Hi ! ! ! Greetings from Florida. I haven't been active on the boards for awhile. My email has been so screwy and during one of my hospital admissions they...
hi andrew Im lisa, i have cf too and had a double lung tx jan 4, 2001. (i was 23) Id love to share my experience with you if youre interested. i can ramble...
Hi Andrew My name is Ray and I am 58 yrs. old. I had a double lung transplant Feb. 18, 2005 due to bronchitis,asthma,copd and serve emphysema. I had the same...
Hi everyone! My husband, a 37 year old with CF, has just learned that he needs a double lung transplant. He has started all the tests for acceptance to the...
Dear members: I just wanted to share this announcement with you: Anabel and Isabel Stenzel are identical twins with cystic fibrosis from the San Francisco Bay...
Hey y'all :) My name is Meghann and I've been on the tranpslant list for a double lung tx for the past 15 years. But i've been inactive on the list for the...
I am a new member.Dbl Lung/Liver TX in Aug 08 and doing well. Also have CF and I am 33yrs young!!!Want to go back to work but I am wondering if anyone has had...
Hi Andrew, Congratulations on your lung transplant! Mine was in June of 2006.  I have signed up for the Ticket to Work program, and am looking for work...
Are you waiting for a lung transplant or recently had one? If so, read below! Each year, lung transplantation is a life saving procedure for people with...
just in need of some advice. My mom has IPF and is 44 years old. She has had this disease for a little over 2 years now and has been on the transplant list...
Mindi, The IPF coordinator from UPMC is trying to contact you as well as my friend John. Please send me your mothers name as well as a contact for you so they...
I am new here. I received a double lung transplant six months ago, after a very fast decline and a very short wait. I am doing quite well, at least as far as...
Hello Larry, First of all congratulations on your transplant and your hard work in keeping healthy! As far as your insurance goes, you will be eligible for...
I believe you have to be on disability for two years before you will be eligible for Medicare. My husband went through the same thing and his name is Larry...
Hi Larry, What a surprise my husband is named Larry too! Anyway, I've been on and off SSD for the last 29 years. I attempted to convert my Cobra policy but due...
Thanks to all. And I find it odd there are so many Larry's here. I'm wondering if there is an alliteration policy. But even so, cant we have a Leo or a...
Hi,I would like to inquire about DME (durable medical equipment)coverage for nebulizers after transplant. As you know some of us have lung infections that are...
I had a postive experience in this regard. I was originally prescribed an ongoing "nebulized" treatment, and a nebulizer was delivered to me at no charge --...
My pharmacy just sent me generic "Cellcept", made by Apotex. Has anyone else used generic mycophenolate mofetil? Is that ok? I'm nervous... Obviously I'll ask...
Ana, DME depends on your private insurance coverage. AS for Medicare: Medicare may elect to purchase you a nebulizer or rent one for you to use. There may be...
I just learned that my next refill will be the generic as well. As I see I left the decision to the transplant coordinator. I did not think there should be a...
Update on the generic cellcept: Recall that my impression was that I would trust the judgment of my transplant team. I have been on the generic version for...
Today begins National Donor Sabbath Weekend. Being a 3-time transplant recipient. All my online stores & the Christmas Bazaar at the Cultural Center will offer...
I got your email and noticed something I am not familiar with. Â I am trying to qualify for a lung transplant; will be re evaluated Dec 2 at Shands Hospital...
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