Get a second opinion. If she already had one stroke she is at risk of more. Check out www.moyamoya.com to find a doctor in your area that knows about Moyamoya....
705
jnokes5
Apr 10, 2006 4:46 am
My 4 year old daughter was recently diagnosed with Moya Moya after suffering a TIA.Her surgeon told us that she may not have to have surgery & has done a CT...
704
ilovemybulldog@...
englishbulld...
Mar 25, 2006 10:09 pm
Cheryl, That is wonderful news that your little guy is doing well! WE are still in California at Stanford right now... and finally got around to checking...
703
Cheryl in NM
luvfunparenting
Mar 15, 2006 2:31 pm
Hello all! Whew! We made it home! We are all travel weary, but doing fine. YuYu is doing well, and as long as we can keep him hydrated, AND prevent any head...
702
Cheryl in NM
luvfunparenting
Mar 9, 2006 2:03 pm
Hello all. I finally came home to get some sleep and a shower, and so am taking a quick moment to post and let you know that YuYu's surgery went very well!!!! ...
701
ilovemybulldog@...
englishbulld...
Mar 5, 2006 2:40 am
Hi Cheryl! Sending many prayers and happy thoughts your way. Sorry your little guy was upset after the angio.... I can't help you on how it will...
700
Ginny McCarthy
xiaoming54
Mar 5, 2006 1:53 am
Good Luck Cheryl -- we'll be thinking and praying for YuYu on Monday. Please let us know if you need anything -- we're only 20 minutes away. We know the route...
699
Cheryl in NM
luvfunparenting
Mar 4, 2006 11:47 pm
If you have any questions about Boston or what to expect ... Heather, YES, we would SO appreciate hearing from you what you experienced after the surgery - did...
698
Cheryl in NM
luvfunparenting
Mar 4, 2006 11:43 pm
Hello all. I just wanted to thank all of you that have posted here, and those that have written to me privately. What a huge support you all are. I would be...
697
chbrigger
Feb 28, 2006 1:08 pm
Dear Cheryl, Two of my children have had this surgery done by Dr. Scott in Boston and are doing very well. Katie had hers done 6 years ago and is now 9. Erik...
696
Laurie Park
sparkln13
Feb 27, 2006 3:24 pm
Hi Cheryl, My daughter, Samantha, is 7 yrs old and had her surgery with Dr Scott this past July. I can't say enough about how wonderful Dr. Scott is and the...
695
ilovemybulldog@...
englishbulld...
Feb 26, 2006 3:26 pm
Hi.. I am so happy for you that you have your surgery date! We are heading out to California to see Dr Steinberg on the day of your son's surgery. My son, who...
694
Cheryl in NM
luvfunparenting
Feb 26, 2006 6:43 am
Hello, I am new here, but wanted to share this with you all. I just wanted to let you know that our son,YuYu's surgery (cranial revascularization by pial...
693
pattil647
Feb 22, 2006 3:56 am
Sara, thank you very much for responding. It's really nice to know that you're not alone. I am so sorry to hear about your son. I'll pray for him. I'm sure...
692
ilovemybulldog@...
englishbulld...
Feb 21, 2006 2:47 pm
Hi Jill I am sorry, I have totally forgotten about your email, even though I told my husband about it..I thought that I had written to you back. Everything...
691
Jillayne MacInnes
sca4gold2002
Feb 21, 2006 3:39 am
Sara, Gosh, what you said about your son sounded hauntingly familiar. When my daughter was diagnosed (at 17) she didn't want to know ANYTHING about what was...
690
ilovemybulldog@...
englishbulld...
Feb 20, 2006 11:49 pm
Patti My son is 21, and getting ready for his surgery and he has some weird kind of denial, like nothing is wrong and refuses to even discuss his upcoming ...
689
pattil647
Feb 20, 2006 8:20 pm
I'm wondering if anyone on this board has experienced any of the symptoms that my son is experiencing. My son, Michael, has moyamoya. He is 11-years old. He...
688
pattil647
Feb 20, 2006 7:58 pm
I'm new to this message board so I'm not sure if I am doing this right -- but I would also like a copy of the IEP. Thanks. ... arent in school yet, but I do...
687
Ginny McCarthy
xiaoming54
Feb 18, 2006 1:08 pm
For those of you who don't live near the Boston area and would like to find a way to contribute something back to Children's Hospital -- Wills Walkers is...
686
smilingfacescj
Feb 18, 2006 6:32 am
... parentingchildrenwithmoyamoya@yahoogroups.com, "trekkierick2002" ... on ... send...
685
mardanz@...
marlew47
Jan 16, 2006 3:37 am
My daughter Chloe had a stroke at 13 months after having a really bad flu with fever. She was diagnosed immediately upon having the stroke. Prior to that,...
684
pmteet@...
pmteet
Jan 13, 2006 4:20 am
I think you guys did a great job. My daughter Cheyenne 9 was Dx at 2 1/2. We were lucky the doctor figured it out right away. She had already had a TIA were...
683
Jenny
kotipup
Jan 13, 2006 4:06 am
Hi...I've belonged to this group for awhile, but have been active on moyamoya.com. Anyway, I just wanted to say that the show was about my daughter, and that...
682
Laurie Park
sparkln13
Jan 12, 2006 12:14 pm
I didn't see it as we're living in Seoul, Korea but my sister-in-law in New York City recorded it for us so it was on. Laurie vamcc@... wrote: Did anybody...
681
vamcc@...
xiaoming54
Jan 11, 2006 4:29 pm
Did anybody watch the show? I was hoping to catch it next week-end but could not find it on the network's schedule. Just wanted to make sure it was on. ...
680
Danette Rogers
dmvcpa_drogers
Jan 9, 2006 1:33 am
Richard, We live in Middle Georgia and we use Dr. Chris Troup for ped neurosurgery. He is in Macon, GA and is great doctor. He did a fellowship under Dr. Scott...
679
michaele107
Jan 7, 2006 11:25 pm
Richard, I am located in Gadsden, AL and my daughter was diagnosed by Dr. Gomez in Birmingham, AL this past summer. Dr. Gomez was able to make the correct...
678
chbrigger
Jan 7, 2006 10:59 pm
You may want to try moyamoya.com I think there are some members from Florida there. Good luck. Heather...
677
rtnolin77
Jan 7, 2006 9:02 pm
does anyone know of any doctors not necessary pediatric that have knowledge of moyamoya in the alabama and northwest florida area. thank you richard...
