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polycythemia_vera · Support Group

Group Information

  • Members: 336
  • Founded: Mar 27, 2000
  • Language: English
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Activity within 7 days:

3 New Members - 1 New Message - New Questions

Description

Thank you all for being a part of our Polycythemia Vera support group. As you have probably heard by now, a bunch of your fellow members are over at www.Careplace.com trying out our new community.

CarePlace is an online support community where you can find new friends and chat in real-time with one another. You can also create your own webpage, online journal, or group (for something specific like “Moms living with Polycythemia Vera”), and so much more! We can all still post messages and email each other like we have been.

Our Yahoo group isn’t going anywhere, don’t worry! I’d love for everyone to join CarePlace, look around, and think about the amazing new home we could build together.

To visit your CarePlace community, click the link below:

www.Careplace.com

My nickname at CarePlace is “DHughes” -- please look me up. I look forward to seeing you there!

Warm regards,

David Hughes

Note to All Members: The posting of messages with the intent to promote products and or services is not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, "flaming", "trolling", and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group.

Most Recent Messages

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question
I have been treated with phlebotomies for almost 3 years...my only treatment...the longest I have gone is a couple months in between but on average I give
Posted - Sun Nov 1, 2009 2:02 pm
Deidre Lowe
dee1689
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Re: Hint For Ladies with PV....
i am 44 male. I went with state farm for life ins policy...  a 250k policy cost $ 2,500 per yr. ... From: Peter Crawford <pcrawford6912@...> Subject:
Posted - Tue Oct 13, 2009 5:05 pm
rgengland2
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Need a referral to an MPD dr
Need a referral to an MPD dr. in Northern New Jersey that administers Pegasys, for it is too much for me to commute to NY.
Posted - Mon Oct 12, 2009 9:43 pm
Monique Unique
perfectgams
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Re: Hint For Ladies with PV....
I've been turned down by all insurance companies, because of my Polycthemia.  I had missed a payment, sent in payment and they returned it and cancelled me
Posted - Sat Oct 10, 2009 4:25 pm
Peter Crawford
pcrawford6912
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Re: Hint For Ladies with PV....
From: a_c_stettler Sent: Friday, January 09, 2009 8:30 PM To: polycythemia_vera@yahoogroups.com Subject: [polycythemia_vera] Re: Hint For Ladies with PV....
Posted - Thu Oct 8, 2009 11:45 am
wkf@...
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 7 49 37 127 54 77 23 7 12 9 1
2008 51 30 72 39 80 29 88 138 28 69 28 20
2007 45 61 32 116 145 63 34 40 41 44 72 100
2006 97 91 68 52 50 22 44 148 55 47 41 59
2005 200 234 134 189 142 24 105 86 96 116 142 220
2004 33 70 72 140 83 167 63 72 78 54 56 187
2003 51 61 58 48 45 35 45 15 31 3 29
2002 2 13 21 22 9 25 7 8 36
2001 5 1 15 1 1 1 8 8
2000 1 4 1 7
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