My son, Connor is on VyVanse as well, but we have seen a huge improvement with his attitude and decision making.? He is also on Topamax and his neuro said that...
Jennifer, Thank you so much for writing. Reading what you said was helpful because we really would like to check if it could be medication or the seizures...
I am late in posting a reply. Congratulations on the success. We had to have two surgeries, the first worked for my son for a 34 days, then the incision (...
Hi, haven't posted in a long time. I was wondering what is the MAD diet. I have never heard of any diets for seizures???? Any info would be great. I have a 15...
MAD is the modified Atkins Diet, limit the child to 10 carbs a day. It worked out great for us for a few weeks, then he became very ill. Trying the diet led us...
We tried the keto diet before his vns & that was not good for him! His blood sugar dropped in the hosp. He is really doing good now though! 3 seizures...
Nicol, Your post was helpful. The more I learn of other's experiences, the more it helps me to understand what might be going on for my daughter. Right now...
Linda, Has the doctor told you why does ADD meds decrease seizure meds? I have not heard that before. Leslie Hello. I have a 10 yr old son, Kyle that was...
Hello there Leslie. I also had never heard of that either. His pediatric Neurologist had stated to me that due to him still have the petite mal seizures and...
Hi Linda, Good luck with your appt. Let me know how it goes. Leslie Hello there Leslie. I also had never heard of that either. His pediatric Neurologist had...
I was needing to find out any info on the Houston Clinic. My daughter 15 just got out of ICU today. She went into Status seizures on Sat nite. She was on 3...
Hello All- I won't even pretend to understand what it is like to raise a child with epilepsy.... And while I can't imagine what it is like to walk in those...
I am trying to figure out when my son should be given ativan. For the last 2 days he has had a few hours with clusters of seizures. During these hours his...
the instrutions i was givin was to givemy daughter ativan if a seziure is longer then 5min alew Amber Wood ... From: ohavamie <abloom8@...> Subject:...
We too were initially told if it was a seizure lasting over 5 minutes. But I used my discretion mostly to break up any clusters when Logan was still having...
Received this today from the makers of Keppra. They came out with a Keppra XR (extended release). Hope this can help some one. Jan/Emily 16.5 seizure free 22...
Our daughter is on 11ml of keppra everyday and it really helps her. Sorry you are having so much trouble. Robyn ... [Non-text portions of this message have...
My husband and I are at a loss as to what is going on with our 61/2 year old daughter. I have not written in two months so I will briefly share her history...
I have multiple medical conditions going on with my Garrett, but epilepsy thank God is not one of them any longer. The old group owner left leaving me as the...
Really there is not much too it. I have everything set to where new members have to be approved to cut down on the spam. It is mostly approving new ...
I could help with the group also. Thanks- Robyn ... From: cure rett now Date: 11/21/2008 8:20:49 AM Cc: parents-of-kids-with-epilepsy@yahoogroups.com Subject:...
I have made you a co-mod. Let me know if you have any questions. Thanks for helping! **************One site has it all. Your email accounts, your social...
I have made you a co-mod. Let me know if you have any questions. Thanks for helping! **************One site has it all. Your email accounts, your social...
Nice shopping for you! i would like to introduce a good company who trades mainly in electornic products.Now the company is under sales promotion,all the...
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