My 4 yr old daughter cries alot over the least little thing.Some days it seems like all she does is cry.I'm sure alot of it has to do with her being sick since...
I know migrains go with MM. Has your daughter already had the surgery? Sorry I can't remember. jnokes5 <jnokes5@...> wrote: My 4 yr old daughter cries...
I can't give you an answer to your question but I have experienced something similiar with my daughter. Samantha, was diagnosed with MM last summer and had...
Laurie, Just wanted to send you a note to see how Samantha was doing. Mallory is doing great, although she does still experience the migranes. They are not as...
Hey everyone. I saw this on one of my other lists I am subscribed to and thought I'd forward it to all of you because I got my CD in the other day and think...
Hey everyone. I saw this on one of my other lists I am subscribed to and thought I'd forward it to all of you because I got my CD in the other day and think...
My 4 year old daughter has mm.Dr.Steinberg has looked at her scans and wants to see her in California,however,we can't get her insurance to approve this since...
First off... go to another neurologist! Explain to him that you have had Dr Steinberg opinion and that he had read her angiogram and tell him that you don't...
Find a neurologist that will listen to you. I had doctors here wanting to do my sons surgery, but they were very vauge an their answers and even out right...
You should contact a social worker at the hospital that's what they are there for. We have a great one at Children's Hospital of Philadelphia My 4 year old...
That TICKS me off. FInd another doctor! Any doctor that would say that is not worth much!!! Look a CTF.org for a good NF clinic, click on find a doctor. It...
Also.. now that I have calmed down ( your story with your daughter's daughter infuriated me) I went and looked at the moyamoya.com site where I got most of my...
I just read a post on the moyamoya.com website about a person from Tennessee who was diagnosed at the same hospital that my daughter is at now.The doctor that...
Print out the post and walk into his office and ask him WHY if he did this for another patient.. then what is the problem... if that doesn't work.. go to the...
Paige's case was denied today by her insurance.We are planning on appealing this decision but it is beginning to look as if we won't have any luck.We haven't...
You need to have a social worker from the hospital help. Your daughter is eligible for social security benefits also because of her condition. The federal...
My beloved niece was diagnosed with Moyamoya yesterday she is currently at Sutter Memorial Hospital and we are just waiting to see where we go from here. This...
Check out www.moyamoya.com and feel free to ask any questions you have. The surgery is the only way to correct Moyamoya, but it is a problem your niece will...
with the surgery then will it stop the strokes? Will this problem come back? ... have. The surgery is the only way to correct Moyamoya, but it is a problem...
The strokes will stop, very few people have a reacurrance, but it is possible. Please check out the site moyamoya.com it really will give you a lot of answers...
Stacy, Our Daughter Mallory who was five years old at the time was diagnosed with Moyamoya in May of 2005. We didn't know anything about this disease so we...
I have been meaning to bring this topic up - even though I rarely check this site these days. Our son had a stroke this past January, and was diagnosed with ...
OOPs! Sorry about that gang! I clicked on the wrong group and posted this here! I meant to post it to my China Adoption group! Ah well, at least you all now...
does your daughter have any other medical issues besides moya moya? Mandy ... _________________________________________________________________ Don’t just...
It's been awhile since I have posted a message but it has been crazy here.Paige had a check up at St.Jude's this past week and while there,we met with a...
Dear Jennifer, I am so glad that things are moving forward and that you've found a surgeon you're comfortable with. Please keep us posted, o.k.? You and...
Has anyone ever purchased the abstract that the National Organization of Rare Disorders has that describes moya moya? http://www.rarediseases.org Just...
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