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schinzel-giedion_syndrome · Schinzel-Giedion Syndrome

Group Information

  • Members: 47
  • Founded: Dec 28, 1999
  • Language: English
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Description

Thank you all for being a part of our Schinzel-Giedion Syndrome support group. As you have probably heard by now, I’ve started a new group for us at www.Careplace.com .

CarePlace is an online support community where you can find new friends and chat in real-time with one another. You can also create your own webpage, online journal, or group and so much more! We can all still post messages and email each other like we have been.

Our Yahoo group isn’t going anywhere, don’t worry! I’d love for everyone to join CarePlace, look around, and think about the amazing new home we could build together.

To visit your CarePlace community, click the link below:

www.Careplace.com

My nickname at CarePlace is “DHughes” -- please look me up. I look forward to seeing you there!

Warm regards,

David Hughes

Note to All Members: The posting of messages with the intent to promote products and or services is not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, "flaming", "trolling", and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group.

Most Recent Topics

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Topic  (List as Individual Messages) Messages Latest Post
Mum of SGS Baby
... I am a very proud Mum of a beautiful little girl born 15-07-2008 who was diagnosed with SGS at 2 weeks old. She spent 3 weeks in special care nursery with
2 Fiona
fanona_99@...
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Check out my Facebook profile
I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join
1 Jane Elizabeth Moreni...
morenike37_l...
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my son devon
devon lived a year and 4 days its hard for me to still talk about it open like this but i will talk to anyone who has any questions i put up some pics of me
10 maria shaw
shawmaria
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devon
hi i am devons grandmother there many things about sgs that are unfair and unkind but there are many things about our babies that are beautiful the dr.s told
1 pamcraigmema
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my daughter Sofie
Hi there My daughter Sofie has just been diagnosed with SGS. She is 6 weeks old and I am finding it hard to locate any practical information regarding this
1 leithgatchell
leithgatchell@...
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2008 1 3 4 3 2 1
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2003 6 1 12 1 2 6 6 2 3
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