Good morning. I just wanted to let you all know Austin has his next arteriogram tomorrow, the 28th at 2:00pm. This arteriogram will tell if the surgery in...
Hi, I am so happy I finally found a site to talk to people about moya moya. My daughter was diagnosed in June 01, she has never had a stroke or TIA as far as...
hi i'm a new member and my daughter who is now 9 was diagnosed with moya moya 2yrs ago. i didn' know groups like this existed and i'm trying to find my way...
Kathleen had her strokes and surgeries 2 yrs ago an still tires very easily.She started Kind just 5 months post surgery and she couldn't last the whole day.I...
My name is Michell. My son, Trey is 14 months old. He has had two strokes. The first when he was 7 1/2 months old and the second a week before he turned 10...
Ok, I have a good question for a Friday. My son is TIRED all the time. He was Dxed with MM in March'04, and had surgery on one side in April, and will have the...
I absolutely understand there are sooooo many questions.I would be happy to help.My daughter was diagnosed 2 yrs ago she also has down syndrome.She had surgery...
Our 3 1/2 yr old son was just diagnosed with Moyamoya today. One of his docs suspected it last Friday so we have done much research and tried to educate...
Does anyone have a child on Folic Acid Supplements? My son has been given a RX for the 1mg supplement. He has had surgery on one side, and we will do the other...
My 10 year old son does not have a definate diagnosis of moyamoya but they are trying to decide if he has moyamoya or inernal carotid artery stenosis.He has...
i just wanted to say thank you, for the replys here as well as to my email. you all amaze me, its been very scary for us, and im worried about losing my job...
Hello My names Jane Ive wrote before. My daughter Chloe has Moya Moya she was diagnosed when she was 1. She has had surgery on both sides when she was 1 1/2...
Hi! My name is Annette. I do not post much but I do read alot. My daughter Allyssa who just turned 4 had a stroke last March and was diganoised with Moya Moya....
I have a question.... How long did it take for your children's skull to close back? (We had surgery on April 5th.) I know it will take a while to fully close,...
my 9 yr old daughter was just diagnosed with moyamoya yesterday. they say she needs surgery within the next month, this has been very scary for us and we are...
How is everything going I just ran across this e-mail as I was trying to catch up on some old mail.I hope things are going well for you and your daughter.I...
We found out about the renal problems after the arteriogram to prepare for
her brain surgery. Her Blood pressure (Bp) was VERY high. After several
tests they...
Hi My daughter now almost 8 was diagnosed in 99 she had surgery that same year.
Unfortunally it has also affected her renal arteries. She lost one of her...
HI everyone Our local paper did a story on Chloe in November last year,just thought you might like to see. Hope everyone is well Jane xxxxxxxxxxxxx Note:...
we go monday to stanford for a consult with Dr. Steinberg. Its a bit of a relief knowing that we will get to see him soon and see what he has to say. i'll...
Austin update: We are HOME!!.... and we are so glad. Britleigh,8, was very glad to have us home, too. Austin's swelling has done very well, and he can now open...
I am curious.... How many of you have had the Japanese procedure done instead of the pial? Austin had one of the Japanese procedures done where a strip of...
I didn't - I had a c-section Nancy Mc ... _________________________________________________________________ Sign-up for a FREE BT Broadband connection today! ...
Hi everyone hope your all well, Just a quicky, I was watching tv this morning it was about ventouse birth deliveries, just wondering if any one else gave birth...
Glad to hear that things are going well. The swelling and 'funny' feeling on Austin's eye should abate in a day or so. I think Will's swelling lasted about...
