Hello Laurie I havnt spoken to anyone in ages. I guess i just got fed up of all the spam and didnt trust the emails anymore, i hope it gets sorted as...
936
Laurie Park
sparkln13
Jan 17, 2008 9:22 pm
Hi Jane, Samantha was lucky and did not suffer a stroke prior to her being diagnosed with Moyamoya. She seems to have no residual affects except for the...
937
Laurie Park
sparkln13
Jan 17, 2008 9:34 pm
Lora, How is Meadow doing? Just know that we have all been through the same heartache and that you are not alone. And feel free to pour your heart out any time...
938
kevin_c86
Jan 18, 2008 12:47 am
Lora, Our daughter Juliana is 6yrs old, and is 2 1/2yrs post/op for Moya Moya. Boston Childrens Hospital, Dr R.Michael Scott is her surgeon there and he is a...
939
lora beasley
lorabeas
Jan 18, 2008 2:01 am
Meadow has moved out of ICU to a regular floor this evening. She is doing really well, and even seems playful today. She had her CVL removed this morning....
940
lora beasley
lorabeas
Jan 18, 2008 2:03 am
Thank you Jane. : ) To: parentingchildrenwithmoyamoya@...: ginger090177@...: Thu, 17 Jan 2008 14:37:39 +0000Subject: Re: [Parenting...
941
lora beasley
lorabeas
Jan 18, 2008 2:28 am
Hi Allen, My daughter Meadow is 3 yrs. She had 2 strokes at 7 months old, and now has right hemiparesis. She has come a long way with PT/OT. She still does not...
942
jane wood
ginger090177
Jan 21, 2008 10:18 pm
Hi Laurie Nice to hear from you Dear. Chloe isnt having speech therapy at the moment but i will be pushing for it once we get her hand sorted. We go in...
943
jane wood
ginger090177
Jan 25, 2008 8:59 pm
Hi all Just wanted to let you know Chloe had her operation done on her wrist/thumb on Wednesday and it went ok. We are home now. We wont know if it is going...
944
Linda Handover
linda_9001
Feb 17, 2008 3:24 pm
Cool Funz Fun, Hangama and Masti on net "Enjoy Free Mobile Ringtones, softwares, Entertainments Wallpapers, Funny sms ,Mobile sms ,Telephone Directory ,Cooking...
945
Lora
lorabeas
Feb 19, 2008 12:37 am
Does anyone's child have ocular malformations? My daughter has a visual defect in each eye. She has optic nerve hypoplasia in her left eye (which I have been...
946
Lora
lorabeas
Feb 19, 2008 12:40 am
I noticed under the calendar that there is a parent chat dated to occur on Friday, Feb 22cd. Is that central standard time? Also, how do you join the parent...
947
jnokes5
Feb 19, 2008 3:00 am
... visual ... eye, ... for ... Lora, My daughter, Paige, who is now almost 6 yrs old was diagnosed with MMD in early 2006 after suffering a stroke in December...
948
Nancy McStravick
nancymcstravick
Feb 19, 2008 10:53 am
Hi Lori, I don't know the exact condition but I have heard of a connection with certain eye conditions and moyamoya. Sorry I can't be more specific. Nancy To:...
949
lora beasley
lorabeas
Feb 20, 2008 4:13 am
Hi Jennifer, Have you been in touch with Jenny Moyer? Her daughter also has Neurofibromatosis and MMD. I am not sure if she is part of this group or not...but...
950
Jennifer Elrod
jnokes5
Feb 20, 2008 4:38 am
Lora, Yes, we have contacted each other a few times via email although it has been a while. I think she first emailed me after I posted a message on the...
951
lora beasley
lorabeas
Feb 20, 2008 4:49 am
Do you live in TN? We are about 3 hours from Memphis. We live in northern corner of AL. Lora To: parentingchildrenwithmoyamoya@yahoogroups.com From:...
952
Jennifer Elrod
jnokes5
Feb 24, 2008 5:38 am
Yes, we live close to Cookeville,TN , which is about a 4 1/2 hr drive from Memphis. It is east of Nashville. We actually were referred to a neurosurgeon at...
953
lora beasley
lorabeas
Feb 25, 2008 5:34 am
I am glad to hear a parents perspective about Vanderbilt. I need to find a neurosurgeon to monitor Meadow after Dr Steinberg's 6 month follow-up appt in July....
962
Mohamed
idamedi
Sep 30, 2008 1:43 pm
Hello everyone, I wrote in in 2006/07 because my daughter had just been diagonised with moyamoya and this site was wonderful in supporting and giving my family...
964
Laurie Park
sparkln13
Dec 28, 2008 10:36 pm
Dear Wyndi, Your daughter sounds like she is a very strong little girl! My daughter was 7 when she was diagnosed with Moyamoya 3 yrs ago. We are a military...
965
Lora
lorabeas
Jan 17, 2009 3:59 am
FWD: We're gathering a list of families who may be interested in attending the 2009 Children's Hemiplegia and Stroke Association, CHASA Family Retreat. We're...
966
Nancy McStravick
nancymcstravick
Mar 17, 2009 4:24 pm
New experience of shopping! i would like to introduce a good company who trades mainly in electornic products. Now the company is under sales promotion,all the...
967
Laurie Park
sparkln13
Mar 17, 2009 10:34 pm
You have no business being on this website. Take me OFF your list. ... From: Nancy McStravick <nancymcstravick@...> Subject: [Parenting Children with...
968
heather patterson
hjnp1962
Mar 18, 2009 1:09 am
how do awful when someone invades a site meant to provide support to profit themselves ________________________________ From: Laurie Park...
969
Nancy McStravick
nancymcstravick
Mar 18, 2009 7:58 am
I would like to let everyone know that I did NOT send this email about shopping. I can only presume it a virus of some sort and hope it has not effected your...
970
Jane
ginger090177
Apr 15, 2009 9:02 pm
Just watched the extraordinary people programme on channel 5. The children with primerial dwarfism could get moya moya..... This is the first time i have...
971
Cheryl
luvfunparenting
Jan 31, 2010 6:12 pm
This is a topic many are not familiar with as vital and important. But I assert that not being known does not stop the truth from being true. Heavy metals and...
972
Cheryl
luvfunparenting
Feb 15, 2010 12:52 am
Hello Everyone! Happy Valentine's Day! Just so you know - I have started a new Yahoo Group for those interested in the topic of less toxic living. Personally,...
973
Cheryl
luvfunparenting
Jun 8, 2010 1:45 pm
Live from Children's Hospital Boston! =TREATING MOYAMOYA DISEASE= It means "puff of smoke" and it could lead to strokes in children. See how the team at...
