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#30 From: tim neal <tneal3820@...>
Date: Sun Feb 29, 2004 2:09 pm
Subject: Re: Newly diagnosed
tneal3820
Offline Offline
Send Email Send Email
 
hi cindi-
i'd like to hear more about armour thearpy--my synthroid isn't doing much--it seems---keep in touch--Tim

nc2406 <nc2406@...> wrote:
Hi group...I'm newly diagnosed with Hashimoto's Disease and have
started Armour Thyroid replacement.  I'm somewhat angry that's it's
taken so long to be diagnosed, however my recent research shows this
is not uncommon.

I am 48 years old, but started having underactive thyroid symptoms
back in my mid 30s.  I did go to a doctor asking to have my thyroid
checked...but of course the TSH was in normal range.  In my research
I've learned that someone with the Hashimoto's antibodies probably
needs thyroid replacement if the TSH is over 2.0.  I have lab results
from several thryroid tests over the last decade or so...and all were
over 2.0.  So..I've been feeling bad for over 10 years...and didn't
have too.

Also, my white cell counts was ALWAYS high...and the docs would just
give me antibiotics.  Even after telling my family history (mother
had thyroid nodules and adrenal mass),I never had a doctor offer to
do the antibodies test.

Anyway, after mentioned to my husband about how my body temperature
had been low for years..he told me that just wasn't normal.  So I did
a bit of research which led me to finally going to a specialist
(head/neck/ear) who FINALLY gave me the proper testing.  He also
tested for adrenal and sex hormones.  All of those are low which I
understand is not uncommon for low thyroid patients.

Anyway, after only 2 weeks on the Armour Thyroid, I can already tell
a difference.  Body aches and pains are disappearing, my "brain fog"
is clearing, my skin is feeling better, I'm not so cold...and many
other things.

Thank God i finally got help...and I look forward to being a member
of the group here.
Cindi



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#29 From: nc2406@...
Date: Fri Feb 27, 2004 9:33 pm
Subject: Re: Newly diagnosed
nc2406
Offline Offline
Send Email Send Email
 
In a message dated 2/27/2004 7:29:18 PM Eastern Standard Time, scissornz@... writes:
By that stage, I was so tired
all the time I used to crawl up the stairs to bed.
When I was finally diagnozed, I was told six months
later I would have been gone


That's pretty much sums up how I was...and yes, I actually thought I was going to die...and couldn't figure out why.  Thanks for the good wishes.
Cindi


#28 From: mike <scissornz@...>
Date: Sat Feb 28, 2004 12:27 am
Subject: Re: Newly diagnosed
scissornz
Offline Offline
Send Email Send Email
 
Cindi, Good news that you are on the road to better
things.
I had a similiar story - 10 years of feeling odd and
having all the symptoms before the doctors mentioned
the word Hashimoto.e. By that stage, I was so tired
all the time I used to crawl up the stairs to bed.
When I was finally diagnozed, I was told six months
later I would have been gone.I appreciate it is an
unusual disease and has symptoms you find in other
health problems so it is hard to pinpoint it.
Here's to many more years of life for you Cindi.

#27 From: "nc2406" <nc2406@...>
Date: Fri Feb 27, 2004 8:46 pm
Subject: Newly diagnosed
nc2406
Offline Offline
Send Email Send Email
 
Hi group...I'm newly diagnosed with Hashimoto's Disease and have
started Armour Thyroid replacement.  I'm somewhat angry that's it's
taken so long to be diagnosed, however my recent research shows this
is not uncommon.

I am 48 years old, but started having underactive thyroid symptoms
back in my mid 30s.  I did go to a doctor asking to have my thyroid
checked...but of course the TSH was in normal range.  In my research
I've learned that someone with the Hashimoto's antibodies probably
needs thyroid replacement if the TSH is over 2.0.  I have lab results
from several thryroid tests over the last decade or so...and all were
over 2.0.  So..I've been feeling bad for over 10 years...and didn't
have too.

Also, my white cell counts was ALWAYS high...and the docs would just
give me antibiotics.  Even after telling my family history (mother
had thyroid nodules and adrenal mass),I never had a doctor offer to
do the antibodies test.

Anyway, after mentioned to my husband about how my body temperature
had been low for years..he told me that just wasn't normal.  So I did
a bit of research which led me to finally going to a specialist
(head/neck/ear) who FINALLY gave me the proper testing.  He also
tested for adrenal and sex hormones.  All of those are low which I
understand is not uncommon for low thyroid patients.

Anyway, after only 2 weeks on the Armour Thyroid, I can already tell
a difference.  Body aches and pains are disappearing, my "brain fog"
is clearing, my skin is feeling better, I'm not so cold...and many
other things.

Thank God i finally got help...and I look forward to being a member
of the group here.
Cindi

#26 From: tim neal <tneal3820@...>
Date: Fri Sep 5, 2003 6:08 pm
Subject: RE: New here
tneal3820
Offline Offline
Send Email Send Email
 
Sharla,
shame we can't do without doctors--i only go when i can do it myself--
btw--HTLV I &II    --is  human t-cell lympthophic virus---they started stesting in 89 for this at the red cross--i got a letter saying that i'm not oto give  blood any morre---didn't tell me that before--would be curious if anyone else had it-'they' tell me its not related to the aids virus--but who knows--i have only been with one partner for  32  years--and haven't had sex  with any animals--the test for it  wasn't conclusive--
i have to write down all the  question i want to know before i go to the dr--
take  care
Tim
 


Sharla <my-destiny@...> wrote:

Hi, Thanks for the email. First, the icky stuff J We are a military family so we use the military med system which is basically Medicare in disguise (Tricare). We are new to this area, I am assigned a doc that I saw once. My past two visits have been with someone else in the same office. I am really stuck when it comes to medical care.

 

After I posted yesterday I received a call back from my assigned doc’s nurse saying the doc was not comfortable with my White blood cell count and me saying I was not feeling sick at the time. Basically he didn’t take my eczema problem at the time as a reason for my wbc level. Anyway, I go back in one hour to see the doc again. This time I am going armed with my 7yr olds medical records. I am going to show him her labs so he sees what antibody test I am talking about. My cycle just started 9 days early without and of my usual pms and I am pretty regular, this is odd. Something is going on with me, just not sure if its thyroid related. I just don’t see how it skipped me.

 

Here are her results that I am also curious about if anyone knows.

 

Her TSH and FT4 are in normal range

 

Her thyroid peroxide TPO is   >70.0

Interpretations, range, less than 2.0

 

Her thyroglobul ab (AMA) is >90.0

Interpretations, reference range, less than 2

 

Does anyone know how high that is? Does that range part mean what it should be at, less than 2 …OR is it less than 2 from being normal?

 

More later, little off right now, sleep deprived from this eczema (blisters!)  that I have.

 

 

 

 

Thanks,

 

Sharla Davis

 

-----Original Message-----
From: ambercrow@... [mailto:ambercrow@...]
Sent: Friday, September 05, 2003 1:41 AM
To: hashimotos_syndrome@yahoogroups.com
Subject: Re: [hashimotos_syndrome] New here

 

     I think you need to go see an endocrinologist. 
At the very least go see a different doctor.  You need
to find someone who's actually going to LISTEN to you,
especially your family history - and it sounds like
your corrent MD isn't.

     Don't know if you're in an HMO and the doc has
incentives to do as little as possible.  You may have
to pay for a second opinion out of your own pocket,
but it would be worth it IMO.

     Most of the time Hashimoto's patients have NORMAL
T3 and T4(both thyroid hormone) levels.  The problem
is that their immune system's attacking the thyroid
gland and *neutralizing* the T3 and T4 - so the body
can't use it.
    
     To find Hashi's it's(in my totally non-medical,
not giving medical advice opinion) necessary to get
tested for the following:

TSH - Thyroid Stimulating Hormone: In Hashi's patients
it's often high - showing that your body is working
overtime trying to make thyroid hormone.

T3 and T4 - to give a complete picture of what's going
on...

And, of course, the thyroid antibodies.  If they're
higher than normal it can indicate Hashi's.  They're
called TPO(thyroid peroxidase) and Thyroid
Antiglobulin, but other than that I don't know much
about them.

Skin problems do occur with autoimmune diseases,
including Hashi's.  I have Hashimoto's, and have
always had problems with psoriasis and eczema.  Leads
me to think I started developing Hashi's around 9
years old. 

Six months into being treated with Synthroid I
developed severe skin allergies.  It's gotten so bad
that anything other than Neutrogena facial soap will
burn, causing pinprick blisters which scab over.

Good luck for both of you, don't give up!

Blessings -
Karen



--- Original Message ---
From: "hazyhumid2" <my-destiny@...>
To: hashimotos_syndrome@yahoogroups.com
Subject: [hashimotos_syndrome] New here

><html><body>
>
>
><tt>
>Hi, I just joined this list. I have many questions!
<BR>
><BR>
>Two issues here myself and my daughter. <BR>
><BR>
>First my 7yr old during her school check up they felt
an enlarged <BR>
>goiter. They did labs and her levels were normal but
her antibody <BR>
>level was elevated. In just a little more than a
month we will <BR>
>finally see a ped endro. I suspect she has
hashimotos, since my <BR>
>mother and grandmother also do. <BR>
><BR>
>Me, I feel like crap, seems I always have. I have a
alot of the <BR>
>symptoms of TD but once again my levels come back
&quot;normal.&quot; I ask to <BR>
>have my thyroid tested a lot because of family
history and how i <BR>
>feel. Not once have I been able to get them to test
my antibody <BR>
>levels. I thought this time they did because I
explained about my <BR>
>family and now my daughter...i dont see how it
skipped me.<BR>
><BR>
>I also developed eczema a few weeks ago, at 28
blisters all over my <BR>
>hands, and now my feet. My new psych said that is
related to auto <BR>
>immune and asked if I had my thyroid tested. Odd that
a psych could <BR>
>relate the two but not my DR.<BR>
><BR>
>Just a while ago they told me my t3 t4 were normal,
and my white <BR>
>blood cell was high. It never dawned on me until then
that it always <BR>
>comes back that way, my WBC is always a little high?
Could that be <BR>
>related to an autoimmune disease? <BR>
><BR>
>Does anyone know what the test is called for the
antibody? Also I <BR>
>have my daughters results and I am trying to figure
out how elevated <BR>
>it is. <BR>
><BR>
>Is it possible to feel like crap and have normal t3
t4?<BR>
><BR>
>See with my mom it started with hashi, an later turn
to hypo.<BR>
><BR>
>OH, I also have an ultrasound next tuesday, doc felt
a nodule. I dont <BR>
>feel it and neither did the different doc i saw
monday. still going <BR>
>to get it done. <BR>
><BR>
>Thanks! Sharla <BR>
><BR>
></tt>
>
><br>
>
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#25 From: "Sharla" <my-destiny@...>
Date: Fri Sep 5, 2003 5:32 pm
Subject: RE: New here
hazyhumid2
Offline Offline
Send Email Send Email
 

Hi Tim, Thanks for your email also! Sorry to hear about your parents. What is HTLV? I am curious. Anyway, I just posted an update of my life. Will chat more later, Thanks

 

 

 

Thanks,

 

Sharla Davis

 

-----Original Message-----
From: tim neal [mailto:tneal3820@...]
Sent: Thursday, September 04, 2003 2:50 PM
To: hashimotos_syndrome@yahoogroups.com
Subject: Re: [hashimotos_syndrome] New here

 

hello Sharla-

since diagnosed  with hashimotos--  the only thing i've  done about it was  take  synthroid..

i have exibited  the typical symptoms--thinking maybe it was  mid- life  crisis  or puberty-

my mother  and father  died in 1988--same  year--same cancer in same organ-(pancreas)-mom  had a  goiter but  they didn't worry about it--anyway--i'd like to know about the immune system--like  the connection in  HTLV I and II  ---not  III   the virus that is connected to the aids virus..if leukemia is related and the part the thyroid plays into all this..

anyway-  hang in there--keep in touch

Tim  from Georgia

 

--

hazyhumid2 <my-destiny@...> wrote:

Hi, I just joined this list. I have many questions!

Two issues here myself and my daughter.

First my 7yr old during her school check up they felt an enlarged
goiter. They did labs and her levels were normal but her antibody
level was elevated. In just a little more than a month we will
finally see a ped endro. I suspect she has hashimotos, since my
mother and grandmother also do.

Me, I feel like crap, seems I always have. I have a alot of the
symptoms of TD but once again my levels come back "normal." I ask to
have my thyroid tested a lot because of family history and how i
feel. Not once have I been able to get them to test my antibody
levels. I thought this time they did because I explained about my
family and now my daughter...i dont see how it skipped me.

I also developed eczema a few weeks ago, at 28 blisters all over my
hands, and now my feet. My new psych said that is related to auto
immune and asked if I had my thyroid tested. Odd that a psych could
relate the two but not my DR.

Just a while ago they told me my t3 t4 were normal, and my white
blood cell was high. It never dawned on me until then that it always
comes back that way, my WBC is always a little high? Could that be
related to an autoimmune disease?

Does anyone know what the test is called for the antibody? Also I
have my daughters results and I am trying to figure out how elevated
it is.

Is it possible to feel like crap and have normal t3 t4?

See with my mom it started with hashi, an later turn to hypo.

OH, I also have an ultrasound next tuesday, doc felt a nodule. I dont
feel it and neither did the different doc i saw monday. still going
to get it done.

Thanks! Sharla



To Post a message, send it to:   hashimotos_syndrome@eGroups.com
To Unsubscribe, send a blank message to: hashimotos_syndrome-unsubscribe@eGroups.com


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#24 From: "Sharla" <my-destiny@...>
Date: Fri Sep 5, 2003 5:30 pm
Subject: RE: New here
hazyhumid2
Offline Offline
Send Email Send Email
 

Hi, Thanks for the email. First, the icky stuff J We are a military family so we use the military med system which is basically Medicare in disguise (Tricare). We are new to this area, I am assigned a doc that I saw once. My past two visits have been with someone else in the same office. I am really stuck when it comes to medical care.

 

After I posted yesterday I received a call back from my assigned doc’s nurse saying the doc was not comfortable with my White blood cell count and me saying I was not feeling sick at the time. Basically he didn’t take my eczema problem at the time as a reason for my wbc level. Anyway, I go back in one hour to see the doc again. This time I am going armed with my 7yr olds medical records. I am going to show him her labs so he sees what antibody test I am talking about. My cycle just started 9 days early without and of my usual pms and I am pretty regular, this is odd. Something is going on with me, just not sure if its thyroid related. I just don’t see how it skipped me.

 

Here are her results that I am also curious about if anyone knows.

 

Her TSH and FT4 are in normal range

 

Her thyroid peroxide TPO is   >70.0

Interpretations, range, less than 2.0

 

Her thyroglobul ab (AMA) is >90.0

Interpretations, reference range, less than 2

 

Does anyone know how high that is? Does that range part mean what it should be at, less than 2 …OR is it less than 2 from being normal?

 

More later, little off right now, sleep deprived from this eczema (blisters!)  that I have.

 

 

 

 

Thanks,

 

Sharla Davis

 

-----Original Message-----
From: ambercrow@... [mailto:ambercrow@...]
Sent: Friday, September 05, 2003 1:41 AM
To: hashimotos_syndrome@yahoogroups.com
Subject: Re: [hashimotos_syndrome] New here

 

     I think you need to go see an endocrinologist. 
At the very least go see a different doctor.  You need
to find someone who's actually going to LISTEN to you,
especially your family history - and it sounds like
your corrent MD isn't.

     Don't know if you're in an HMO and the doc has
incentives to do as little as possible.  You may have
to pay for a second opinion out of your own pocket,
but it would be worth it IMO.

     Most of the time Hashimoto's patients have NORMAL
T3 and T4(both thyroid hormone) levels.  The problem
is that their immune system's attacking the thyroid
gland and *neutralizing* the T3 and T4 - so the body
can't use it.
    
     To find Hashi's it's(in my totally non-medical,
not giving medical advice opinion) necessary to get
tested for the following:

TSH - Thyroid Stimulating Hormone: In Hashi's patients
it's often high - showing that your body is working
overtime trying to make thyroid hormone.

T3 and T4 - to give a complete picture of what's going
on...

And, of course, the thyroid antibodies.  If they're
higher than normal it can indicate Hashi's.  They're
called TPO(thyroid peroxidase) and Thyroid
Antiglobulin, but other than that I don't know much
about them.

Skin problems do occur with autoimmune diseases,
including Hashi's.  I have Hashimoto's, and have
always had problems with psoriasis and eczema.  Leads
me to think I started developing Hashi's around 9
years old. 

Six months into being treated with Synthroid I
developed severe skin allergies.  It's gotten so bad
that anything other than Neutrogena facial soap will
burn, causing pinprick blisters which scab over.

Good luck for both of you, don't give up!

Blessings -
Karen



--- Original Message ---
From: "hazyhumid2" <my-destiny@...>
To: hashimotos_syndrome@yahoogroups.com
Subject: [hashimotos_syndrome] New here

><html><body>
>
>
><tt>
>Hi, I just joined this list. I have many questions!
<BR>
><BR>
>Two issues here myself and my daughter. <BR>
><BR>
>First my 7yr old during her school check up they felt
an enlarged <BR>
>goiter. They did labs and her levels were normal but
her antibody <BR>
>level was elevated. In just a little more than a
month we will <BR>
>finally see a ped endro. I suspect she has
hashimotos, since my <BR>
>mother and grandmother also do. <BR>
><BR>
>Me, I feel like crap, seems I always have. I have a
alot of the <BR>
>symptoms of TD but once again my levels come back
&quot;normal.&quot; I ask to <BR>
>have my thyroid tested a lot because of family
history and how i <BR>
>feel. Not once have I been able to get them to test
my antibody <BR>
>levels. I thought this time they did because I
explained about my <BR>
>family and now my daughter...i dont see how it
skipped me.<BR>
><BR>
>I also developed eczema a few weeks ago, at 28
blisters all over my <BR>
>hands, and now my feet. My new psych said that is
related to auto <BR>
>immune and asked if I had my thyroid tested. Odd that
a psych could <BR>
>relate the two but not my DR.<BR>
><BR>
>Just a while ago they told me my t3 t4 were normal,
and my white <BR>
>blood cell was high. It never dawned on me until then
that it always <BR>
>comes back that way, my WBC is always a little high?
Could that be <BR>
>related to an autoimmune disease? <BR>
><BR>
>Does anyone know what the test is called for the
antibody? Also I <BR>
>have my daughters results and I am trying to figure
out how elevated <BR>
>it is. <BR>
><BR>
>Is it possible to feel like crap and have normal t3
t4?<BR>
><BR>
>See with my mom it started with hashi, an later turn
to hypo.<BR>
><BR>
>OH, I also have an ultrasound next tuesday, doc felt
a nodule. I dont <BR>
>feel it and neither did the different doc i saw
monday. still going <BR>
>to get it done. <BR>
><BR>
>Thanks! Sharla <BR>
><BR>
></tt>
>
><br>
>
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#23 From: ambercrow@...
Date: Fri Sep 5, 2003 6:40 am
Subject: Re: New here
ambercrow2001
Offline Offline
Send Email Send Email
 
I think you need to go see an endocrinologist.
At the very least go see a different doctor.  You need
to find someone who's actually going to LISTEN to you,
especially your family history - and it sounds like
your corrent MD isn't.

      Don't know if you're in an HMO and the doc has
incentives to do as little as possible.  You may have
to pay for a second opinion out of your own pocket,
but it would be worth it IMO.

      Most of the time Hashimoto's patients have NORMAL
T3 and T4(both thyroid hormone) levels.  The problem
is that their immune system's attacking the thyroid
gland and *neutralizing* the T3 and T4 - so the body
can't use it.

      To find Hashi's it's(in my totally non-medical,
not giving medical advice opinion) necessary to get
tested for the following:

TSH - Thyroid Stimulating Hormone: In Hashi's patients
it's often high - showing that your body is working
overtime trying to make thyroid hormone.

T3 and T4 - to give a complete picture of what's going
on...

And, of course, the thyroid antibodies.  If they're
higher than normal it can indicate Hashi's.  They're
called TPO(thyroid peroxidase) and Thyroid
Antiglobulin, but other than that I don't know much
about them.

Skin problems do occur with autoimmune diseases,
including Hashi's.  I have Hashimoto's, and have
always had problems with psoriasis and eczema.  Leads
me to think I started developing Hashi's around 9
years old.

Six months into being treated with Synthroid I
developed severe skin allergies.  It's gotten so bad
that anything other than Neutrogena facial soap will
burn, causing pinprick blisters which scab over.

Good luck for both of you, don't give up!

Blessings -
Karen



--- Original Message ---
From: "hazyhumid2" <my-destiny@...>
To: hashimotos_syndrome@yahoogroups.com
Subject: [hashimotos_syndrome] New here

><html><body>
>
>
><tt>
>Hi, I just joined this list. I have many questions!
<BR>
><BR>
>Two issues here myself and my daughter. <BR>
><BR>
>First my 7yr old during her school check up they felt
an enlarged <BR>
>goiter. They did labs and her levels were normal but
her antibody <BR>
>level was elevated. In just a little more than a
month we will <BR>
>finally see a ped endro. I suspect she has
hashimotos, since my <BR>
>mother and grandmother also do. <BR>
><BR>
>Me, I feel like crap, seems I always have. I have a
alot of the <BR>
>symptoms of TD but once again my levels come back
&quot;normal.&quot; I ask to <BR>
>have my thyroid tested a lot because of family
history and how i <BR>
>feel. Not once have I been able to get them to test
my antibody <BR>
>levels. I thought this time they did because I
explained about my <BR>
>family and now my daughter...i dont see how it
skipped me.<BR>
><BR>
>I also developed eczema a few weeks ago, at 28
blisters all over my <BR>
>hands, and now my feet. My new psych said that is
related to auto <BR>
>immune and asked if I had my thyroid tested. Odd that
a psych could <BR>
>relate the two but not my DR.<BR>
><BR>
>Just a while ago they told me my t3 t4 were normal,
and my white <BR>
>blood cell was high. It never dawned on me until then
that it always <BR>
>comes back that way, my WBC is always a little high?
Could that be <BR>
>related to an autoimmune disease? <BR>
><BR>
>Does anyone know what the test is called for the
antibody? Also I <BR>
>have my daughters results and I am trying to figure
out how elevated <BR>
>it is. <BR>
><BR>
>Is it possible to feel like crap and have normal t3
t4?<BR>
><BR>
>See with my mom it started with hashi, an later turn
to hypo.<BR>
><BR>
>OH, I also have an ultrasound next tuesday, doc felt
a nodule. I dont <BR>
>feel it and neither did the different doc i saw
monday. still going <BR>
>to get it done. <BR>
><BR>
>Thanks! Sharla <BR>
><BR>
></tt>
>
><br>
>
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#22 From: tim neal <tneal3820@...>
Date: Thu Sep 4, 2003 7:50 pm
Subject: Re: New here
tneal3820
Offline Offline
Send Email Send Email
 
hello Sharla-
since diagnosed  with hashimotos--  the only thing i've  done about it was  take  synthroid..
i have exibited  the typical symptoms--thinking maybe it was  mid- life  crisis  or puberty-
my mother  and father  died in 1988--same  year--same cancer in same organ-(pancreas)-mom  had a  goiter but  they didn't worry about it--anyway--i'd like to know about the immune system--like  the connection in  HTLV I and II  ---not  III   the virus that is connected to the aids virus..if leukemia is related and the part the thyroid plays into all this..
anyway-  hang in there--keep in touch
Tim  from Georgia
 
--

hazyhumid2 <my-destiny@...> wrote:
Hi, I just joined this list. I have many questions!

Two issues here myself and my daughter.

First my 7yr old during her school check up they felt an enlarged
goiter. They did labs and her levels were normal but her antibody
level was elevated. In just a little more than a month we will
finally see a ped endro. I suspect she has hashimotos, since my
mother and grandmother also do.

Me, I feel like crap, seems I always have. I have a alot of the
symptoms of TD but once again my levels come back "normal." I ask to
have my thyroid tested a lot because of family history and how i
feel. Not once have I been able to get them to test my antibody
levels. I thought this time they did because I explained about my
family and now my daughter...i dont see how it skipped me.

I also developed eczema a few weeks ago, at 28 blisters all over my
hands, and now my feet. My new psych said that is related to auto
immune and asked if I had my thyroid tested. Odd that a psych could
relate the two but not my DR.

Just a while ago they told me my t3 t4 were normal, and my white
blood cell was high. It never dawned on me until then that it always
comes back that way, my WBC is always a little high? Could that be
related to an autoimmune disease?

Does anyone know what the test is called for the antibody? Also I
have my daughters results and I am trying to figure out how elevated
it is.

Is it possible to feel like crap and have normal t3 t4?

See with my mom it started with hashi, an later turn to hypo.

OH, I also have an ultrasound next tuesday, doc felt a nodule. I dont
feel it and neither did the different doc i saw monday. still going
to get it done.

Thanks! Sharla



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#21 From: "hazyhumid2" <my-destiny@...>
Date: Thu Sep 4, 2003 4:00 pm
Subject: New here
hazyhumid2
Offline Offline
Send Email Send Email
 
Hi, I just joined this list. I have many questions!

Two issues here myself and my daughter.

First my 7yr old during her school check up they felt an enlarged
goiter. They did labs and her levels were normal but her antibody
level was elevated. In just a little more than a month we will
finally see a ped endro. I suspect she has hashimotos, since my
mother and grandmother also do.

Me, I feel like crap, seems I always have. I have a alot of the
symptoms of TD but once again my levels come back "normal." I ask to
have my thyroid tested a lot because of family history and how i
feel. Not once have I been able to get them to test my antibody
levels. I thought this time they did because I explained about my
family and now my daughter...i dont see how it skipped me.

I also developed eczema a few weeks ago, at 28 blisters all over my
hands, and now my feet. My new psych said that is related to auto
immune and asked if I had my thyroid tested. Odd that a psych could
relate the two but not my DR.

Just a while ago they told me my t3 t4 were normal, and my white
blood cell was high. It never dawned on me until then that it always
comes back that way, my WBC is always a little high? Could that be
related to an autoimmune disease?

Does anyone know what the test is called for the antibody? Also I
have my daughters results and I am trying to figure out how elevated
it is.

Is it possible to feel like crap and have normal t3 t4?

See with my mom it started with hashi, an later turn to hypo.

OH, I also have an ultrasound next tuesday, doc felt a nodule. I dont
feel it and neither did the different doc i saw monday. still going
to get it done.

Thanks! Sharla

#20 From: tim neal <tneal3820@...>
Date: Thu Sep 4, 2003 12:35 pm
Subject: Re: Re: thyroiditis??whats the difference/
tneal3820
Offline Offline
Send Email Send Email
 
hi greg--i've  been  taking synthroid  for several years--50=mg..a  small  dose  compared to what my wife  takes--she  doesn't have  hashimotos==i  do--go  figure-
i do know  it  takes  a  while  to see  any results-...  I'm not familiar  with  amour thyroid-
i  had  and  have  the  same  symptoms--but  not  even sure why  mine is  considered  hashimotos  and  wifes isn/t--
take  care-
Tim

Greg Mauser <g_mauser@...> wrote:
I was diagnosed with Hashimoto's a couple of months ago.  I knew something was wrong with me but couldn't find anything for years...even an endocrynologist didn't find it.  A naturopath finally discovered it and now I am taking armour thyroid.  I haven't noticed any improvements in symptoms yet; depression (grouchy as hell), intolerance to cold, dry eyes/mouth, droopy eyelids, chronic fatigue, etc. etc.  So I'm wondering if taking thyroid medication really helps.  Any improvement?

Cindy Lee <texasbluebonnets@...> wrote:
>
Does your husband give blood--and has he been checked for  HTLV -I  and HTLV-II   ?<
 
Well he has been diagnosed with hashimotos and has a goiter and gets his blood checked regularly, but I'm not sure what this is that your asking me. I don't know what that is. Is this something thatcommonly occurs with hashimotos?
 
 
Cindy


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#19 From: Greg Mauser <g_mauser@...>
Date: Wed Sep 3, 2003 10:41 pm
Subject: Re: Re: thyroiditis??
g_mauser
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I was diagnosed with Hashimoto's a couple of months ago.  I knew something was wrong with me but couldn't find anything for years...even an endocrynologist didn't find it.  A naturopath finally discovered it and now I am taking armour thyroid.  I haven't noticed any improvements in symptoms yet; depression (grouchy as hell), intolerance to cold, dry eyes/mouth, droopy eyelids, chronic fatigue, etc. etc.  So I'm wondering if taking thyroid medication really helps.  Any improvement?

Cindy Lee <texasbluebonnets@...> wrote:
>
Does your husband give blood--and has he been checked for  HTLV -I  and HTLV-II   ?<
 
Well he has been diagnosed with hashimotos and has a goiter and gets his blood checked regularly, but I'm not sure what this is that your asking me. I don't know what that is. Is this something thatcommonly occurs with hashimotos?
 
 
Cindy


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#18 From: "Cindy Lee" <texasbluebonnets@...>
Date: Mon Sep 1, 2003 1:51 pm
Subject: Re: Re: thyroiditis??
texasbluebon...
Offline Offline
Send Email Send Email
 
>
Does your husband give blood--and has he been checked for  HTLV -I  and HTLV-II   ?<
 
Well he has been diagnosed with hashimotos and has a goiter and gets his blood checked regularly, but I'm not sure what this is that your asking me. I don't know what that is. Is this something thatcommonly occurs with hashimotos?
 
 
Cindy

#17 From: tim neal <tneal3820@...>
Date: Mon Sep 1, 2003 2:59 am
Subject: Re: Re: thyroiditis??
tneal3820
Offline Offline
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cindy--
I've work in mental healt as a  counselor  many years--up unto recently i have had the patience of a  saint--take nothing personally--been called everything imaginable--
i give hashimotos the credit for making me less  sensitive--more irritable--and irratating.i told my dr that i felt like a  woman--that is--trouble  making decisions--moody----
sweats
not any thing wrong in being a  woman mind  you  but--i could see  a  definite change in my out- look and demeanor--i suppose thats a sigh  of  'H'--
Does your husband give blood--and has he been checked for  HTLV -I  and HTLV-II   ?
auto-immune stuff  may be related and i'm curious about myself--too--
thanks  Tim

texasbluebonnets1958 <texasbluebonnets@...> wrote:
Hi Tim,

my husband also has an inward goiter.  His doctor found it while
doing a routine physical on him before scout camp one summer.

he also takes synthroid. Its strange you mention cold, my husband
always was sensitive to cold when he was younger. now it seems that
he sweats alot at night in bed. Do you have that also?

I read in a book once too that people with this disorder sometimes
suffer with grouchyness. I wonder about that too, his grouchyness
has seemed to increase now that hes older and that he is having to
take synthroid. I wonder if anyone else knows anything about this
aspect of it. a lady that used to live next door to us had this
disorder and her and her husband ended up divorcing because of her
change in attitude.

cindy



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#16 From: "texasbluebonnets1958" <texasbluebonnets@...>
Date: Mon Sep 1, 2003 12:46 am
Subject: Re: thyroiditis??
texasbluebon...
Offline Offline
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Hi Tim,

  my husband also has an inward goiter.  His doctor found it while
doing a routine physical on him before scout camp one summer.

he also takes synthroid. Its strange you mention cold, my husband
always was sensitive to cold when he was younger. now it seems that
he sweats alot at night in bed. Do you have that also?

  I read in a book once too that people with this disorder sometimes
suffer with grouchyness. I wonder about that too, his grouchyness
has seemed to increase now that hes older and that he is having to
take synthroid. I wonder if anyone else knows anything about this
aspect of it. a lady that used to live next door to us had this
disorder and her and her husband ended up divorcing because of her
change in attitude.

cindy

#15 From: tim neal <tneal3820@...>
Date: Sun Aug 31, 2003 7:51 pm
Subject: Re: thyroiditis??
tneal3820
Offline Offline
Send Email Send Email
 
hi cindy--
i've had hashimotos for a  while--and take synthroid
don't know that much about it
aparently its not  that un comon--except no one can tell me  much.
i have an inward goiter
pancreatic cancer runs in my family so i am concerned about the connection.that and i have HTLV1  and HTLV II--not the virus that causes aids  bynthe way--but i'd like to know if there is a connection..my symptoms started out as intollance to cold--can't make up my mind about things..
if i can answer any questins-feel free to e-mail-
thanks  TIM

texasbluebonnets1958 <texasbluebonnets@...> wrote:
my husband has been diagnosed with hashimotos thyroiditis, is this
the same disorder that this group refers to? can someone help tell
me about some of the side effects of having this?

cindy



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#14 From: "texasbluebonnets1958" <texasbluebonnets@...>
Date: Sun Aug 31, 2003 5:03 am
Subject: thyroiditis??
texasbluebon...
Offline Offline
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my husband has been diagnosed with hashimotos thyroiditis, is this
the same disorder that this group refers to? can someone help tell
me about some of the side effects of having this?

cindy

#13 From: "babynoek" <babynoek@...>
Date: Fri Jul 18, 2003 12:24 pm
Subject: Newbie
babynoek
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Hi All,
I was diagnosed with Hashi's about 2 years ago and have been treated
with Levothyroid ever since. My doctor just increased my dose and for
the first time in ages I feel like I have some energy. It'll be
interesting to see how long it lasts! :)

Anyway, I just wanted to say hi.

#12 From: "Engr. Paola D.Mbezula." <deszul_1@...>
Date: Wed Jul 10, 2002 11:08 pm
Subject: Greetings
deszul_1@...
Send Email Send Email
 
STRICTLY PRIVATE & CONFIDENTIAL

Dear ,

       Request For Business Partnership.

   With great pleasure, I write to solicit for your
assistance in a matter that can be of mutual benefit to us. I only pray
that you read through carefully and respond as promptly as possible.

Precisely, on the 25th of May 2000, the Ministry of Minerals and Energy in
South Africa where I work as a Director of Auditing & Project
Implementation,received Presidential irrevocable circular Order requesting
the Ministry to compile and forward the list of all past Foreign
Contractors, whose contract payments are pending
since the period of the immediate past regime of Dr. Nelson Mandela and the
present regime. The purpose of this exercise was for the present South
African elected government to pay foreign contractors all debts owed, so as
to maintain good relationship with other foreign Governments and
non-Governmental financial agencies.

In light of the above, my colleagues and I, duly
assigned with the duty to compile this list of the
past contractors, decided to include a non-existing Company name with a
bill of US$29.6, with other Company names and their respective bills for
payment approvals. Our intended plan is to create the impression that
(Guilder Mining SA Pty) which is the non-existing Company also carried out
contractual works of supply to the Ministry as well as others.

With the cooperation of Top Government officials in the Ministry and two
senior colleagues of mine in the Ministry, I was therefore assigned to
contact a trusted and reliable foreign based businessman,furnish him with
the appropriate documents, in laying claim to this $29.6Million being
payment for contract work. Payment shall then be transferred upon approval
to a safe account as would be provided by you. In other words, if you
accept to be our partner then you
shall be considered, given the pertinent
documentations to have been awarded a contract already been executed by you
for which your Company shall be paid the sum of US$29.6Million.

Please be informed that with the South African
Government monetary policy, Government officials /
employees are not allowed to operate or own bank
accounts abroad hence our decision to seek a foreign partner.

I also have the authority of my colleagues involved to negotiate your share
and benefit of the US$29.6M after a successful transfer into your account.
For further information, please contact us via the email
address:deszul_1@...

Thanks for your anticipated cooperation.

Regards,
Engr. Paola D.Mbezula.
deszul_1@...

#11 From: tim neal <tneal3820@...>
Date: Fri Mar 29, 2002 1:20 pm
Subject: Re: Is there a better Hashimotos group?
tneal3820
Offline Offline
Send Email Send Email
 

i too would like to know about Hashimotos and what to expect-it was diagnosed several years ago and really don't know a whole lot  about--thanks for the e-mail--Tim

  anymountain <anymountain@...> wrote:

I'd like to stay abreast of what is going on with my condition and
what other people are experiencing.



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#10 From: "anymountain" <anymountain@...>
Date: Mon Mar 25, 2002 7:41 am
Subject: Is there a better Hashimotos group?
anymountain
Offline Offline
Send Email Send Email
 
I'd like to stay abreast of what is going on with my condition and
what other people are experiencing.

#9 From: "J. A." <asher8@...>
Date: Tue May 8, 2001 2:18 pm
Subject: Anyone still here?!
asher8@...
Send Email Send Email
 
Hi,I am Jennifer,30 yo.I was diagnosed with this in 1996 when my
youngest was about 5 mos old.I thought I was still feeling crappy
from having a baby but then the goiter appeared.
I had been doing really good until a couple of months ago.
In Dec I had surgery to reverse the tubal ligation I had in '95 after
my 4th was born.I quit smoking and coffee at the same time.Everything
was still good.
Mar 8 was my last period.That's not good when you are TTC!Well,I had
started feeling REALLY CRAPPY so I thought it was time to have my
thyroid checked.I quit going to the endo because it is soo far away
and the dr's here can test my thyroid levels.I may have to start
going back!Anyway,I went to the hospital to get a copy of my
results.The dr nly did the T4 and TSH.He wouldn't do anything else
(this was the first time I had ever seen this dr)...My T4 was
7.1,reference range was 4.5-12.5
My TSH was 10.26...reference range was 0.40-5.50.
I raed that in order to get and stay pregnant,the TSH level needs to
be 2.0 or under.
I want to try either Unithroid or Armour.This dr didn't seem very
enthused about Armour AT ALL!He said why take it if it isn't going to
work.That irritated me somewhat.How does he know which medication is
going to help any certain individual?!
Getting pregnant is being put on a back burner for now...I just want
to feel good again.These past few weeks I have felt like I was losing
my mind!The forgetfulness and just foggy brain!My kids and dh don't
understnad that it is because of this thyroid and I think they get
fristrated with me at times.I can't blame them...I get frustrated at
myself!And the irratibility....whewwww!They are ready to run me
off..LOL...
Have a great day,
Jennifer

#8 From: "Kristy Jones" <krjones2423@...>
Date: Thu Nov 9, 2000 1:59 pm
Subject: TRH Test
krjones2423@...
Send Email Send Email
 
For those of you that still feel bad even though your TSH is 'normal'
ask your doctor to do the TRH test. This test was the mainstay before
the TSH test. The TRH stimulates the pituitary and can show pituitary
malfunction. Check out the web - some interesting articles are
written.

#7 From: krjones2423@...
Date: Tue Nov 7, 2000 3:48 pm
Subject: Re: Talk to me!
krjones2423@...
Send Email Send Email
 
Hi,
I was diagnosed with Hashimoto's in 1992. I too still felt bad. What
you need to do is do some reasearch on the t3/t4 combination treatment
and make an appointment with an endocrinologist to discuss potential
benefits.  Not all endo's are on board with this treatment, but you
can call around. If you are haveing other symtoms, you need to write
them down and when they appeared and discuss them with the endo -
examples are migraine headaches, diabetes, irregular sleep, irregular
menstral cycles (for women), lactation, weird hair growth, the list
goes on. TSH is released by the pituitary which controls your thyroid.
It is important to note any other symptoms to make sure that other
hormones are properly regulated. Your tiredness may or may not be
related to your thyroid and can be caused by other things.

Good luck!

Kristy


--- In hashimotos_syndrome@e..., elajohnson@y... wrote:
>
> I was diagnosed with this syndrome three years ago.  At the time, I
> was extremely close to lapsing into a coma because my levels were so
> messed up.  Since then I have been taking Synthroid to control these
> levels.  However, I always feel bad.  Is there anything that will
> help?

#6 From: elajohnson@...
Date: Sun Oct 29, 2000 11:50 pm
Subject: Talk to me!
elajohnson@...
Send Email Send Email
 
I was diagnosed with this syndrome three years ago.  At the time, I
was extremely close to lapsing into a coma because my levels were so
messed up.  Since then I have been taking Synthroid to control these
levels.  However, I always feel bad.  Is there anything that will
help?

#5 From: benson_dm@...
Date: Sat Aug 19, 2000 3:09 am
Subject: Hashimotos
benson_dm@...
Send Email Send Email
 
Hi  I was diagnosed with Hashimotos a couple years ago. I also have
Fibromyalgia and Raynauds so it has been hard to know why anything is
happening in my body. I have questions and would love to talk to
anyone that understands.

#4 From: "Shelia Sulkowski" <mikews@...>
Date: Mon Jul 10, 2000 8:50 pm
Subject: A Hashie from Michigan
mikews@...
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Hello you three lonely souls.

I was diagnosed with Hashimoto's almost a year ago.  Tomorrow, my
mother is having surgery to remove a large goiter....so it runs in
the family.

I have the usual symptoms these days - years ago I suffered horrible
depression and was actually hospitalized twice.  I recently learned
that an underfunctioning thyroid can contribute to depression.

However, today, I feel much better, mentally.  I realize that my
absent-mindedness, lack of focus, and sore aching muscles are
symptoms of an organic disease - not moral weakness or laziness.  I
have decided not to be hard on myself and to baby me when I need it
or kick myself in the pants when I need it!

Yes, I am tired and spend most of the day needing a nap, no, I don't
get a lot done, but - compared to other diseases I guess I can cope
with this.  Of course, I am lucky in that I am a stay-at-home mom.
My youngest is 11 - so I can nap if I need too.  I really feel for
those of you who can't.  I was working 50 hours a week when I was
going through those dark, depressed years.  My doc feels I was
probably HYPERthyroid at that time and my poor little gland burned
itself out !!

Anyway, while I understand this disease is rare - it is the most
common cause of hypothyroidism....there are a lot of us out there...

TO THE FOUNDER:  So sorry about your boys....in 1977 I had a full-
term baby boy with anecephaly occipital encephelitis (sp?) which
means the bone at the back of his skull never formed and his brain
was exposed and had extruded through the opening.  I believe this
defect is related to Spina Bifida.....anyway, the autopsy showed that
his thyroid was malformed.......could my thyroid condition have
contributed to this, I wonder?  I am not blaming myself.  I took good
care of the both of us, and no one, not even my obgyn, suspected
anything was wrong until time to give birth...

Good luck to you all.....it will get better.

shelia

#3 From: "Shelli " <MrsSrClyde@...>
Date: Sun Jun 11, 2000 4:41 pm
Subject: Hello
MrsSrClyde@...
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Hi!! I'm new to the group and just wanted to say hello and see if
there is anyone out there???

Shelli

#2 From: "David Hughes" <davidhu@...>
Date: Sat Mar 11, 2000 8:14 pm
Subject: Re: Is this so rare?
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Marnie,

Unfortunately you are the only member to date other than myself.  I
personally do not have "Hashimoto's syndrome."  I am just the support
eGroups founder.

I have been working at creating a site that would make it possible for
anyone with any rare disease to find others to make friends, share
information and provide support with.  There are currently over 700 support
eGroups in my community.  You can visit my web page by going to the
following address:

http://www.rarediseases.cc

I hope that others with "Hashimoto's syndrome" will soon find this place and
begin sharing with you.  I am working to promote the "Rare Disease
Community" the best that I can when I am able.  It takes up alot of my time.

My wife and I have two sons both born with a rare genetic disorder known to
affect only 110 boys world wide. It is a disorder that only affects boys.
Both sons are mentally and physically challenged as well as being nonverbal.

Anyway,  I hope others will soon find you.

David Hughes, Founder
Rare Disease Support Community
http://www.rarediseases.cc
Email: rdsc@...

______________________________________________________

#1 From: "marnie" <marniea@...>
Date: Sat Mar 11, 2000 3:44 am
Subject: Is this so rare?
marniea@...
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Am I the only one here?  Guess that is what I get for having a really
rare disease.

Marnie

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