Hey there folks, I just was pointed over to this list by someone on the IPF list. So I thought I'd introduce myself. My name's Gregory, I'm 32, and am on the...
Gregory Blake
gblake@...
Jul 1, 2001 10:56 pm
12
Hi Gregory, I'm the wife of a transplant person...double-lung at U. of Maryland - June 9 & 10th of 1997. In fact, we just celebrated his 4th year and yes, I...
Judith A. Stevens
jstevens@...
Jul 2, 2001 12:54 am
13
Dear Gregory, Hi. I'm Roger Stevens and apparently my wife Judy wrote to you a little earlier tonite. I was born at the Lying In hospital in Boston in 1950,...
Roger W. Stevens WA3FLE
rstevens@...
Jul 2, 2001 5:29 am
14
Dear Sandi, Hi and thanks for our support. And thanks for your kind comments and best wishes. I only wish I were not such an apparently rare species, and...
rstevens@...
Jul 4, 2001 7:04 pm
15
... Nope, nobody in my family has ever had it that I'm aware of. That's one of the big mysteries with this. Where exactly it came from. It's not like I have...
Gregory Blake
gblake@...
Jul 4, 2001 8:42 pm
16
Dear Gregory, This is becoming a complicated email but I will still try to intersperse my comments so I don't miss anything. Let's see here... ... No point...
Roger W. Stevens WA3FLE
rstevens@...
Jul 6, 2001 2:01 pm
17
I have a question I'm hoping those of you who have IPF can answer, please. Call this sort of a poll, if you will. If money were no object and you were...
S Wood
woodrow@...
Aug 14, 2001 12:46 am
18
Sandi, What a poll! Reminds me of that joke about a man that dies and goes to Hell and the Devil offers him the choice of one of three doors behind which to ...
Roger W. Stevens WA3FLE
rstevens@...
Aug 14, 2001 1:38 am
19
Thanks to all who responded to last nite's mini poll on whether you'd use Preds vs Actimmune if diagnosed now. There were 13 responses. Five chose Prednisone,...
S Wood
woodrow@...
Aug 15, 2001 12:42 am
20
Is this group still active? I don't see any posts beyond the summer of 2001. Is it true that no one has posted since then? I did send a post, but it has failed...
actually I posted another message and it disappeared in cyber space somewhere. Is it worth my time to type out a message to be posted or is there no one to...
I don't get much email from the IPF'ers, neither... have you joined the SecondWind list? they are very chatty there. Ruth Ratbone Rescues Transport Coordinator...
I am not sure, how do I do that? ... From: Ruth To: lungtransplant@yahoogroups.com Sent: Friday, February 01, 2002 2:41 PM Subject: Re: [lungtransplant] I...
Apparently this Group is active -- it's the members who aren't.... When you ask if you're wasting your time by coming here... may I suggest you have mail...
S Wood
woodrow@...
Feb 1, 2002 8:38 pm
26
How do I do that??? Let me know so I can get them to come to my e-mail address. ... From: S Wood To: lungtransplant@yahoogroups.com Sent: Friday, February 01,...
Why does this keep sending me back my own e-mail. This is most bizarre to say the least. I would like to have the posts sent to me, but do not know how to go...
How does it work to contact you? Somehow, and I don't know how, I got a message through to you and now everytime I try to send one back to ask a question, it...
Go the the group's homepage at http://groups.yahoo.com/group/LungTransplant/ sign in with your YahooID Click on "Edit my membership" link Scroll down the page...
When you send a message to the group -- EVERYONE in the group receives a copy of your message. Since You are a member of the group, You also receive a copy of...
Thanks, I got it now. I changed my prefs as you suggested and hopefully things will work out. Can I go to a site to read the digests that have been posted...
Fellow members, Wow, I come home from the dentist, get stuck on Comcast.net--who just converted from @home.com and hasn't gotten their email act together--and...
I am glad to see the group still active! I must admit I was lurking until someone said something...<g> My story is that I am 50 years old with IPF in the end...
Thanks for this info, Roger. You failed to mention the donor was an IPF patient--- so I think I'll do it for you ;>) Sandi (who's gonna pass this along to the...
Hi Ruth, A problem with any list -- especially a small one like this -- is the veterans don't have much to say (having asked their questions long ago), so new...
Sandy, Thanks! I appreciate all the good thoughts and prayers I can get! No, you didn't offend me in the least! I usually am pretty active on the lists I am...
Sandi, I haven't received this days' digest yet--or week's, I forget how it works--but I assume you might have mentioned that responding to the list is best...
Roger, I read with interest your statement about many think IPF is triggered by GERD. I have had GERD very badly for at least 7 years now. Even had two stomach...
Gee, Roger, guess I'm afflicted with same malady as the guy who wrote CBS Sunday Morning would be airing on February 28. ;>) I got it right when sending to...
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