Thank you for asking Bailey is at home now after 5 weeks in the hospital they think she is going to get all of what she has lost back. She has alot of work in ...
I am the parent of an eleven year old girl who has been diagonised with Moyamoya after an ophthalmologist gave her a reading of 0.8 optic disc cupping in both...
Hi' My name is Linda and I have a great niece who has moyamoya. She had a stroke in 2001 and that was when we found out she had moyamoya. She has had 3 brain...
Well Im sorry to hear about your niece. I have a little girl thats 3 years old that has moyamoya. She had a stroke nov 9 2006 so Im still new to this. My ...
I have a 3 year old little girlwith moyamoya. she had a stroke on nov 9 2006. I dont see why they would tell you not to do the surgry. If they know that she...
Our daughter Mallory who is six was diagnosed with moyamoya in May of 2005. We were fortunate that she did not have any strokes but only severe migraine...
Hi all, Our son (now 5 years old), had a stroke in January 2006, and had cranial revascularization with Dr. Scott at Boston Children's in March 2006. Today he...
Cheryl, My son had a stroke Dec 2002 and surgery on both sides in June 2003. We live in CO, at an altitdue slightly higher than yours, and have lived here for...
Linda, Chwck out www.moyamoya.com it has a great support group and a ton of information.I hope it helps your sister and great niece. Rena lindalee19552002...
We are a mature site of men & women, from all walks of life, that gather in friendship and fun! We invite you to join us in jokes, snags, chitchat, laughter...
This is just a friendly happy group/website for mature friends. We talk about what we want to. Enjoy sharing our lives, being friends, laughter, a close...
My name is Jeffrey Harpp. On Dec 21, 2006 our lives changed like many of you. Our 7 month old son Cash had a stroke. He was a perfect, healthy baby until...
Our daughter Juliana also has Moya Moya disease. Juliana is seen at Children's Hospital of Philadelphia for her condition. Philadelphia and Boston have the...
Hello everyone, My daughter Mallory also has MoyaMoya. Although we live in Kentucky, she also had her surgery in Boston by Dr. Scott. After researching all...
Hi Amanda, Juliana is now 5, she had the surgery when she was 4. June was the 1 year anniversary of her operation her last MRI showed she was responsive to...
I agree with Laurie - I think it is dreadful that you have access to our emails. ... _________________________________________________________________ MSN...
Hello everyone. Cash had successful bilateral revascularization by Dr. Frim at the University of Chicago on Jan. 22nd. Everything went great. Cash needed...
I agree too, ive thought this for a while ??? Every time i recieve an email i think it will be something important, then its a dating thing ??? Jane x Whos the...
How wonderful!!! Great news..:) Sara mother to Keith direct bypass on left and right side March 15th and 23 of 2006 [Non-text portions of this message have...
Hi All, After complaining about yet another message from the singles group, my husband pointed out the nifty little button at the bottom of this page labeled...
My daughter, Samantha(8yrs old), had her bilateral revascularization surgery with Dr. Scott in July, 2005. She still is getting migraine like headaches a few...
Hi Laurie -- headaches are common with moya moya. In our case, they have tapered off quite a bit. Will had separate surgeries -- the right side in 5/03; left...
Hello guys, our son Cash just had surgery on Jan 22nd. on both sides of his brain. Pre-op we talked with our neurosurgeon about migraines post-op. He told us...
Hi Laurie This will probably stop you from recieving all mail from the site though ??? I think ??? Jane x Laurie Park <sparkln13@...> wrote: Hi All, ...
The amount of spam is getting terrible, the group is really important to many families of children with moyamoya. Cheryl we have an 9 month old son who had...
The amount of spam is getting terrible, the group is really important to many families of children with moyamoya. Cheryl we have an 9 month old son who had...
Hi everyone! Just a quick update. Keith will be on Miami Ink telling his story about moyamoya. He was casted and now waiting for filming for the show. He is...
Check out Moyamoya.com. DJ has posted a link to a study on genetics and Moyamoya being done. Here is a copy of the email he sent out with the link: Hello...
