I am possibly interested in a service dog for my six year old son with seizures. I'm in Texas. Are there organizations that can help with this? Thanks, Mary ...
Hi All, my 12 yo son Alex has uncontrolled, complex partial and generalized seizures. We have been through every drug over the last 8.5 years except for...
Hi Lori, I run a yahoo group at http://health.groups.yahoo.com/group/ClubVNS/ My daughter has a VNS, got it a little over a year ago. Long story short, it cut...
Hi Lori, My 16-yr. old son, Tyler, has had his VNS for several yrs. He also has uncontrolled seizures: simple & complex partial, and tonic-clonic & myoclonic....
I don't know of any, but I would be very interested in this as well. I never thought of something like that. I'm in Alabama. Thanks! Shelly "Mary H."...
Hi Lori, My son has the VNS. He got it a almost a year and a half ago. He had just turned 6. He is had been on all types of meds. He has severe intractable...
What qualifies someone for the VNS? my daughter has partial complex, absance, 3 grand mals since last yr drop attacks where by the time she's down she's asleep...
Hi Amber, How many meds have they tried with your daughter? Benjamin has severe intractable epilepsy. His seizures are resistant to meds. He has been on over a...
she's been on tegretol (still) Clobazam (still) and Zarontin and what is a vidieo EEG she's never had one we go to sick kids tomorrow kathy provencher...
As a matter of fact there are several organizations that train service dogs for seizures. We are currently in the process of receiving ours!!! All of the...
A video eeg is when they are hooked up to the eeg and are being monotored by a video camera in the room and the doctors can see the person on a monitor in a...
No, they are not kept awake. They can watch tv, move around the room as long as the camera in the room is pointed at them at all times. How many days are they...
Sometimes they are kept awake. Especially if the docs feel they haven't seen enough seizure activity to make their assessment; then they have us do things that...
Today we went to sick kids they are finnaly sending her to their sleep clinc and redoing a normal eeg in jan. they are also sending her for developmental...
"But considering her dad has hydrocephalus and the ... Her dad has it, too? You really have your hands full; but it sounds like you are hanging in there and...
She was diagnosed with just epilepsy Anna her dad was diagnosed with hydro but we were told it wasn't heredity for her to get the condition It can lower a...
Hi All, I was wondering if any of your children with seizures/Epilepsy also has a dx of Sleep Apnea or Obstructive Sleep Apnea? Our neuro is pushing for us to...
Hello Anna: I don't know if this could be causing the problem with sleep apnea, but I wanted to let you know our experience just in case. I noticed at the...
I contacted a man who cured his son of seizures by eliminating certain foods from his sons diet. He has written a book that can be found at amazon called...
Hello, My 4 yr old son was just diagnosed with obstructive sleep apnea after 2 sleep studys. They are unsure if it is the seizures or his cerebral palsy...
Hi Aletha, Thanks so much for your story! I, too, learned that the VNS can cause apnea for some patients..I intend to bring that up next time I talk to our...
Hi Ellie, Thanks for your input! When they first suggested it to me, I thought they were just trying to fill up their schedule at the sleep clinic! But after...
Oh yeah, I noticed your msg. at the bottom; I'm into scrapbooking big-time. My dd calls it an addiction; that's okay, though..I love it, been doing it for 10 ...
I am a mom to a heart defect child and do many things to raise awareness as ... children. ... unstuffed to ... groups, and ... this part) ... started...
Mirror or two way glass????? How can you tell when you are in a room, restroom, motel etc. with a mirror or a 2-way glass? Here's how: I thought it was quite...
Hi Nicole's Dr wants to start her on Zonegran due to the increase in new auras and simple seizures since the Lamictal. she hasn't had any of her larger...
Just a reminder for anyone in the Spokane area, we are having our spaghetti feed and silent auction NEXT friday. If you would like tickets, please contact me...
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