We are a mature site of men & women, from all walks of life, that gather in friendship and fun! We invite you to join us in jokes, snags, chitchat, laughter...
This is just a friendly happy group/website for mature friends. We talk about what we want to. Enjoy sharing our lives, being friends, laughter, a close...
My name is Jeffrey Harpp. On Dec 21, 2006 our lives changed like many of you. Our 7 month old son Cash had a stroke. He was a perfect, healthy baby until...
Our daughter Juliana also has Moya Moya disease. Juliana is seen at Children's Hospital of Philadelphia for her condition. Philadelphia and Boston have the...
Hello everyone, My daughter Mallory also has MoyaMoya. Although we live in Kentucky, she also had her surgery in Boston by Dr. Scott. After researching all...
Hi Amanda, Juliana is now 5, she had the surgery when she was 4. June was the 1 year anniversary of her operation her last MRI showed she was responsive to...
I agree with Laurie - I think it is dreadful that you have access to our emails. ... _________________________________________________________________ MSN...
Hello everyone. Cash had successful bilateral revascularization by Dr. Frim at the University of Chicago on Jan. 22nd. Everything went great. Cash needed...
I agree too, ive thought this for a while ??? Every time i recieve an email i think it will be something important, then its a dating thing ??? Jane x Whos the...
How wonderful!!! Great news..:) Sara mother to Keith direct bypass on left and right side March 15th and 23 of 2006 [Non-text portions of this message have...
Hi All, After complaining about yet another message from the singles group, my husband pointed out the nifty little button at the bottom of this page labeled...
My daughter, Samantha(8yrs old), had her bilateral revascularization surgery with Dr. Scott in July, 2005. She still is getting migraine like headaches a few...
Hi Laurie -- headaches are common with moya moya. In our case, they have tapered off quite a bit. Will had separate surgeries -- the right side in 5/03; left...
Hello guys, our son Cash just had surgery on Jan 22nd. on both sides of his brain. Pre-op we talked with our neurosurgeon about migraines post-op. He told us...
Hi Laurie This will probably stop you from recieving all mail from the site though ??? I think ??? Jane x Laurie Park <sparkln13@...> wrote: Hi All, ...
The amount of spam is getting terrible, the group is really important to many families of children with moyamoya. Cheryl we have an 9 month old son who had...
The amount of spam is getting terrible, the group is really important to many families of children with moyamoya. Cheryl we have an 9 month old son who had...
Hi everyone! Just a quick update. Keith will be on Miami Ink telling his story about moyamoya. He was casted and now waiting for filming for the show. He is...
Check out Moyamoya.com. DJ has posted a link to a study on genetics and Moyamoya being done. Here is a copy of the email he sent out with the link: Hello...
Thanks Rena. I forwarded this to my sister. She is getting prepared for a trip to Standford and awaiting insurance approval and referrals and Dr Steinberg to...
Hello Everyone... Im sorry to see this group being attacked by spam. When my son was diagnosed with moyamoya in 2001 I desperately wanted to speak to others...
Oh how wonderful!!!! there is life out there and not just spammers!!! Hello everyone AGAIN :) I am Sara, mother to Keith who has a variant of moyamoya that...
To us also, please let us know if we can help. Nancy McStravick <nancymcstravick@...> wrote: That's fantastic news. It's so upsetting to see all these...
Hello everyone, I wrote in in 2006/07 because my 12 year old daughter had just been diagonised with moyamoya and this site was wonderful in supporting and...
I am so glad to hear of the progress, there are a bunch of us that have been in the same situation I will pray for you and your daughter. "R .OTHMAN"...
... Hi everyone i do hope the spam goes as i dont like to use this site anymore because of it. It really helped when Chloe was first diagnosed, its sad that...
Thank you, Jane, for taking action! My daughter, Samantha, had bilateral revascularization performed by Dr. Scott (yes, we too worship him and his staff!) in...
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