12:56 pm
1160
The ways in which we cope with pain, especially chronic back pain, can greatly influence how it affects our ability to function and our emotional reactions....
can anyone help us we are starting a family but our doctors said i could give my child spina bifida, i have spina bifida my wife dosnt we was told to see a...
Please find another doctor to talk to. I am an occpational therapy student, and I have taken classes in disease and dysfunction. We learned about genetic...
When my daughter was born 15 years ago w/ SB, everyone told me the same thing, about it being congenital, not genetic. However, they also told me that if I...
Greetings, My wife is 29 years old. She is pregnant with our first child. We opted to take an AFP and the results came back with a 1/19 chance of SB. Two...
Unfortunately, it is a fact that there are MANY false positives with the AFP test. I actually had a false negative with mine which is extremely rare. You are...
I am 28 and when I was 20 I became pregnant. At 18 weeks we chose to have the blood test to check for any type of birth defect. My afp came back high, but...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday October 15, 2004 10:00 am...
spinabifidacentral@ya...
Oct 14, 2004 1:56 pm
1168
Hi I`m from Scotland I would like to go in the chat room. Des anyone go in???? Can anyone tell me the uk time of the chat. Thanx Laura...
Hi everyone, my name is Mandy and I live in Cape Town. My daughter was born with Spina Bifida on 27/07/2004. She had surgery that same day. She never developed...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday October 15, 2004 10:00 am...
spinabifidacentral@ya...
Oct 15, 2004 12:56 pm
1171
... Hi Mandy My name is Angela. I was born with Spinabifida 26 years ago. I also have hydrocephalus. When i was 2 days old i had a shunt placed in my head to...
... My son is 7 years old and has to be cathed every four hours, except overnight. When we first brought him home, we had to do it every 4 hrs 24/7. We...
Hi Mandy- Welcome to the group. Best of luck with your new special baby. Most likely if she does not have hydrocephalus now, she will not develop it, but it's...
Hi Bobbie, Thanx for the reply. I really look forward each morning for any new messages, the only downfall is the time difference. Firstly what surgeries do...
Hello , I have a 17 year old daughter that has had the same problem , we have tried everything from laxatives to enamas and we still have the same problem ,...
Mandy-- There are numerous surgery choices for bowel and bladder continence. The latest effective bowel surgery seems to be the ACE or MACE procedure (2...
My family will soon be relocating to Independence Missouri and I wanted to know if anyone has had or knows anyone who has used Childrens Mercy Hospital in...
Hi Mandy, welcome to this group, I'm sure it will be very helpful. My son had the ACE Procedure done when he turned 19, he is now 22. He made this decision,...
Reminder from the Calendar of spinabifidacentral http://groups.yahoo.com/group/spinabifidacentral/cal SpinaBifidaCentral Chat Friday October 22, 2004 10:00 am...
