***********TEMPORAY********* NEW MEMBERS WILL BE APPROVED UNTIL SPAM GETS UNDER CONTROL! SORRY:(***************************************
This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate. This list is intended to offer support, help, a little levity and information sharing conerning this orphan disease. This list will be managed with love and compassion. Your diversities are not only recognized but celebrated. This list is owned and run by fellow sufferers. We laugh together, cry together, pray together and rejoice to gether when something finally does go right. You are welcome here and will be treated with respect and compassion at all times.
... was an LP shunt because i refused the Vp shunt . This device has worked wonders for my life i feel normal and rarely get any pain associated with this
Sabrina, First of all, NEVER apologize for ranting here, we all have to do some times, just not everyone does it here. But we do understand. I haven't lost the
Sabrina, I am so very sorry your going thru all this pain. I have had this disease for almost 7 years now. I never had the bariatric surgery, but I lost 90
I'm so sorry you are going through this. I understand where you are, but don't let anyone push you into something you don't want. If it's just because you're
in your case you have held off as long as you can. i know i am waiting out to see if loosening a 75 pounds helps mine because thats what they told me they want