My name is Ami and I have had Chronic Lung disease since I was 6 months old. I'm now twenty-six years old. I live in Cleveland, Ohio and have been told I...
Hi Ami, Good to meet you, but sorry it has to be here. I've never heard the words Chronic, (Lung), and Disease without the words Obstructive and Pulmonary...
Ami, I am in the same boat as you. Not sick enough to get a transplant (YET). (I have IPF, Ideopathic Pulmonary Fibrosis). I would suggest get listed as soon...
Hello my name is Rex and I had a single lung transplant 7/13/2003 and I am doing great. If anyone is awaiting a transplant and needs to talk with someone who...
HEY REX I WAS WONDERING WERE YOU HAD YOUR TRANSPLANT DONE I HAD A DBL LUNG TRANSPLANT IN AUGUST OF 2003 THE THRIRD TO BE RIGHTDOING GREAT TOO BUT IM HAVEING...
I had my transplant in Oklahoma City. I went from 136 to 204 in about 18 mo. I started weight watchers with my daughter in Jan this year and now I am at 175. I...
Dear Ami, I know exactly how you feel because I was right where you are not to long ago. But now, I am on the other side. Received a double lung transplant...
CONGRATULATIONS!!!! LaShawn Jackson <shawnrenee2001@...> wrote:Dear Ami, I know exactly how you feel because I was right where you are not to long ago....
DID YOU HAVE TO LOSE ANY WIEGHT BEFORE YOUR TX?? THEY TOLD ME I HAVE TO GET DOWN TO 190LBS AND i AM HAVING A REALLY HARD TIME OF IT. LaShawn Jackson...
Dear Leroy, I didn't have to loose any weight pre-transplant because by the time my transplant came around, I was having trouble keeping the weight on. This...
I have been in a lung rehab program fro 3 years and have not lost enough to satisfy them. I started out at 289 LBS and am down to 226 today. Was down to 217...
Hi..My name is Debbie and my husband had a single lung transplant on November 9, 2005 for IPF. He breezed thru the surgery and was out of the hospital within...
Dear Debbie, I'm sorry to hear about your husband's problems. While what he's experiencing is not all that common, it's not entirely unknown. A lot of the...
Roger...I do believe my husband was first being treated for pneumonia...He had been coming down with some type of cold...soooo, they believe it was ...
Hi Debbie I am very sorry to hear your husband is having a problem with his transplant. A little favor I ask. Please don't pay any attention to negative...
Dear Ray, Thank you for your encouraging words. My husband did see the doctor on Monday for his weekly clinic, and the doctor said he was very ill when he...
Just wondering if anyone else has had a weight problem "post transplant." I am now 1 year post transplant. I have gained about 45lbs since having my...
I think you just answered your question yourself. EXERCISE Set up a schedule and stick to it religiously. It is the most important thing you can do. Especially...
Sorry...we have had no weight gain here. Hope you get it figured out. Could it be stress, or any of the other meds???? I would check with the doctors. Good...
i went from 80 lbs to 160 lbs after my trasnsplant. Im only 5 '!! It took about a year, but i managed to control my eating, and reduced the prednisone to 5...
Happy Anniversary!!! Thanks for the responses! I too had difficultly keeping weight on prior to the transplant. I told my doctor's that I hadn't changed my...
It has been about 13 months since my double lung transplant at UCLA.... I was very thin as well before transplant, around 90 pounds. After transplant I gained...
I'm sorry guys! I really do feel for you. But my problem is just the opposite!!! I keep loosing weight. I am 5'3" and now weight about 85 pounds. They would...
Interesting! I too am about 13 months out. I am now finding myself having to make some serious changes or else. As noted, pre-transplant I was relatively...
Hi Ruth have you tried taking anti nausea meds 1/2 before you eat? sometimes that works. along with lots of high calorie junk food. have the doctors found...
I have tried everything that the docs said to do and get zero response. Taking something with junk food won't work since I abhor that right now. Before the tx...
Hi, I'm writing on behalf of my father who is now almost 9 months post surgery for a double lung transplant at the Cleveland Clinic for IPF. He's generally...
dear heather , my name is randy and i hope to answer some of your ? that you have asked about . i am also a dbl lung transplant and it has been just over two...
Randy, Did you suffer any setbacks during your first year post transplant.......for that fact has anyone, and can you share your experiences with me? My...
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