I read mostly about younger kids being diagnosed with MM. My daughter was diagnosed at age 12 two years ago, and had two surgeries. If anyone needs support...
Thats great your daughter is doing well.Has she had any strokes since her surgery? Or any headaches? My daughter is 9 months post surgery and has had no new...
... Maggie- My son was also diagnosed at the age of twelve two years ago. His anniversary of his surgeries are this week coming up. How has your daughter...
Mary, not sure which daughter you're referring to, but I'll put in my two cents. Maddie has not had any more strokes since surgery. She does still have TIAs,...
Thanks for your reply. I'm glad to say my daughter is doing fine. We too, are at about a two year mark from the surgery. Hers was done at Children's...
Hi, I found this site through DJ's site moyamoya.com. My 11-year-old son, Tyler, was recently thought to have Moya Moya. He was born with mild Cerebral Palsy,...
Flight angel will help with flights for surgery also small airports have pilots that will fly patients free for medical reasons. Mandy Fly angel does require...
--Glad to hear that Dr. Steinberg is going to look at your son's test results. I'm sure if you sent an e-mail to Dr. Scott at Boston Children's, he would look...
I wish you the best of luck and will keep your family in our prayers.My daughter had surgery in Boston one year ago,she was 5 at the time. Previous to that...
Rhonda, He's in Stanford CA. There is a link to his site and email on www.moyamoya.com if you need anymore info, it's a great site and helped me alot. Rena ...
... www.moyamoya.com if you need anymore info, it's a great site and helped me alot. ... from? Rhonda ... Service. ... desktop! ... I hope all goes well...
... listen ... side. ... his ... Anyways, ... be ... Rena- I have to let you know about the Dr who treated our son,Geoff, he was diagnosed when he was 12 with...
Rena, If you haven't already done so- check out http://www.moyamoya.com/. it will explain allot of your questions. If you live in CO it would be allot easier...
I finally found a doctor that , although he had never seen a case of MM, did enough research to explain the pros and cons of both the indirect and the direct...
Hi Rena: I'm glad you got an explanation. Steinberg sends all kinds of info on both procedures after he reviews tests. My son had the direct (STA-MCA)...
Hi everyone! Our 3 year old daughter Allyssa was diagnoised a month ago with Moyamoya after she suffered a stroke which left her weak on her right side of her...
Hello Annette. I am Melissa and I am from Arkansas. I have a daughter who has Moya Moya. She was diagnoised at 10 months old after having 4 strokes. She...
Hi My daughter 6 had several strokes at age 2 1/2. The neurologist knew the moment he saw the MRA that she had Moya MOya. We used a local surgeon. He is a...
... normal. ... trying ... them ... you ... to ... Alyssa's mom- I understand what you are going through. This is a very difficult time for you. We did raise...
... was six when she was diagnosed and it's amazing how quickly you are thrust into a world where you need to make life and death decisions. My daughter's...
So sorry to hear about your daughter. My daughter was diagnosed 2 years ago at age 12. She had both surgeries at our local Children's Hospital in Cincinnati,...
HI I read what you said about you and your daughter having a good time. LOL That is the case with us too. My daughter has had a total of 4 surgeries. She...
Our peditrician also wrote a note as to why we needed to go to Dr Scott. Since we live so far away we do not travel yearly to Dr Scott. We send him copies of...
My five-year-old son was diagnosed with MM last week by Dr. Scott in Boston. We are now anxiously waiting a date for surgery. He has only had one TIA in...
Ginny, My three-year old daughter is having surgery in three weeks in Boston. We got her a book called 'Franklin Goes To The Hospital'. It's a fantastic book...
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