We are still trying to find a medication for our daughter Sydney. First and foremost to control seizure. Second, with the least about of side effects to...
Cathy, My daughter, Erin, 13, has been on Keppra for about 2 1/2 years. It is being used in conjuction with Depakote and Lamictal. It's been a good combo for...
My daughter Angela just went for her follow up visit with the neuro from having the 48 hr portable EEG and the results were that she was having seizures in the...
Hi Jean, I can relate to you big time. My son who is 6 has been on Dilantin but only for 2 weeks. It cuased him to hallucinate and have severe headaches and...
Kathy, Thank God for you. That really puts my mind at ease somewhat. She's only been on this for three days and before that; dont get me wrong, she's got her...
Hi Jean When did your daughter first started having seizures. My son started having seizures at the age of 10 months old. If you ever need to talk please feel...
Kathy, She started having "Absence" seizures about May or April of this year, ironically the same time her father quit coming around. Now, she did have a...
Jean, I have two daughters, one is almost 15yo and the oldest is almost 21yo, my 15yo is developmentally delayed and she's the one who began having seizures...
Hi Jean, One of the moms on my group gave me a seizure protocol that I will forward to you. Benjamin is just starting school. The school should have givne you...
Thank you Grace for your support. I guess doing this alone without a partner is so much harder and it's nice to know you guys are out there. Jean Grace...
Jean, I am really sorry that you're having to go through this alone, it's hard no matter what. I've also had my crying days and continue to have them. I...
My Son Andrew who is going on 5 is on Dilantin. There is a small increase of behavioral issues but nothing that we cannot handle and help him redirect. He has...
Hello eveyone, My son is going in on Monday to have a video EEG. I am a little concerned that it will be the most miserable week of our lives. He is only two...
Dear Jennifer, Your son is on a lot of medications. Every child is different, but I know that my daughter does much better on one medication at a time. We...
Hi Jennifer, I have been there twice for 5 days each time with my son. What I did was I stocked up on all of his favorite things to do. Playdoh, blues clues...
Jill, Thanks for the words of wisdom. Your right about my son being on a lot of meds. The DR just keeps giving him more and more. He says we can't go down on...
Kathy, I think I will do the same and stock up on all the things Jordan loves the most. We go to the UC Davis Med Center in Sacramento. The hospital is also...
Hi Jennifer, Hang in there. I know exactly how your are feeling. They briefly told me that without looking at and reviewing all the tests that they had done in...
Jennifer - we were just at the Mind Institute today! We see Dr. Chang. My son Brian had a 72 hour video monitoring EEG when he was 4 years old (he's now 10)....
Hi- I was wondering what's everyone's opinion on vaccinating our epileptic children? I'm very nervous about this! Lindsey-Grace has been seizure free almost...
My son still has his shots. The only one that he hasn't had since he started having seizures at 10 months old is the pertussis. If you have seizures you cannot...
Jennifer - when working with meds, diet or surgical options, you should use those as tools to decrease unwanted problems (seizures) or increase positive things...
Jennifer, My daughter's seizures increased whenever we added meds or increased doses. I thought that it was her type of seizures and didn't think we'd find an...
Mary, I am so glad that you are going to try the Atkins diet for Amanda, I hope that it will be the relief you've been hoping for. Are you doing the trial...
Hello, Everybody has different opinions on what the right answer is. You have to do what you feel is best for your daughter. I will share with you what...
My advice is go with your gut instinct and whatever you're comfortable with! Grace taylin12@... wrote: Hi- I was wondering what's everyone's opinion on...
I agree that since she takes Keppra, Emily is more irritable, actually more violent. It's under control though. She is taking Keppra concurrently with ...
With Andrew being 4 going on five, the schools and daycare systems require vaccination to enter schools. Although I am homeschooling this year I am wondering ...
My sonwho is 20 months has been on Dilantin since May. We have noticed that his gums are swollen and prone to bleeding - even though i brush them 4 times a...
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