Our ostomy forum, the BAG & BOWEL CLUB is at : http://www.bowelweb.com/index.php?name=PNphpBB2&file=viewforum&f=4 Forum members discuss issues relating to...
ileostomy@yahoogroups...
Nov 1, 2005 11:36 am
1177
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ileostomy@yahoogroups...
Nov 6, 2005 11:30 am
1178
Hello everyone, I'm 27 years old from Toronto, Canada, and had a subtotal collectomy just this past summer due to acute onset fulminant UC. I've adjusted to my...
Sarah, I am of no help here, but cannot wait to see the responses.... our daughter was left with just enough at the end of her colon to 're-attach and...
It looks like your daughter and I are in the same situation. I have enough left "at the bottom" to do the surgery if I choose. My surgeon is very gung-ho about...
Sarah, Yes, it does sound like it. Emily is very contented with her ostomy for now. She feels so much better with it that she never asks how long she has to...
- I'm on my third iliostomy. So I've had bad luck with the whole reconstructive pouch thing. I've finally decided that the bag isn't so bad after all. I'm...
Hi, I would like to thank you for sharing your experiences. I have suffered with crohns since '94. One month ago I was told I had no choice but to have an...
Paige, Emily and i both had a terrible time with her ostomy at first.... more tears were shed in those first few months home than i had shed in years....... we...
Paige: The first couple months are the hardest. My husband and I had and active sex life and I thought this would change it, but eventually we got back on...
This is to everyone: Have you had the opportunity to have B-12 shots? I have anemia since my Ileostomy surgery in May and feel so tired all the time. I take a...
Hi Paige, I definitely know what you're going through. But honestly, after a little while, you'll hardly even think about the pouch. I just got my ileostomy in...
I administer B-12 shots to myself to help the issue of being tired all of the time. It does help, but surely not a cure all. I'm told some folks loose energy...
Sarah, Thanks so much for the responce and the incouragement. I do think it is going to get better in time and to be honest I can't wait. If you don't mind...
Sandy, My iron was quite low after my surgery as well. I actually needed a blood transfusion. My iron levels are more or less normal now, but I was told to...
When I become amemic due to iron deficiency someone told me about a product that works wonders, is easily absorbed and also contained b-12. It is made by...
Hi, I had an ileostomy about 1 year ago after about a year and a half of acute ulcerative colitis (which until they did the lab work on the colon the was...
Your skin needs to be dry, use the nystatin powder but cut your appliance as small as possible around the barrier and give that skin air. Also before you put a...
Yeast is a real bear! I take oral anti acid pils and seem to have it more and more. Cutting back on sweets helps. Yeast loves sweets. If you can do dairy,...
Join us in our webcam chatroom especially for people with IBD and/or an ostomy. http://www.bowelweb.com/chat/flashchat.php...
ileostomy@yahoogroups...
Nov 20, 2005 11:06 am
1197
Hi there you have my sympathies!! I have had an illiostomy for 4 1/2 years. The first summer I had a wicked yeast infection all over my abdomen. I was given...
Hi all, I just have a question, purely out of curiosity. How often does everyone here change their system? I usually don't get much more than 4 days out of...
Sarah, Emily usually ends up with a full system change every other day during the winter..... she has a high volume of output and it is quite watery, too....
I can easily get 5 days out of the flange/barrier, and I know I've gone 7 just because I forgot what day I redid everything. I usually only get about 4 days...
Sue, That's interesting you should mention about the heat. I've heard that when you first apply a new system, you should use a blow dryer on a lower setting...
Hello Group I too had pyoderma after one of my revisions, right under my wafer! I had to have kenalog/? Injections at the site, which required me to remove my...
sc_horizon_21 <spookysquall@...> wrote: Sue, That's interesting you should mention about the heat. I've heard that when you first apply a new system,...
I know what you mean! Sometimes I'll change the bag after just two days, because it can get pretty nasty. I guess that's why the pouches come in boxes of 10...
I change my wafer (2 part new image) once a week and my bag everyday. I wash the bag out with white vinegar and water to use the next day. I only use a bag...
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