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newbornjaundice · PICK - Newborn Jaundice and Kernicterus

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Group Information

  • Members: 499
  • Category: Cerebral Palsy
  • Founded: Jul 17, 2001
  • Language: English
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Description

The purpose of this listserve is to provide information and emotional support to parents of children diagnosed with kernicterus or hyperbilirubinemia (high bilirubin). We will share our experiences, information on therapies, treatment, problems, successes and failures, as well as, strategies used in dealing with a child with special needs. Families that have children with kernicterus and other bilirubin induced neurological diseases as well as Professionals that deal with children diagnosed with kernicterus are also welcome to join.

Kernicterus (KI) is a rare neurological disorder characterized by excessive levels of bilirubin in the blood during infancy. Bilirubin is an orange-yellow bile pigment that is a byproduct of the natural breakdown of hemoglobin in red blood cells (hemolysis). Toxic levels of bilirubin may accumulate in the brain, potentially resulting in a variety of symptoms and physical findings. These symptoms may include lack of energy (lethargy), poor feeding habits, fever, and vomiting. Affected infants may also experience the absence of certain reflexes (e.g., Moro reflex, etc.); mild to severe muscle spasms including those in which the head and heels are bent backward and the body bows forward (opisthotonus); and/or uncontrolled involuntary muscle movements (spasticity). Hyperbilirubinemia may result in athetoid cerebral palsy, hearing loss (auditory neuropathy), gaze abnormalities and dental enamel malformation.

PICK’s website (updates coming soon!)
www.pickonline.org

Family support group - "Affected by Kernicterus - PICK"
www.facebook.com/groups/kernicterus

Public facebook page (Be sure to have all of your friends "like" us!)
www.facebook.com/newbornjaundice

Kids and teens affected by KI -"So Much More"
www.facebook.com/groups/373858846028230/

PICK Twitter
www.twitter.com/newbornjaundice

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 28 12 14 15 2
2012 47 99 55 56 45 73 15 46 15 32 13 11
2011 114 39 121 92 76 43 30 45 181 85 18 28
2010 70 145 23 24 81 82 120 82 144 147 41 62
2009 97 115 102 56 94 163 38 54 36 77 46 73
2008 33 115 108 77 42 25 39 43 149 94 45 4
2007 79 140 57 45 120 22 86 46 19 33 56 22
2006 84 135 61 137 65 75 44 68 185 119 27 67
2005 21 48 67 108 30 71 38 73 89 90 65 55
2004 79 119 87 156 102 94 77 41 28 65 54 30
2003 96 121 101 60 102 146 102 114 197 173 148 61
2002 18 26 38 32 29 32 14 18 40 18 58 37
2001 55 35 16 21 76 17

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