I used t o have terrible itching/buring/prickling of my toes. So much so that I would stand barefoot in a snowbank for relief. Since I was put in hydroxidine...
Have had PV for 9 years now; the itching was awful and nothing helped until I was put on Hydrea. Itching went away, counts have been normal to present and I...
Judy, I used to have the itching also and my doc put me on Hydroxazine. I also use Dove soap for sensitive skin. Never use a washcloth or sponge, you will itch...
Hi Judy, I think it is healthy not to let polycythemia own you. Denial to the extent of not controlling your blood numbers, or ignoring a symptom that could...
I think that Dan makes a very valid point that groups like this, by their very nature, display a preponderance of posts from people seeking help rather than...
I agree with both Dan and Nelson . I am 51 and was diagnosed 10 years ago I am treated with Interferon and baby Aspirin every other day. I jog 7 kil. A day,...
Hi Everyone, I just wanted to say "Thank You" to all that had posted after reading my post. Because I am so new to this, every little bit helps me to...
Hi Judy, Welcome to the group. I have secondary Polycythemia. I get really high anxiety that starts a couple of days before I go to the doc. I too know mine...
Hi All, When I was first diagnosed I used to have Panick attacks on my way to the hermatologist, but I think its the unknown ?? I still get nervous but no PA...
Hi I am a long time member but not active as I don't have too much what to say from my experience. For another disease I am using Pentoxifylline for one month...
Hi Judy I will update within 2 months if will have some additional benefits from Pentoxifylline Best wishes Joe ________________________________ From: Judy...
Hi everyone. I ahve been fighting this since '96. High volume of blood and polycythemia. Please if you do not have JAK2 mutine gene then you do not gave...
Hello To All,  Just an observation.  Since taking Hydroxyurea,(and some high blood pills plus the baby aspirin) I have these observation; . I tire...
Hi, Losing hair, and gout, my eye brows don't grow much any more, nails are odd:Â toe nails are hard to cut, finger nails don't grow and are thin, and I can't...
Some type of a migrane perhaps? Cilla Sent from my iPad2 ... From: crystal umstead <bbbcj1@...> To: polycythemia_vera <polycythemia_vera@yahoogroups.com>...
... Because they went away after my first draws, I have related it to my PV. It's just that they are returning after 2 1/2 years of having none. I'm thinking...
Be cautious of too many phlebotomies. Slight anemia can help to prevent itching plus thin the blood out to flow better, too many can have adverse effects. We...
Hi Crystal  I have exactly the same symptoms. It is the sign that the migraine is coming, for me always very strong headache. I had migraines from very young...
I have those eye problems as well and was seen at the eye hospital. They said it was a partially torn retina. The problem has slowly resolved through time. HTH...
Hi CrystalI have a similar problem occassionally. Â It's like an optic migraine without the pain. Â Mine start out with seeing shards of light in one eye, they...
I and my wife both have experienced this and she doesn't have poly. One
doesn't need pain for it to be an optic migraine. She gets very tired afterwards, I...
Beth That is exactly what it is! They went away for about two years and are now returning. Thye were happening quite often before I was diagnosed, went away...
Hi CrystalAre your counts up .. do you think it's related to higher counts and the phlebotomies help?I'm trying to figure it out too.Take careBeth ... From:...
I've had P-Vera for 11 years and don't have any of your problem except being tired. See a dermatologist concerning your nails and hair. You may want to find a...
Well, as to the dark toenails--I waited and waited just sure it was a side effect from Hydrea and a symptom of skin cancer. When I finally showed my hemo...
