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pws-autism · Prader-Willi & Autism Support

Group Information

  • Members: 58
  • Category: Support
  • Founded: Jul 31, 2006
  • Language: English
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Activity within 7 days:

1 New Member - New Questions

Description

This PWS E-Mail Support/Information Program is sponsored by the Prader-Willi Syndrome Association (USA) to provide information and support to parents of children who have Prader-Willi Syndrome (PWS), as well as care providers, extended family members, and professionals. Participants in this eSupport Group provide support to each other, share information and parenting strategies, and discuss issues related to age of their child with autism and PWS. The program provides the opportunity to connect people who wish to share their experience or expertise handling the unique day-to day issues and feelings that so many parents and family members may face who have children with PWS and Autism.

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Re: Update/Concerns
Micah did this quiet often when he was younger. He has since outgrown just about all of the tics. He is on Vyvanse now for ADD. Don't know if that is what
Posted - Thu Sep 11, 2008 9:44 pm
Cindy Brooks
cjpeek58
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Re: Update/Concerns
Hi Diane, I feel for you; our son Nolan (age 5) also has had many behavioral/social, etc. problems at school and it can be heartbreaking. Nolan has had some
Posted - Thu Sep 11, 2008 9:44 pm
JenniferK
plantgirl1414
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Re: Update/Concerns
9/11/2008 Hi Diane, I'm not a behaviorist or diagnostician, but you may want to check into some sensory therapy and possibly a weighted vest to see if that
Posted - Thu Sep 11, 2008 9:44 pm
jasonpws
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Update/Concerns
Hello everyone, Just wondering if anyone has experienced "tics' with thier children.? Reagan (5 PWS/UPD) started to have uncontrollable shoulder shrugging over
Posted - Wed Sep 10, 2008 3:59 am
rodise6@...
reaganseely
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Tina - Kevin's seizures
Tina, Patrick,age 10, may be having seizures. What happens when Kevin has a seizure? Patrick's seem to happen when he's trying to wake up. It's like he
Posted - Thu Aug 21, 2008 9:08 am
Terri & Howard Schlange
terri66801
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Message History

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2008 6 7 5 1 14 4
2007 18 6 28 9
2006 9 10 3 3 1
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