... message boards and such for older children for support. Sue A. Hi all, new to this group! My 12 year old son was diognosed with ... he ... thought ... for ...
... again ... is we ... chosen ... difference ... keppra ... that ... while we ... just ... others ... Hi Lori sorry to hear about the new info. yet, it is...
We have used both depakote and topamax. The depakote was our first med. It worked to help control seizures, but caused increasingly uncontrollable behavior...
Hi Everyone, I belong to 4 different sites, so some of you might be reading this more than once. We have rescently weaned my daughter off of 9 years of...
hi, cathy, it sounds like my daughter. Sasha is 7 in september and has had epiepsy since january this year. She has a right side weekness when she goes into a...
I just had to jump up and down a bit. Jordan had his first seizure free day in over a year yesterday! He's still dealing with a bit of dizziness and nausea...
That is awesome news! Our daughter has been seizure free for a year! We jumped up and down as well!! Kathy Semke Lori Peters <zilla@...> wrote: I just...
Lori, That is great news? I wish you and Jordan all the best and I pray that this is just the beginning of a seizure free life. Good Luck and God Bless! ...
Fantastic news!!! l truely hope this continues for both Jordan and your family. Always light at the end of every tunnel take care Susan ... Do you Yahoo!? ...
Hi everyone! It has been a long tme since I have been on. There have been too many reasons why. Anyway, back in Feb. We took Rebekah off the topomax(400mg)...
Hannah did the same thing..when she got RSV in Feb, she stopped having her
seizures, Then as if on a timer, they started back exactly 3 months later..
then...
Hi Everyone, Well our dream of being med-free has been short lived. Two months after being weaned off the Pheno., and 3 grand mals later, we have started...
Marcus will have a procedure done tomorrow at 3 pm hopefully. But the doctors are not reassuring at this point. I am courageoushearts website owner of...
Hiya! My son James started on 100mg of Teg then went up to 400mgTeg, after a couple of months on this he was put onto slow release TegCR 200mg tabs. We found...
Hi all, Jordan has been dealing with some occasional dizziness and nausea. After throwing up about 4 times Sunday morning, we decided to call the neurologist...
I recently became disabled and two out of three of my children are disabled and we all have to travel back and forth to Buffalo to see specialists. If anyone...
HI everyone, I need to ask your opinions. alertness vs seizures, On a lot of meds there are less seizures and less alertness, On less meds there is more...
Cathy, I am really sorry to hear that, but don't lose hope that one day she will be seizure and med free. As for the rash, I would contact the neuro about it...
Angela, That's a really hard question because neither one is very comforting. My question to you is, how long are the seizures and how often. If the seizures...
oops, I meant to say her seizures were back to what they normally were
before the RSV. joan ... From: parents-of-kids-with-epilepsy@yahoogroups.com Date:...
My daughter does have more seizures when a cold front moves in, her neurologsit does think this is possible and does prescribe medication on days of storms. It...
Hello group members, I wanted to let you know there is a new epilepsy organization in Orange County California, Epilepsy Alliance of Orange County. If any of...
I just took my daughter to a neurologist last friday and had an EEG ran yesterday, Monday, and that same day the drs office called and said her EEG was...
That does sound like absence seizures :-) The monitoring is no big deal really, and if she's not on medication now, she probably will be soon. If she's one of...
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