Hi everyone, I am new to the group. I was referred by another MMD parent. My daughter, Meadow, is currently in ICU at Lucile Packard Children's (at Stanford)....
Hi everyone! Just a quick update. Keith will be on Miami Ink telling his story about moyamoya. He was casted and now waiting for filming for the show. He is...
Hi all, I can't tell what is up with all this strange SPAM, but thought I would post anyway because I am hoping that our experiences might be helpful to...
Hello, I have a six year old daughter who was diagnosed with moya moya when she was 11months old they did the EDA surgery on her and she had a massive stroke....
My daughter, Samantha(8yrs old), had her bilateral revascularization surgery with Dr. Scott in July, 2005. She still is getting migraine like headaches a few...
There is nothing like a first date to cause an anxiety attack even in the most confident of women. As most women were raised to seek male approval at any cost,...
Hello everyone. Cash had successful bilateral revascularization by Dr. Frim at the University of Chicago on Jan. 22nd. Everything went great. Cash needed...
My name is Jeffrey Harpp. On Dec 21, 2006 our lives changed like many of you. Our 7 month old son Cash had a stroke. He was a perfect, healthy baby until...
Hello everyone, My daughter Mallory also has MoyaMoya. Although we live in Kentucky, she also had her surgery in Boston by Dr. Scott. After researching all...
This is just a friendly happy group/website for mature friends. We talk about what we want to. Enjoy sharing our lives, being friends, laughter, a close...
We are a mature site of men & women, from all walks of life, that gather in friendship and fun! We invite you to join us in jokes, snags, chitchat, laughter...
Hi' My name is Linda and I have a great niece who has moyamoya. She had a stroke in 2001 and that was when we found out she had moyamoya. She has had 3 brain...
Hi all, Our son (now 5 years old), had a stroke in January 2006, and had cranial revascularization with Dr. Scott at Boston Children's in March 2006. Today he...
I am the parent of an eleven year old girl who has been diagonised with Moyamoya after an ophthalmologist gave her a reading of 0.8 optic disc cupping in both...
I am so sorry you and your family has gone through this, but glad that you found the group! How is your daughter doing? Did they do a direct or indirect bypass...
My Little girl Bailey is 3 years old and we just found out that she has moyamoya. On nov 9th she fell off a chair at around 8am she acted just fine all of...
Hi everyone.. have not written since moving.. all is well here.. although devasting news... I found out today, after a three year search for my brother,, that...
I just got my Ipod and it's sick. Putting all my music on it now than im going to go for a short jogg. Cant believe it didn't cost me a thing thanks to these...
Has anyone ever purchased the abstract that the National Organization of Rare Disorders has that describes moya moya? http://www.rarediseases.org Just...
Dear Jennifer, I am so glad that things are moving forward and that you've found a surgeon you're comfortable with. Please keep us posted, o.k.? You and...
It's been awhile since I have posted a message but it has been crazy here.Paige had a check up at St.Jude's this past week and while there,we met with a...
My 4 yr old daughter cries alot over the least little thing.Some days it seems like all she does is cry.I'm sure alot of it has to do with her being sick since...
I have been meaning to bring this topic up - even though I rarely check this site these days. Our son had a stroke this past January, and was diagnosed with ...
My beloved niece was diagnosed with Moyamoya yesterday she is currently at Sutter Memorial Hospital and we are just waiting to see where we go from here. This...
