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parentingchildrenwithmoyamoya · Parenting Children with Moyamoya - support for parents of children with Moyamoya
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Messages 69 - 98 of 970   Oldest  |  < Older  |  Newer >  |  Newest
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69
My son Charlie is having surgery on July 15 with Dr. Scott. Any advice about things to know or bring to the hospitol? thanks, Sheila...
mikeiz12
Offline
Jun 9, 2002
3:08 pm
70
... Scott. The first few days after she really had no interest in anything. I had brought lots of presents and she'd open them but didn't have much energy to...
dareinhart@...
dareinhart
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Jun 9, 2002
9:31 pm
71
Thanks for the warning about the swelling. It will help me to prepare. How long should I expect before I will know if the surgery was successful...at the six...
mikeiz12
Offline
Jun 19, 2002
12:47 am
72
... Sheila, Maddie had no TIAs for two months after the surgery. They came back with a vengence the third month post-op, but have diminished over time. ...
dareinhart@...
dareinhart
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Jun 19, 2002
3:00 am
73
... surgery ... a ... TIA's ... group. ... Hi: It's been a while since I've been able to chat. My name is Kathy and my son Brian had surgery on both sides for...
kvm5817
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Jun 20, 2002
7:39 pm
74
Does anyone's children have seisures or learning disabilities after surgery? I noticed on a eeg report from my daughter that the left side was considerbly...
harmonmandy
Offline
Jul 3, 2002
5:56 am
75
... disabilities due to the strokes she had prior to surgery. She has not had an EEG since surgery and is off AEDs. Prior to surgery her EEG was markedly ...
dareinhart@...
dareinhart
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Jul 15, 2002
3:02 pm
76
... disabilities due to the strokes she had prior to surgery. She has not had an EEG since surgery and is off AEDs. Prior to surgery her EEG was markedly ...
dareinhart@...
dareinhart
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Jul 15, 2002
3:07 pm
77
... Sheila, just wanted to let you know that I'm thinking of you and Charlie and praying for an execellent outcome on his surgery. My daughter is three years...
dareinhart@...
dareinhart
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Jul 15, 2002
4:43 pm
78
Thanks to everyone for your thoughts and prayers. Charlie made it through the surgery without any complications. Dr. Scott was very nice. Charlie came home...
mikeiz12
Offline
Jul 19, 2002
8:10 pm
79
my daughter is going to have surgery sept 3rd. want to know what i have instore for me i am really scared .i dont know what i need to bring ..Dr. Scott is...
littleone6567
Offline
Jul 29, 2002
7:48 pm
80
I am new to this group, but very glad to have found it. I am the mother of a 14 year old boy with moyamoya and he underwent surgery in February, 2001 on both...
djkrn2000
Offline
Aug 7, 2002
3:09 am
81
... Doreen.. My name is Debbie and my sone Geoff underwent surgery in February on both sides.(actually Feb. 2001) I feel for you and know what you are going...
djkrn2000
Offline
Aug 7, 2002
3:17 am
82
... My sone had seizures prior to his surgeries, and he also does have a slight learning difficulty from the decreased blood flow, but overall he does fine....
djkrn2000
Offline
Aug 7, 2002
3:33 am
83
... in Jan. and has had 1 surgery. I have known something was wrong for 2 years-but had diagnoses of ODD (oppositional defiant disorder), mood disorder and...
djkrn2000
Offline
Aug 7, 2002
3:38 am
84
Hello Everyone... I am glad to see the group growing...It has been almost a year since I began this group when my son was first diagnosed with Moyamoya and I...
leilei543
Offline
Aug 12, 2002
7:53 pm
85
Debbie- Yes I would love to hear what your neuro-psychologist said. Since I wrote last, Alexa (9) had her second surgery on May 14 and 2 days later had a major...
Rhonda Gasiorowski
lovemom355044
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Aug 13, 2002
12:51 am
86
... Since I wrote last, Alexa (9) had her second surgery on May 14 and 2 days later had a major stroke that left her with aphasia and rt. hemiparesis. We spent...
djkrn2000
Offline
Aug 13, 2002
4:24 am
87
... Hi Doreen, My name is Sheila and my son Charlie (18 monthes) had surgery on July 15,2002. I asked lots of questions on this website prior to Charlie's...
mikeiz12
Offline
Aug 13, 2002
10:12 pm
88
Hello to all- I wanted to know if anyone has any input on getting through some of this financial stuff. Yesterday was bill day. It has been almost 18 months...
djkrn2000
Offline
Aug 14, 2002
7:01 pm
89
We were lucky our insurance covered the surgery however the extras gave us a fit. We found the EASTER SEALS to be the most helpful. They said they would help...
harmonmandy
Offline
Aug 14, 2002
9:37 pm
90
Hello guys, Has anyone come to any of the chats. I was wondering because if so I would sign on at that time and catch you all. I would love to chat with you....
leilei543
Offline
Oct 14, 2002
6:03 pm
91
... Could you please refresh my memory as to time and how to join in the chat. Thanks, Denyse __________________________________________________ Do you Yahoo!?...
dareinhart@...
dareinhart
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Oct 14, 2002
9:42 pm
92
I didn't realize chats were on Fridays either....please let me know when and I would love to try and get in on one. Hope everyone is doing well. Katie is due...
chbrigger
Offline
Oct 14, 2002
9:51 pm
93
Just a quick note...things are status quo here....for once since the surgeries two years ago. I think the medical bills will be under control finally within...
djkrn2000
Offline
Oct 16, 2002
4:52 pm
94
... My daughter has made steady improvement each school year. I'm hoping that by high school she'll have caught up. Her main problem is with reading. Her ...
dareinhart@...
dareinhart
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Oct 16, 2002
9:54 pm
95
Deb - I am not sure if there is a statistic on how often Moyamoya is found in siblings. Unfortunately in our family we have two children with Moyamoya and one...
chbrigger
Offline
Oct 17, 2002
6:16 pm
96
I was wondering how each of you found out your child had moya moya- just interested in the stories. Also have any of you had a child later have a fall that...
harmonmandy
Offline
Oct 17, 2002
7:26 pm
97
Hi Chey had her first stroke that we know of at age 2 1/2 her second a months later. We discovered it after a MRA on January 20th 1999. She went in for the...
pmteet@...
pmteet
Online Now Send Email
Oct 17, 2002
9:03 pm
98
Long story....Katie our youngest suffered a stroke at 2 1/2 years, at that time she was diagnosed by a Pediatric Neurologist following an MRI/MRI. About 4...
chbrigger
Offline
Oct 17, 2002
9:24 pm
Messages 69 - 98 of 970   Oldest  |  < Older  |  Newer >  |  Newest
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