Hi Everyone, I just wanted to wish all of you a Happy 2006! I haven't been able to join in on the discussions like I would have liked because time hasn't...
Hello everyone and Happy New Year!! We are new here and hope we can get some coping strategies and learn from the experiences of others and offer support along...
Hi Vita and Jeff, Welcome to the group. My name is Kathy and I have a 6 year old son who started having seizures at the age of 10 months old. He has...
Kara- Thanks for the valuable info on vitamins. Asking Emily's neuro next week for that info was on the list of questions I had. Today was a bad epilepsy day...
Hi, does anyone know of any support chat groups on the Mirc for parents of special needs kids?? Jo ... No virus found in this outgoing message. Checked by AVG...
We see Dr. Berry-Kravis at Rush. We live in Joliet (west side). We love our neuro too. SHe is so good about listening to our concerns and working with us. ...
Hi Vita and Jeff, I don't often write but I read the post everyday. It makes me feel like I'm not out there alone. I have a son, like yours, he was born very...
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Jan 4, 2006 4:10 pm
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Yes, I know where Joliet is. It's about an hour from me. I am guessing the signs that you saw were BloominTON not BloomingDALE. Everyone gets those confused....
Hi Everyone! As I was replying to a post to Machell, I was asking her questions about Laughing Seizures and decided to post it out here to everyone else as...
Vita & Jeff....... Pam hit the nail on the head with the attached post. I couldn't have said it better myself. My daughter is 3 and it gets very challenging...
My husband and I knew we had seen a sign for bloomington, but we thought we had seen a sign for bloomingdale one time when we were out and about. Samantha is 4...
Hi Machelle, I have been reading your posts with great interest as I live in New Lenox. I have an eight year old with hundreds of seizures a day in which no...
This was sent to me by another group and I thought I'd share it with everyone. Grace You know you have a child with special needs when... - You compare ER's...
This is TOTALLY AWESOME ! I LOVE it ! Thank you for sharing! The potty training one is my FAVORITE! LOL LOL LOL Sincerely, Mary (Gianna 3yo.) Illinois,...
THANK YOU!! This is hilarious, and so TRUE! Talk about "real life"! My personal favorite is "When the drs.know you by your name without referring to your...
Hi - My son is 4 and he was just diagnosed with status epilepticus. He had a 40+ minute seizure, stopped breathing and paralyzed down the right side. Let's...
My name is TomIIWatkins. I am 27 years of age. I have been having seizures since 5/78. I need information about Laughing Seizures because these are new to me....
My name is TomIIWatkins. I am 27 years of age. I have been having seizures since 5/78. I need information about Laughing Seizures because these are new to me....
Tobias was only daignosed in September. His situation is not stable in any way so he has actually had several types of seizures. He has only had one gelastic...
Hi Marisa, My son has been having seizures since he was 10 months old. He is now 6. He has generalized tonic clonic-partial complex-intractable epilepsy. What...
Hi Kathy - Are we supposed to e-mail or be on the web-page so others see what we write and can get whatever from our chats? I've never been on one of these...
Hi Marisa, You can do either e-mail as you are doing or go to the web site. Intractable means not controlled. How old is your son? Benjamin is on 120 mg a day...
HI - Wow, what a ton of meds. Tobias also has Diastat pens everywhere he goes. Where are you located? We are about 45 minutes north of Boston so Tobias is in...
Hi Kathy, I'm a newbie to this group but have been learning a lot from everyone here. I've posted a few times, so you've probably read the "short version" of...
Hi Marisa, I am about 30 minutes south of Boston. Dr. Fayad is his neuro out of Childrens and Dr. Bergman is is EPI doctor out of Childrens, along with Dr....
Hi Anna, I have never heard of a neuro referring to E as like a cancer. Benjamins neuros when he was about 2 told me that as he gets older his seizures will...
I forgot, I have 6 kids, Benjamin being my youngest. I have 5 boys and 1 girl. My one girl is 9. My oldest is 27, 25, 16, 11, 9 and 6. I also have 2...
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