Hi everyone.. have not written since moving.. all is well here.. although devasting news... I found out today, after a three year search for my brother,, that...
My Little girl Bailey is 3 years old and we just found out that she has moyamoya. On nov 9th she fell off a chair at around 8am she acted just fine all of...
I am so sorry you and your family has gone through this, but glad that you found the group! How is your daughter doing? Did they do a direct or indirect bypass...
Hi Linda! Welcome! My name is Sara..Has your neice had the bypass surgeries yet? Where is she in her treatment? I have a son and a brother that has moyamoya....
Hi Sara, We Live near Gainesville Florida in Raiford, My Neice had her first surgery at 9 months old. She's had both sides of her head done a total of 3...
Hi Sara, We Live near Gainesville Florida in Raiford, My Neice had her first surgery at 9 months old. She's had both sides of her head done a total of 3...
My daughter Chloe has moya moya and is 4. She had stroke at 14 months and surgery by Dr. Scott in Boston at 15 months. No incidents since then and superior...
Thank you for asking Bailey is at home now after 5 weeks in the hospital they think she is going to get all of what she has lost back. She has alot of work in ...
I am the parent of an eleven year old girl who has been diagonised with Moyamoya after an ophthalmologist gave her a reading of 0.8 optic disc cupping in both...
Hi' My name is Linda and I have a great niece who has moyamoya. She had a stroke in 2001 and that was when we found out she had moyamoya. She has had 3 brain...
Well Im sorry to hear about your niece. I have a little girl thats 3 years old that has moyamoya. She had a stroke nov 9 2006 so Im still new to this. My ...
I have a 3 year old little girlwith moyamoya. she had a stroke on nov 9 2006. I dont see why they would tell you not to do the surgry. If they know that she...
Our daughter Mallory who is six was diagnosed with moyamoya in May of 2005. We were fortunate that she did not have any strokes but only severe migraine...
Hi all, Our son (now 5 years old), had a stroke in January 2006, and had cranial revascularization with Dr. Scott at Boston Children's in March 2006. Today he...
Cheryl, My son had a stroke Dec 2002 and surgery on both sides in June 2003. We live in CO, at an altitdue slightly higher than yours, and have lived here for...
Linda, Chwck out www.moyamoya.com it has a great support group and a ton of information.I hope it helps your sister and great niece. Rena lindalee19552002...
We are a mature site of men & women, from all walks of life, that gather in friendship and fun! We invite you to join us in jokes, snags, chitchat, laughter...
This is just a friendly happy group/website for mature friends. We talk about what we want to. Enjoy sharing our lives, being friends, laughter, a close...
My name is Jeffrey Harpp. On Dec 21, 2006 our lives changed like many of you. Our 7 month old son Cash had a stroke. He was a perfect, healthy baby until...
Our daughter Juliana also has Moya Moya disease. Juliana is seen at Children's Hospital of Philadelphia for her condition. Philadelphia and Boston have the...
Hello everyone, My daughter Mallory also has MoyaMoya. Although we live in Kentucky, she also had her surgery in Boston by Dr. Scott. After researching all...
Hi Amanda, Juliana is now 5, she had the surgery when she was 4. June was the 1 year anniversary of her operation her last MRI showed she was responsive to...
I agree with Laurie - I think it is dreadful that you have access to our emails. ... _________________________________________________________________ MSN...
Hello everyone. Cash had successful bilateral revascularization by Dr. Frim at the University of Chicago on Jan. 22nd. Everything went great. Cash needed...
I agree too, ive thought this for a while ??? Every time i recieve an email i think it will be something important, then its a dating thing ??? Jane x Whos the...
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