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parentsoftotallyblindchildren · Parents of Totally Blind Children

Group Information

  • Members: 91
  • Category: Parenting
  • Founded: Sep 17, 2006
  • Language: English
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Description

This group was designed to give support to all parents of TOTALLY BLIND (blind with no light perception) babies, toddlers, and children and bring them together to share experiences and information in one place.

I will also accept membership for people that are totally blind and could share some insight on growing up that way, parents that have older children that are totally blind, and people that care for children that are totally blind or are involved in some way in their lives. This includes grandparents, fosterparents, teachers, therapists, doctors, advocates, etc.

This list is moderated. Listowner reserves the right to remove any listmembers who refuse to abide by the rules. Please read the rules outlined within the welcome letter when you join. I do not accept people who join via email and don't provide me with comments or an introduction. Thank You!

The picture is of the owner/moderator's totally blind daughter, Tatiana Nai'a, and her tactile quilt that was made by her Nonnie.

Key words not above: Mom Dad Mother Father Mommy Daddy Baby Infant Child Kid Optic Atrophy Retinopathy Prematurity (ROP) Premature Birth Cortical Visual Impairment (CVI) Ocular Nerve Hypoplasia (ONH) Septo Optic Dysplasia (SOD) Retinal Diseases Leber's Congenital Amaurosis (LCA) Bilateral Anophthalmia Retinitis Pigmentosa Albinism Glaucoma Cataracts Macular Degeneration Optometrist Vision Loss Pediatric Ophthalmologist Blindness Orientation Mobility No Light Perception (NLP) Louise Braille Eye Hellen Keller Disability Deaf Disorder Tactile Defensiveness

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 7 1
2011 5 1 3 5 1 3 1
2010 2 3 1 7 1 3 2 2 2
2009 5 5 5 8 4 3 4 4
2008 4 1 2 9 2 2 1 9 13 6 7 7
2007 49 17 55 11 20 12 1 1 2
2006 68 87 45 29
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