schinzel-giedion_syndrome : A HealthShare International Community

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Welcome to the HealthShare International Support Network's community for individuals affected by 'Schinzel-Giedion Syndrome.'

Members are also invited to check out the HealthShare International's Support Community Center.

Our community center is a gathering place for members interested in meeting new friends and sharing disease information and support with others from over 1200 different disease support groups.

Community Center Address: http://healthsharegroups.org

David Hughes
Founder
healthsharegroups@live.com

Note to All Members: The posting of messages with the intent to promote products and or services is not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, "flaming", "trolling", and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group.

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Schinzel-Giedion Yahoo Group Update Dear Members, Our Schinzel-Giedion Syndrome Yahoo group is now one of over 1200 disease support communities that make up the HealthShare International Support Posted - Sat Nov 26, 2011 10:10 am	David rarediseases Offline Send Email
Facebook To anyone new looking for any help and knowledge of SGS please come to our facebook group schinzel-giedion syndrome or request to add me as a friend. I am Posted - Sun May 16, 2010 7:58 pm	fanona_99 Offline Send Email
Re: Mum of SGS Baby ... who ... bring ... chance to ... there ... in ... has a ... so ... who ... bring ... chance to ... there ... in ... has a ... so ... Hi there Our little Posted - Wed Dec 10, 2008 11:18 pm	Fiona fanona_99@... Send Email
Mum of SGS Baby ... I am a very proud Mum of a beautiful little girl born 15-07-2008 who was diagnosed with SGS at 2 weeks old. She spent 3 weeks in special care nursery with Posted - Thu Sep 11, 2008 3:21 am	Chooky Johnson charle81 Offline Send Email
Check out my Facebook profile I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join Posted - Fri Sep 5, 2008 9:18 pm	Jane Elizabeth Moreni... morenike37_l... Offline Send Email
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