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· Parenting Children with Moyamoya - support for parents of children with Moyamoya
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s EDAS yesterday
Hi everyone, I am new to the group. I was referred by another MMD parent. My daughter, Meadow, is currently in ICU at Lucile Packard Children'
s (at Stanford)....
Jan 18, 2008
Keith,Moyamoya and Miami Ink on TLC ( also update on recent family
Hi everyone! Just a quick update. Keith will be on Miami Ink telling his story about moyamoya. He was casted and now waiting for filming for the show. He is...
May 2, 2007
YuYu - had surgery 1/19/07 at Boston - stroke during procedure...
Hi all, I can't tell what is up with all this strange SPAM, but thought I would post anyway because I am hoping that our experiences might be helpful to...
Feb 24, 2007
Hello, I have a six year old daughter who was diagnosed with moya moya when she was 11months old they did the EDA surgery on her and she had a massive stroke....
Feb 6, 2007
My daughter, Samantha(8yrs old), had her bilateral revascularization surgery with Dr. Scott in July, 2005. She still is getting migraine like headaches a few...
Feb 4, 2007
We offer the special club for all 50+ and admirers' singles! YOU ne
There is nothing like a first date to cause an anxiety attack even in the most confident of women. As most women were raised to seek male approval at any cost,...
Jan 29, 2007
Hello everyone. Cash had successful bilateral revascularization by Dr. Frim at the University of Chicago on Jan. 22nd. Everything went great. Cash needed...
Jan 28, 2007
My name is Jeffrey Harpp. On Dec 21, 2006 our lives changed like many of you. Our 7 month old son Cash had a stroke. He was a perfect, healthy baby until...
Jan 17, 2007
Re: [Parenting Children with Moyamoya] Hello Everyone.
Hello everyone, My daughter Mallory also has MoyaMoya. Although we live in Kentucky, she also had her surgery in Boston by Dr. Scott. After researching all...
Jan 15, 2007
Don't feel alone my 50+ and the admirers' friends! Here is a good s
This is just a friendly happy group/website for mature friends. We talk about what we want to. Enjoy sharing our lives, being friends, laughter, a close...
Jan 9, 2007
Website and group for 50+ and the admirers! Good chat and dreaming
We are a mature site of men & women, from all walks of life, that gather in friendship and fun! We invite you to join us in jokes, snags, chitchat, laughter...
Jan 5, 2007
Great Aunt of A child with moyamoya
Hi' My name is Linda and I have a great niece who has moyamoya. She had a stroke in 2001 and that was when we found out she had moyamoya. She has had 3 brain...
Dec 27, 2006
MoyaMoya and high altitude - question
Hi all, Our son (now 5 years old), had a stroke in January 2006, and had cranial revascularization with Dr. Scott at Boston Children'
s in March 2006. Today he...
Dec 26, 2006
To operate or not ????
I am the parent of an eleven year old girl who has been diagonised with Moyamoya after an ophthalmologist gave her a reading of 0.8 optic disc cupping in both...
Dec 23, 2006
Re: [Parenting Children with Moyamoya] My little girl
I am so sorry you and your family has gone through this, but glad that you found the group! How is your daughter doing? Did they do a direct or indirect bypass...
Dec 14, 2006
Hello From An Online Newbie
Hi my name is Linda I live in Florida and my Neice was Diagnosed 9 years ago with moya moya....
Dec 9, 2006
article about young girl in in Indiana w/moyamoya
Leader Pub Home Leader Pub Home Niles Star Niles Star Dowagiac News Dowagiac News Cassopolis Vigilant Cassopolis Vigilant Edwardsburg Argus Edwardsburg Argus...
Dec 7, 2006
what is going on with the spam lately
Does anyone know how to stop the recent spam? By the way how are everyone'
s kids doing? Mandy...
Dec 6, 2006
what is going on with the spam lately?
We appear to be getting quite a bit of the spam for singles... what's up with that? Sara [Non-text portions of this message have been removed]...
Dec 6, 2006
My little girl
My Little girl Bailey is 3 years old and we just found out that she has moyamoya. On nov 9th she fell off a chair at around 8am she acted just fine all of...
Dec 3, 2006
my brother was disgnosed with MM.. my son was diagnosed in Jan of MM
Hi everyone.. have not written since moving.. all is well here.. although devasting news... I found out today, after a three year search for my brother,, that...
Sep 11, 2006
I just got my Ipod and it's sick. Putting all my music on it now than im going to go for a short jogg. Cant believe it didn't cost me a thing thanks to these...
Jul 25, 2006
New Ipod, Our Gift to You
Free Ipod Nano, choose your favourite color http://www.bobwaker
Jul 24, 2006
National Organization of Rare Disorders
Has anyone ever purchased the abstract that the National Organization of Rare Disorders has that describes moya moya? http://www.raredise
Jul 21, 2006
Re: [Parenting Children with Moyamoya] Surgery for Paige
Dear Jennifer, I am so glad that things are moving forward and that you've found a surgeon you're comfortable with. Please keep us posted, o.k.? You and...
Jun 20, 2006
Surgery for Paige
It's been awhile since I have posted a message but it has been crazy here.Paige had a check up at St.Jude'
s this past week and while there,we met with a...
Jun 20, 2006
4yr old daughter cries alot & wakes up alot at night
My 4 yr old daughter cries alot over the least little thing.Some days it seems like all she does is cry.I'm sure alot of it has to do with her being sick since...
Jun 14, 2006
Re: [Parenting Children with Moyamoya] Moyamoya Syndrome - we shoul
Cheryl, My name is Tom Busam from Alexandria,Ky. I'm not sure if I am the one you wanted to talk to....
Jun 1, 2006
Moyamoya Syndrome - we should all be educated.
I have been meaning to bring this topic up - even though I rarely check this site these days. Our son had a stroke this past January, and was diagnosed with ...
Jun 1, 2006
Cheryl in NM
Hello from a Newbie...
My beloved niece was diagnosed with Moyamoya yesterday she is currently at Sutter Memorial Hospital and we are just waiting to see where we go from here. This...
May 27, 2006
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