Thanks, I am going to write to Dr. Scott today. We did not have surgery there but he was VERY helpful. To answer your question YES Chey is on meds. However it...
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dareinhart@...
dareinhart
Oct 18, 2002 3:09 pm
... My daughter started having TIAs. We didn't know what they were at the time. Her pediatrician ordered an EEG and it came back abnormal, but they didn't...
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dareinhart@...
dareinhart
Oct 18, 2002 3:06 pm
... HREF="http://www.stores.ebay.com/justcheyamandas">Just ... One of my biggest fears is that Maddie will have involvement in other arteries. Is she on blood...
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pmteet@...
pmteet
Oct 18, 2002 2:29 pm
Just wondering what everyone was told about anesthesia? If anything special should be done will they have tests/surgery. Chey hasn't Had to have it done for...
99
harmonmandy
Oct 17, 2002 11:55 pm
... mentioned had her first surgery 11/99 and her second 9/00 had a fall 1/02. In the fall she suffered a subdural hemorage. She was in the hospital longer...
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chbrigger
Oct 17, 2002 9:24 pm
Long story....Katie our youngest suffered a stroke at 2 1/2 years, at that time she was diagnosed by a Pediatric Neurologist following an MRI/MRI. About 4...
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pmteet@...
pmteet
Oct 17, 2002 9:03 pm
Hi Chey had her first stroke that we know of at age 2 1/2 her second a months later. We discovered it after a MRA on January 20th 1999. She went in for the...
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harmonmandy
Oct 17, 2002 7:26 pm
I was wondering how each of you found out your child had moya moya- just interested in the stories. Also have any of you had a child later have a fall that...
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chbrigger
Oct 17, 2002 6:16 pm
Deb - I am not sure if there is a statistic on how often Moyamoya is found in siblings. Unfortunately in our family we have two children with Moyamoya and one...
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dareinhart@...
dareinhart
Oct 16, 2002 9:54 pm
... My daughter has made steady improvement each school year. I'm hoping that by high school she'll have caught up. Her main problem is with reading. Her ...
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djkrn2000
Oct 16, 2002 4:52 pm
Just a quick note...things are status quo here....for once since the surgeries two years ago. I think the medical bills will be under control finally within...
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chbrigger
Oct 14, 2002 9:51 pm
I didn't realize chats were on Fridays either....please let me know when and I would love to try and get in on one. Hope everyone is doing well. Katie is due...
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dareinhart@...
dareinhart
Oct 14, 2002 9:42 pm
... Could you please refresh my memory as to time and how to join in the chat. Thanks, Denyse __________________________________________________ Do you Yahoo!?...
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leilei543
Oct 14, 2002 6:03 pm
Hello guys, Has anyone come to any of the chats. I was wondering because if so I would sign on at that time and catch you all. I would love to chat with you....
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harmonmandy
Aug 14, 2002 9:37 pm
We were lucky our insurance covered the surgery however the extras gave us a fit. We found the EASTER SEALS to be the most helpful. They said they would help...
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djkrn2000
Aug 14, 2002 7:01 pm
Hello to all- I wanted to know if anyone has any input on getting through some of this financial stuff. Yesterday was bill day. It has been almost 18 months...
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mikeiz12
Aug 13, 2002 10:12 pm
... Hi Doreen, My name is Sheila and my son Charlie (18 monthes) had surgery on July 15,2002. I asked lots of questions on this website prior to Charlie's...
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djkrn2000
Aug 13, 2002 4:24 am
... Since I wrote last, Alexa (9) had her second surgery on May 14 and 2 days later had a major stroke that left her with aphasia and rt. hemiparesis. We spent...
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Rhonda Gasiorowski
lovemom355044
Aug 13, 2002 12:51 am
Debbie- Yes I would love to hear what your neuro-psychologist said. Since I wrote last, Alexa (9) had her second surgery on May 14 and 2 days later had a major...
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leilei543
Aug 12, 2002 7:53 pm
Hello Everyone... I am glad to see the group growing...It has been almost a year since I began this group when my son was first diagnosed with Moyamoya and I...
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djkrn2000
Aug 7, 2002 3:38 am
... in Jan. and has had 1 surgery. I have known something was wrong for 2 years-but had diagnoses of ODD (oppositional defiant disorder), mood disorder and...
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djkrn2000
Aug 7, 2002 3:33 am
... My sone had seizures prior to his surgeries, and he also does have a slight learning difficulty from the decreased blood flow, but overall he does fine....
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djkrn2000
Aug 7, 2002 3:17 am
... Doreen.. My name is Debbie and my sone Geoff underwent surgery in February on both sides.(actually Feb. 2001) I feel for you and know what you are going...
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djkrn2000
Aug 7, 2002 3:09 am
I am new to this group, but very glad to have found it. I am the mother of a 14 year old boy with moyamoya and he underwent surgery in February, 2001 on both...
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littleone6567
Jul 29, 2002 7:48 pm
my daughter is going to have surgery sept 3rd. want to know what i have instore for me i am really scared .i dont know what i need to bring ..Dr. Scott is...
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mikeiz12
Jul 19, 2002 8:10 pm
Thanks to everyone for your thoughts and prayers. Charlie made it through the surgery without any complications. Dr. Scott was very nice. Charlie came home...
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dareinhart@...
dareinhart
Jul 15, 2002 4:43 pm
... Sheila, just wanted to let you know that I'm thinking of you and Charlie and praying for an execellent outcome on his surgery. My daughter is three years...
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dareinhart@...
dareinhart
Jul 15, 2002 3:07 pm
... disabilities due to the strokes she had prior to surgery. She has not had an EEG since surgery and is off AEDs. Prior to surgery her EEG was markedly ...
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dareinhart@...
dareinhart
Jul 15, 2002 3:02 pm
... disabilities due to the strokes she had prior to surgery. She has not had an EEG since surgery and is off AEDs. Prior to surgery her EEG was markedly ...
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harmonmandy
Jul 3, 2002 5:56 am
Does anyone's children have seisures or learning disabilities after surgery? I noticed on a eeg report from my daughter that the left side was considerbly...
