Hi Claire, I'm VERY behind on my emails, but wanted to say CONGRATULATIONS! Have you told anyone of your pregnancy??? How did people react? I was very lucky...
Thanks for your encouraging words. People have been very supportive around here--many of them assumed that last time I just had an early miscarriage, since I...
I had a my first son on May 2, 2004 with abnormalities. Due to miscommunication the dr.s did not run any tests on my son. He died 4 hours later. Since I...
dollygarcia333
dollygarcia333@...
Jul 13, 2004 9:50 pm
42
I am sorry to hear about your son. I don't think anything prepares you to see your own baby die. We also had a baby with Fryns syndrome back in September of...
I can't tell you how sorry I am that you lost your son and that you are going through this terrible time. If you are anything like me, you have so so many...
Dan and Michele Schif...
dmschiff@...
Jul 14, 2004 3:18 am
44
Well I have not been on for awhile and just came across all the new happenings here. First Congrats to those of you who found out you are pregnant or have just...
erintfrog
erinrae1979@...
Aug 9, 2004 2:17 am
45
Hi Claire, I'm sorry for taking so long to reply. I've been trying to change my email address for this group but it has not worked yet, so I'm replying from...
Erin, Thinking of you at this hard time. I think your reminder to us that we are lucky if we have children is a good reminder. When I am stressed, I just ...
Amen to that! I am trying to enjoy this pregnancy, and not worry about what may or may not happen; it's not in my control, anyways. I worried so much during my...
Actually for me the adoption process was really easy. Let me explain! Ethan is biologically my 3rd cousin. His biological mother decided when he was 6 months...
erintfrog
erinrae1979@...
Aug 12, 2004 12:56 am
49
I AM A 25 YEAR OLD MOTHER OF A 6 YEAR OLD SON WHO WAS DIAGNOSED WITH THE FRYNS SYNDROME. MY SON WAS BORN WITH THREE HOLES IN HIS HEART AND A DIAPHRAMATIC...
jenn_n_lillington
jenn_n_lillington@...
Aug 24, 2004 8:52 pm
50
You must be so worried about your son-- I can't even imagine how difficult this must be for you. How is he doing at home? I don't have any surviving children,...
Hi Jenn, I do not have a surviving child of fryns either. Can your doctor refer you to any other families dealing with the same issues you are? Are you...
Jenn, I believe Kerry has given you the best advice that I can think of...Dr. Anne Slavotinek. I hope you get the help that you need. I'll be thinking about...
Dan and Michele Schif...
dmschiff@...
Aug 25, 2004 9:33 pm
53
Clarissa, How did the ultrasound go on the 23rd???! How far along are you at this point? Kerry...
Whew... it's been so busy! Thanks for asking, Kerry. Had the ultrasound (13 weeks, "cheapo" machine) and "everything appears grossly normal" according to Dr. ...
Well, we just came back from the big terrifying city of Seattle, and our ultrasound report indicated a normal, healthy baby boy. I was so shocked, and still AM...
YAHOOOOOOOOOOOO! A healthy baby boy...such good news! You sound on cloud 9 as you should be. I'm so, so happy for you!!! I can't believe your ultrasound was...
... believe ... the ... effusion ... of ... palate, ... toes, ... discussion ... Dear Michele, I am so sorry to hear of your loss. I'm new to this group and...
morna_macleod
morna_macleod@...
Sep 28, 2004 6:50 pm
58
... believe ... the ... effusion ... of ... palate, ... toes, ... discussion...
morna_macleod
morna_macleod@...
Sep 28, 2004 6:53 pm
59
Morna, Hi! Thanks for your response. I too am sorry for your loss. I can't imagine losing your baby after 6 months. I would love to hear your story....
Hi. I found out on January 26th that my baby boy had several abnormalities. We drove to Pittsburgh for more tests that confirmed the Diaphragmatic Hernia, Club...
Hello, and I am so sorry about your little son!!! It is so hard to know what to say. Somehow nothing comes out right. It is so shocking to find out something...
I am sorry for your loss but at the same time happy for you that you know that your son will not know anymore pain related to Fryns. I have also experienced...
I have just reread your email and realized that my response to it was misleading. We did not carry our baby to term, but decided to deliver her early, at 21 ...
I'm so sorry to hear of the loss of your son, Carter. You mention that you went to school and now help other families through their grief. What is your job?...
... Hi Carterīs mum, Iīm so, so, sorry to hear of your loss. Nobody, who hasnīt gone through something like this, can understand how it feels. I feel...
morna_macleod
morna_macleod@...
Oct 7, 2004 10:28 am
66
Congradulations to all of you who have found the courage to get pregnant again. I went for my yearly thing today and talked with my doc about birth control....
It IS scary to try again!!! I don't remember who said it on here, but they said it seemed like playing Russian roulette... that really resounded with me. I...
It IS scary to try again!!! I don't remember who said it on here, but they said it seemed like playing Russian roulette... that really resounded with me. I...
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