Hello all. I finally came home to get some sleep and a shower, and so am taking a quick moment to post and let you know that YuYu's surgery went very well!!!! ...
Hello all! Whew! We made it home! We are all travel weary, but doing fine. YuYu is doing well, and as long as we can keep him hydrated, AND prevent any head...
Cheryl, That is wonderful news that your little guy is doing well! WE are still in California at Stanford right now... and finally got around to checking...
My 4 year old daughter was recently diagnosed with Moya Moya after suffering a TIA.Her surgeon told us that she may not have to have surgery & has done a CT...
Get a second opinion. If she already had one stroke she is at risk of more. Check out www.moyamoya.com to find a doctor in your area that knows about Moyamoya....
I would definitely get second opinion. I know Dr. Scott in Boston will look at her films and give you his advice. He is a wonderful caring Doctor and an...
In my first consult with a neurosurgeon after my 18-month-old had a stroke, he said just to take her home and hope for the best. I sent the films to Dr. Scott...
In case you don't have it, here is Dr. Scott's contact info. He si wonderful. Best of luck. R. Michael Scott Director - Pediatric Neurosurgery Children's...
Thank you.I never understood how she could not be at risk for another stroke when the disease is progressive.The neurosurgeon is supposed to let me know...
Hello.My daughter's ct perfusion test results came back today.The surgeon says that the blood flow is delayed but there is good blood supply & volume in the...
Hello, Both my son and daughter have MoyaMoya and both have had surgery. When my neurologist told us about the disease she suggested that we see a specialist...
Get a second opinion, go to www.moyamoya.com to find a doctor in your area that has more experience. My son showed no signs of his stroke until he had a full...
You're not being paranoid. We all need to be better advocates for our kids. From what I learned there is no reason to wait. In fact, the success of the ...
Call Dr. Scott's office at once. The next stroke could be fatal . My husband is a physician and is extermely upset by the advice you have been given. ... From:...
The advice you have been given is common amongst the medical profession. However, those that are more educated about this disease strongly disagree. Please,...
I want to thank everyone for their advice & concern for my daughter & family.Finally,someone who agrees with us.Why wait?!?!I am so tired of some of my...
I have finally sent my daughter's scans to Dr.Steinberg for a second opinion.Now,I just have to wait for him to let me know what he thinks we should do as far...
Our son YuYu had the cranial revascularization at Boston Children's Hospital 6 weeks ago, and thanks to Dr. Scott he is doing great!! We certainly have...
Hey Cheryl! So great to hear from you! Wonderful news that YuYu is doing great! My son Keith and I just got back on Thursday night from Stanford from his ...
We finally heard from Dr.Steinberg about our daughter's scans.He said that she has Moya Moya on both sides(which no one had ever told us) & that the left side...
Don't want to start a debate here or discount the opinions of others, but why would you have contacted Steinberg instead of Dr. Scott, who specializes in...
I took my son to Dr. Steinberg because it was closer, and By the info I got Dr, Scott learned from Dr. Steinberg or atleast studied under him. I feel they are...
I was going to get Dr.Scott to look at my daughter's scans but he was going to charge me $250-which there was no way I could come up with at the time.I was not...
I was going to get Dr.Scott to look at my daughter's scans but he was going to charge me $250-which there was no way I could come up with at the time.I was not...
My 4 yr old daughter cries alot over the least little thing.Some days it seems like all she does is cry.I'm sure alot of it has to do with her being sick since...
I know migrains go with MM. Has your daughter already had the surgery? Sorry I can't remember. jnokes5 <jnokes5@...> wrote: My 4 yr old daughter cries...
I can't give you an answer to your question but I have experienced something similiar with my daughter. Samantha, was diagnosed with MM last summer and had...
Laurie, Just wanted to send you a note to see how Samantha was doing. Mallory is doing great, although she does still experience the migranes. They are not as...
Hey everyone. I saw this on one of my other lists I am subscribed to and thought I'd forward it to all of you because I got my CD in the other day and think...
Hey everyone. I saw this on one of my other lists I am subscribed to and thought I'd forward it to all of you because I got my CD in the other day and think...
