I had a double lung transplant in Jan 2001. I was born with Cystic Fibrosis 28 yrs ago, had my transplant at age 23. Everything is going great now! however,...
Hi - thanks for asking - Ray is in the hospital now, has caught a virus or something, but he will get back to you when he comes home - hopefully in a couple of...
Hello everyone My name is Mariaemilia, and well I'm new here. I received a lung transplant about a month ago, and I would really like talking to people who had...
I am so very sorry that I am just responding to this. I wrote before but I was out of town then. In fact, I was celebrating my 6 month post transplant! I...
Fellow members, Hi, it's me again, your friendly moderator. It seems that I have to be more of a Policeman than a transplantee these days. Those of you who get...
My name is Ami and I have had Chronic Lung disease since I was 6 months old. I'm now twenty-six years old. I live in Cleveland, Ohio and have been told I...
Hi Ami, Good to meet you, but sorry it has to be here. I've never heard the words Chronic, (Lung), and Disease without the words Obstructive and Pulmonary...
Ami, I am in the same boat as you. Not sick enough to get a transplant (YET). (I have IPF, Ideopathic Pulmonary Fibrosis). I would suggest get listed as soon...
Hello my name is Rex and I had a single lung transplant 7/13/2003 and I am doing great. If anyone is awaiting a transplant and needs to talk with someone who...
HEY REX I WAS WONDERING WERE YOU HAD YOUR TRANSPLANT DONE I HAD A DBL LUNG TRANSPLANT IN AUGUST OF 2003 THE THRIRD TO BE RIGHTDOING GREAT TOO BUT IM HAVEING...
I had my transplant in Oklahoma City. I went from 136 to 204 in about 18 mo. I started weight watchers with my daughter in Jan this year and now I am at 175. I...
Dear Ami, I know exactly how you feel because I was right where you are not to long ago. But now, I am on the other side. Received a double lung transplant...
CONGRATULATIONS!!!! LaShawn Jackson <shawnrenee2001@...> wrote:Dear Ami, I know exactly how you feel because I was right where you are not to long ago....
DID YOU HAVE TO LOSE ANY WIEGHT BEFORE YOUR TX?? THEY TOLD ME I HAVE TO GET DOWN TO 190LBS AND i AM HAVING A REALLY HARD TIME OF IT. LaShawn Jackson...
Dear Leroy, I didn't have to loose any weight pre-transplant because by the time my transplant came around, I was having trouble keeping the weight on. This...
I have been in a lung rehab program fro 3 years and have not lost enough to satisfy them. I started out at 289 LBS and am down to 226 today. Was down to 217...
Hi..My name is Debbie and my husband had a single lung transplant on November 9, 2005 for IPF. He breezed thru the surgery and was out of the hospital within...
Dear Debbie, I'm sorry to hear about your husband's problems. While what he's experiencing is not all that common, it's not entirely unknown. A lot of the...
Roger...I do believe my husband was first being treated for pneumonia...He had been coming down with some type of cold...soooo, they believe it was ...
Hi Debbie I am very sorry to hear your husband is having a problem with his transplant. A little favor I ask. Please don't pay any attention to negative...
Dear Ray, Thank you for your encouraging words. My husband did see the doctor on Monday for his weekly clinic, and the doctor said he was very ill when he...
Just wondering if anyone else has had a weight problem "post transplant." I am now 1 year post transplant. I have gained about 45lbs since having my...
I think you just answered your question yourself. EXERCISE Set up a schedule and stick to it religiously. It is the most important thing you can do. Especially...
Sorry...we have had no weight gain here. Hope you get it figured out. Could it be stress, or any of the other meds???? I would check with the doctors. Good...
i went from 80 lbs to 160 lbs after my trasnsplant. Im only 5 '!! It took about a year, but i managed to control my eating, and reduced the prednisone to 5...
Happy Anniversary!!! Thanks for the responses! I too had difficultly keeping weight on prior to the transplant. I told my doctor's that I hadn't changed my...
It has been about 13 months since my double lung transplant at UCLA.... I was very thin as well before transplant, around 90 pounds. After transplant I gained...
I'm sorry guys! I really do feel for you. But my problem is just the opposite!!! I keep loosing weight. I am 5'3" and now weight about 85 pounds. They would...
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