... away this may 30 at 10pm. he has very high fever, i think he died because of infection and of course his health cannot tolerate such pains anymore thus he...
tva224420
tva224420@...
Jun 21, 2005 3:04 pm
69
Laura Marrocoli is now 4 years and one month old. She was very close to go last July because of a bronco-pneumonia due to the food going inside the langs when...
marrocolid
marrocolid@...
Sep 6, 2005 7:35 pm
70
... with ... time ... i ... tube ... thick ... he ... leg ... alotoff ... young ... on ... of...
avmvbv3
avmvbv3@...
Oct 10, 2005 7:25 pm
71
Blake is my son, he is almost 3 months old, he was diagnosed 2weeks ago with sgs. he is so small, but he is steadily gaining weight, he eats like a cow. he is...
I am attempting to determine how many cases there are of families that have had more than one Schinzel-Giedion child. Please send a message to this group if...
huislk
lois.huisman@...
Dec 2, 2005 9:08 pm
73
Hi Louise, Jacob's seizures are getting progressively worse and are barely being managed by anti-seizure medication. He currently takes epilim and rivotril on...
i need information on this type of syndrom? THANK YOU VERY MUCH...
yocastarodriguez9
yocastarodriguez9@...
Dec 30, 2006 2:11 am
76
I had a daughter diagnosed with SGS she was born on 30 March 1990 she was the bravest person i have ever met always smiling she brightened up any room I called...
My son was recently diagnosed with this syndrome and I know nothing about it. I have been searching all day for answers....Let me know if you hear of anything ...
kjaw63
kjaw63@...
Nov 14, 2007 2:13 am
78
Hi I just got your message. My son was diagnosed with SGS. If you still have questions PLEASE let my know. I will try and answer as many as I can. how old is...
hi there my son passed away 2 week after born because of SGC his condition was so complicated . and he needed 100% oxygen his kidney started to failed and he...
HI my name is Sharla Spencer and my son Matthew was born Dec.16,1988 he was sent to UK hospitl in Lexington Ky were I was told he had SGS..It broke my heart...
sharla_spencer
sharla_spencer@...
Nov 18, 2007 4:42 am
81
devon lived a year and 4 days its hard for me to still talk about it open like this but i will talk to anyone who has any questions i put up some pics of me...
Hello, My son Reggie passed away of SGS March 9,2002. He lived to be almost 6mos old. From the day he was born to the day he left this earth was a daily battle...
Hi, I had a patient who's first child was diagnosed with SGS and later died. The child's picture appears on the website. After years of waiting, the mother...
Hi there My daughter Sofie has just been diagnosed with SGS. She is 6 weeks old and I am finding it hard to locate any practical information regarding this...
leithgatchell
leithgatchell@...
Mar 26, 2008 11:15 pm
85
... it ... put ... Hello, I'm really sorry to hear that your beautiful son passed away, i have just been looking at his photos. My heart goes out to you and...
HI Â I m sorry to hear other family going through again my son just lived for two weeks and because of his situation he couldn't live longer , i pray for you...
hi there im sorry for your pain iahave been in this pain twice , i hope you get all support . how is your little one , i hope dr find cure . i wish you best ...
Hello, my name is Maria and I'm from Montevideo, Uruguay in South America, last 28 of December borned Malena, my niece, and they told to my sister that Malena...
Hello, Â I'm very sorry because you have been in this twice!!! Malena is more or less, she is doing fever, she doesnt tolerate the food well and she is not...
hi im so sorry about your pain and your sister , my son lived just for 2 weeks and he even couldnt breath by himself , as i heared there is no cure for this...
My prayers to you and your family. I was very fortunate to have my son for 7 years. It wasn't always easy, but I would do it all over again if it meant...
hi i am devons grandmother there many things about sgs that are unfair and unkind but there are many things about our babies that are beautiful the dr.s told...
Hello Laurie:  I am very sorry because of the lost of Patrick, and at the time is a message of hope, because he lived many years over what constitutes...
I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join...
... I am a very proud Mum of a beautiful little girl born 15-07-2008 who was diagnosed with SGS at 2 weeks old. She spent 3 weeks in special care nursery with...
... who ... bring ... chance to ... there ... in ... has a ... so ... who ... bring ... chance to ... there ... in ... has a ... so ... Hi there Our little...
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