Thanks for your support, Juliana will be 4 on July 28, so far she has been doing fine, and has been difficult to keep at a slow pace. I was curios where you...
Hi to all: This is my first time writing on this site, however I checked it out back in 1999 but didn't think anything of it because I thought that after my...
Kevin, I've been reading your posts. I'm sorry about everything going on, but things seem to be looking on the up and up. This is my first time visiting the...
Dear Tom, Juliana has a condition called NF 1(neurofibromatosis) which gives her the need to have brain scans every 6 months. The problem that she has is that...
Kevin, Our daughter Mallory will be seeing Dr. Scott on June 16 for an evaulation. Would you mind telling me if Juliana had both sides operated on at the...
Juliana had her surgery yesterday with Dr. Scott. He was very happy with surgery and said it went even better then he thought. Juliana is still in the ICU...
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Its wonderful to hear of Children getting better, this is a great support group. My daughter was diagnosed with Moya Moya when she was 1 and 1/2 and most...
It has been 6 months since my19 yr old son underwent surgery at Mayo Clinic for moya moya and today he is recovering remarkably; still has outpatient physical...
Kevin, My daughter had surgery with Dr Scott in Boston in 2000 and 2001. We were living in SC at the time. Currently we are in PA. This past January my ...
... Thank you for your response. Dr. Scott has already answered a few questions for us. ... emailed him. ... MORE ... and he ... a very ... concerned....
===, Dr. Scott is very approachable, you can e-mail him, or call, and he will call you back. It is definitely worth talking with him, and he'll speak to your ...
In reply to your message- Since you are in Ohio, if you want another option, there is a very very good Doctor in Indiannapolis that trained under Dr. Scott...
Dear Tom, As you may have read in previous posts we have two children with moyamoya and their neurosurgeon was Dr. Scott. He is an wonderful man and Dr. Our...
Dear Kevin and Mary, Sorry it has talked me so long to get back to you. I was out of town for a few days. I am so glad you are making the trip to Boston....
... Tom, I'm so sorry that you and your daughter have to go through this. My daughter also has moyamoya, and her surgeon is Dr. Scott. She was diagnosed...
Tom, I don't know Dr. Scott, but felt you might also check out www.moyamoya.com. They have a list of other doctors that have experience with MM, incase you...
My name is Tom Busam and my wife and I just had our five year old daughter diagnosed with moyamoya on May 27,2005. We live in Northern Kentucky and she was...
Will & I are walking again for the annual Boston Children's Hospital Fundraiser. Last year, our team raised over $5500 and we hope to exceed that amount in...
Hope all goes well Jane and Family. kevin_c86 <kevin_c86@...> wrote: Juliana's surgery date is set. We will be going to Boston on June 6 and her surgery...
Juliana's surgery date is set. We will be going to Boston on June 6 and her surgery will be on the 7th. Thank you all for your help and support. Kevin, Mary...
Dear Heather, It surely was good to hear from another family with similar health issues. We are all unfortunate to manage this challenging grief and only have...
Dear Heather, It surely was good to hear from another family with similar health issues. We are all unfortunate to manage this challenging grief and only have...
Dear Kevin, We are sorry that you had to find our website, but are glad you did. I have two children with moyamoya and both had surgery with Dr. Scott. He is...
Kevin, It sounds like you are on the right track. You might also want to check out www.moyamoya.com it is a great support system and a great source of...
Hi Kevin - My son is a patient of Dr. Scott's. He has moya moya and was operated on by Dr. Scott the first time just about 2 years ago. I can't say enough...
This is my first post. Our daughter Juliana has been monitored for Neurofibromatosis since she was 8 weeks old. Last year she was officially diagnosed with...
Ann, Check out www.moyamoya.com it has a lot of info and a lot of people with experience with MM. Surgery is the only thing I know of to help with MM. Also it...
We are considering a Moyamoya baby. I know not all cases are the same, we have 2 other SN kids and I know each child and their disease is different. But what...
