Hi ied just like 2 say, I don't really no what this op is really , but I I've read alot of what u say and I think ur gr8 ESP with u bein so young , I ave a 2...
Hi ied just like 2 say, I don't really no what this op is really , but I I've read alot of what u say and I think ur gr8 ESP with u bein so young , I ave a 2...
Hi ied just like 2 say, I don't really no what this op is really , but I I've read alot of what u say and I think ur gr8 ESP with u bein so young , I ave a 2...
... Ihi I went on to this and I think ur sounds like good news , ied ave to find out alot more but I think this and Botox sounds very good news 4 my daughters...
Hi I have had 3 untetherings done. afterwards you will have to lay flat on your back for about 3 days at least I had too. For the days you have to lay flat...
Jackie
jpentland1@...
Nov 11, 2008 1:07 pm
5525
Wow, thank you to everyone that has responded concerning this issue. I realize I could just be "jumping the gun" a bit here, as I don't know anything for...
I would go where the neurosurgeon that I trust to do the surgery suggests. We travel 1hr and 45min to Children's in Pgh every three months, on average, for...
At SB Clinic yesterday I was told my daughter, Danielle, might possibly be aspirating. She constantly seems to be catching colds all times of the year. Never...
Hi, there, My daughter has sb, age 11 months, but 2 mo. preemie. She has had swallowing/aspiration issues since birth. She did have a mic-key button put in...
I worked for 7 years in pre-k special ed before having my daughter with SB. One of the little girls I worked with (SB) had a g-tube because of aspirating on...
I have not heard good things about Thick-It. It's the powder stuff. It can make things too thick if you let it sit too long, and I can see how that could be...
Heather, It seems like if they thought she was majorly aspirating they would have scheduled the swallow study for earlier than January 15. That's a long time...
Hi my daughter ashlei has aspiration and a feeding tube they are not directly connected. She aspirated and penetrated since she was 3 months old we didnt catch...
That's good, I wish I had know of Simply Thick when my daughter was little...we ended up putting baby oatmeal in her bottles, which helped, but it also made...
I wanted to ask a question of the group. My daughter turned 1 in October and was born with lipomyelomeningocele, no shunts. She is walking and has had...
Hey! Have you noticed anything different about her urine? odor, color or anything unusual...my daughter will throw up due to a UTI...also with bowels backing...
I haven't noticed anything unusual with her urine. We've had some problems with regularity since we've switched to table food, but that had straightened out. ...
Im looking for other moms that have children with SB and developmental delays. My son has SB L3-L4 and a number of developmental dealys. I pretty confused at...
Hi Nikki Hang in there I'm sure there are other people in your shoes. I have not had any mental delays with Kai but he is having trouble with fine motor...
If you have not already, I would strongly suggest you contact any "Beginnings" or "Early Intervention" services you may have in your area. We also practised...
hi I ave 4 children Ashley as spina bifida l4 l5 , and my 6 year old son I've had alot of problems with he as learnin problems ,and motor skills extra, to be...
... Worry about my daughter is 2 and 22 pounds , she's very small 4 her age , sum doctors are happy with her size sum arnt, ave had my probs with her eatin ESP...
Hi Nikki My son is L1-L2 - he is now 23 years old and I have been around the Spina Bifida Block many times. I am where you are worried your going. Feel...
My son is almost three. He has SB L1 and L2 with a shunt and Chiarrii II. He is developmentally very behind. We did an MRI to see if there was an issue with...
Anybody with Lipomyelomeningocele? Im new with all of this and has little knowledge. I have a 6 months old daughter with Lipomyelomeningocele. I cath her 3...
My daughter is 5 with myleomeningicele...so I dont know much about the other...but what is going on with her eyes? Is she shunted? My daughter's eyes were...
Just got my results from the MRI yesterday. My cord is tethered. I'm very scared. Next step is to see a specialist and find out what my options are. ...
as far as I know I don't have tethered cord my lesion is at S1 S2 but this is common and I understand all sb ppl above my lesion have tc based on the closing...
hey guyz wassup i am aveena 14 f frm malaysia juz wanted to inform u tht we in malaysia have open a very first spina bifida association in malaysia to help...
