I just want to introduce myself and my daughter as we are new to the group. My name is Cheryl and my beautiful daughter is 17 month old Hannah Louise. Hannah...
That's a toughie. I don't know if YOU could get social security, but maybe SHE can :) Have you tried applying for SSI? You might be surprised. While it's...
My son is three and he is on Tegretol and we are also having problems with his teeth. In Jan. I was told he was cavity free in May he had to have five teeth...
Hi Angela, I think we have alot in common. Karley is 10. She's on Felbatol now and we just took her off Trileptal and are adding Topamax....so far so good....
You know what? Sometimes I think we have to speak out when people are so ignorant. While most don't deserve to hear the life story about our children they do...
I would ask to switch to the sprinkles. They're the same strength and so much easier. Your pharmacist can call the doctor for you to make the switch and work...
thank you grace for your encouraging words, but I feel I've been blessed with him. I love both my kids but it's something about my son that seems to me that we...
No, the doctor told me that valproic acid is much weaker than depakote they from the same family of drugs, But Depakote is the original brand and valproic acid...
That's strange. A drug cannot be marketed as a generic unless it is the same. Sometimes the added ingredients to one or the other can make a difference...
... also has diastat for tonic clonic cluters. She also has Smith Magenis Syndrome. She functions at about the 4-5 year old level. She can read a few sight...
... and responsibility. my 19 year old says that his sister is birth control for him. He makes sure that he uses birth control because he lives with his...
Angela, I don't think Karley has ever had a status seizure. Is that where they last a long time? I don't think I fully understand what that is. Karley tends...
That's an easy one! Matthew's been on SSI since he was about 6 months old for his Epilepsy. I got the paperwork, filled it out and enclosed an EEG statement ...
Hello and Welcome! My Matthew (2 1/2) has been on 3 medications (sometimes more; sometimes less) his whole life. I'm sure they wouldn't prescribe them if the...
... cold winters! Anyway, the periods, I tried pads with her but they just made the biggest mess. She would have blood up her back. She tries to continue...
Angela, Thanks for sharing the info about your daughter. My Karley sees an endocrinologist and she has assured us that once her period starts we can delay it...
Hyia, I've had my daughter on SSI since she was in the 4th grade, we have it automatically deposited into the checking account. You do have to have a dedicated...
How do they decide if someone qualifies for this? Is it to cover medical expenses for a disabled child? I'm a single mom and struggle financially but do...
Tracy, Yeah, Michelle is 14yo and has had her period since she was eleven. Her seizures began after she started her period, she was almost 12yo. Michelle is...
Grace, Thanks for sharing. I don't know exactly how the endocrine doctor was planning on stopping Karley's cycle. We have an appt in a few weeks and I'm...
My daughter also stops breathing for about 20 - 30 seconds but that's because that's what happens when they have a grand mal seizure. Their muscles become...
My son is on SSI and they decide by how affected your child's daily life is by their disorder. They will contact your child's school, the doctors etc and...
Heather, Thank you for posting that site, it is very informative. I looked through some of the articles and they are very interesting. I will go back for more...
that's interesting, they had originally told me that I can't save more than $100 for Nicole's future, that I had to use it for daily/monthly costs. Victoria ...
I think what they are saying with this is based on the income factor. They check your monthly income, and obviously if you have a growing savings account that...
Tracy, How delayed is your daughter? It was hard handling my own and Michelle's as well but it became easier as she learned to handle it herself. Please feel...
... friends who have. I would like to know what they recommend to delay her periods. As far as I understand, my one friend who has an autistic daughter gives...
Here in Canada Depakote is considered the same as valproic acid. Depakene is in a similar drug family, but not quite the same. i have heard Depakene causes ...
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