Flight angel will help with flights for surgery also small airports have pilots that will fly patients free for medical reasons. Mandy Fly angel does require...
I wish you the best of luck and will keep your family in our prayers.My daughter had surgery in Boston one year ago,she was 5 at the time. Previous to that...
Thanks for your reply. I'm glad to say my daughter is doing fine. We too, are at about a two year mark from the surgery. Hers was done at Children's...
Thats great your daughter is doing well.Has she had any strokes since her surgery? Or any headaches? My daughter is 9 months post surgery and has had no new...
I read mostly about younger kids being diagnosed with MM. My daughter was diagnosed at age 12 two years ago, and had two surgeries. If anyone needs support...
Hello all, I'm the Mom of Alexa who had 2 surgeries and 2 strokes in the last year. She has aphasia and rt. hemi but is coming along slowly. Her biggest...
I have enjoyed reading all the posts so far. I though I should introduce myself.I have a daughter 5 yrs old. She was born iwth Down Syndrome, and last Jan. was...
Hello to all. My daughter, Alexa had a small stroke last Jan. which was how we found out about her Moya Moya. Her first surgery was in Jan., she did well until...
This was sent on another group I am in...by a really well known DR. at NIH who is studying childhood stroke and causes. Thought I would pass is on. CNN news...
Hi everyone I am sorry I have not written in awhile but my messages kept "bouncing"; back to me. It took some time to fix. I am glad to hear all the news. I...
Hello... Everything has been pretty quiet with my son. He had his one year post op anteriogram which Dr. Scott said had shown that the surgery was a success....
She can't speak, but words are coming back, very slowly. Of course, this causes great frustration. Rhonda [Non-text portions of this message have been...
Geoff had a TIA/stroke last week that affected only his right hand, but it has been two years since his surgeries and a year since his last TIA. He still has...
Just a quick note...things are status quo here....for once since the surgeries two years ago. I think the medical bills will be under control finally within...
Just wondering what everyone was told about anesthesia? If anything special should be done will they have tests/surgery. Chey hasn't Had to have it done for...
She has ... are you ready.....Neurofibromatosis. NF1 for short. As do I and my son. My oldest does not. What other disorder does your child have? Michelle ...
Hi Chey had her first stroke that we know of at age 2 1/2 her second a months later. We discovered it after a MRA on January 20th 1999. She went in for the...
Hello guys, Has anyone come to any of the chats. I was wondering because if so I would sign on at that time and catch you all. I would love to chat with you....
Hello to all- I wanted to know if anyone has any input on getting through some of this financial stuff. Yesterday was bill day. It has been almost 18 months...
my daughter is going to have surgery sept 3rd. want to know what i have instore for me i am really scared .i dont know what i need to bring ..Dr. Scott is...
Debbie- Yes I would love to hear what your neuro-psychologist said. Since I wrote last, Alexa (9) had her second surgery on May 14 and 2 days later had a major...
Hello Everyone... I am glad to see the group growing...It has been almost a year since I began this group when my son was first diagnosed with Moyamoya and I...
Hi, My name is Rhonda. I have an 8yr old daughter who was diagnosed in Jan. and has had 1 surgery. I have known something was wrong for 2 years-but had...
Does anyone's children have seisures or learning disabilities after surgery? I noticed on a eeg report from my daughter that the left side was considerbly...
I am new to this group, but very glad to have found it. I am the mother of a 14 year old boy with moyamoya and he underwent surgery in February, 2001 on both...
Thanks for the warning about the swelling. It will help me to prepare. How long should I expect before I will know if the surgery was successful...at the six...
Hi everyone. Thank you all for being so forthcoming. I was so excited to find this site. I read the last 65 messages. I am so thirsty for information. My son...
I just noticed on the calender that there is a scheduled chat tomorrow night. I am so bumbed I am going to miss it. I would cancel but everyone would think...
Thanks for writing Heather! I have a couple questions. How exactly were you monitoring Eric to find out the other side had progressed? What effects on Katie...
