I am really sorry to hear about your friends baby. I can help you with what I know. There are 14 Fryns identifiers, our daughter was born with 12. Most of...
netwhittle
vincewhittle@...
Jul 8, 2003 12:56 am
18
I am really sorry to hear about your friends baby. I can help you with what I know. There are 14 Fryns identifiers, our daughter was born with 12. Most of...
netwhittle
vincewhittle@...
Jul 8, 2003 12:56 am
19
i work with a girl who is 13 who has fryns. although physically and mentally delayed she is an awesome girl. she's had 33 surgeries and as far as i know is the...
casey
Caseycandraw@...
Jul 22, 2003 9:46 am
20
That surprises me. Dr. Fryns told me in an email that the oldest person alive with fryns died at age 9. What is her mental and physical capabilities? Thank...
I am sorry I haven't let you all know. I contacted Dr Fryns who contacted the genticist working with Tyler. He is home, has been since the 10th of July. He is...
hi everyone. im new to the group. Im 21 years old and in my first pregnancy my son was still born at 27 weeks. we was diagnosed with fryns after an autopsy. He...
Hello to myangeldaniel, I'm sorry this has taken me so long to reply. Did you just receive your autopsy results back? I'm so sorry for your loss. Did you...
Well, I see a couple of familiar names... we had a baby with Fryns syndrome back in September, named Robin, and I guess in some ways I am just now dealing with...
Well, I see a couple of familiar names... we had a baby with Fryns syndrome back in September, named Robin, and I guess in some ways I am just now dealing with...
Hello, I am new here too. My son, Logan, was born with Fryns syndrome in 2001. I can't believe sometimes that almost 3 years have gone by since his birth! He...
erintfrog
erinrae1979@...
May 22, 2004 12:28 pm
28
Well, I know what you mean about being angry, sometimes... I like to think it's settling down, but time and again I'll see some "mother" screaming at her kids...
Hi Claire, I'm really behind on my email but wanted to write. I remember writing to you before. I can completely relate to your lack of patience around...
Erin, Did your doctor give you anything on fryns syndrome? I had a really difficult time but I do have a bunch of articles. I was a bit obsessed with finding...
Dear Kelly-- I am so happy to hear from you again! We are still trying, albeit sort of lacksadaisically. I'm not really into the idea of monitoring my cervical...
I would love any info you have. The father of my son (I am no longer with. Unfortunatly having Logan split us up) went on to have a little girl and needs info...
erintfrog
erinrae1979@...
May 29, 2004 1:13 am
33
Look into it a little more, cause with Tricare they are not allowed to bill the patient. Fight with them till you at least get them to pay something because...
erintfrog
erinrae1979@...
May 29, 2004 1:42 am
34
Claire, The ovulation sticks are the easy way to track if you don't want to do temps. The second time around for me (after Anthony), I was very frustrated when...
kerry, my name is cristio. I had a little boy with fryns on september 11th. I would appreciate it if you coul dsend me the articles that you have. I requested...
Well, we got a big, fat, positive pregnancy test yesterday... I told my husband not to tell anyone till we know more, but I have been pretty much telling ...
Clair, Congratulations on your pregnancy. I have been reading old e-mails lately and trying to catch up on missed conversations from this site. I'm a little...
Dan and Michele Schif...
dmschiff@...
Jun 23, 2004 10:51 am
39
Hi Claire, I'm VERY behind on my emails, but wanted to say CONGRATULATIONS! Have you told anyone of your pregnancy??? How did people react? I was very lucky...
Thanks for your encouraging words. People have been very supportive around here--many of them assumed that last time I just had an early miscarriage, since I...
I had a my first son on May 2, 2004 with abnormalities. Due to miscommunication the dr.s did not run any tests on my son. He died 4 hours later. Since I...
dollygarcia333
dollygarcia333@...
Jul 13, 2004 9:50 pm
42
I am sorry to hear about your son. I don't think anything prepares you to see your own baby die. We also had a baby with Fryns syndrome back in September of...
I can't tell you how sorry I am that you lost your son and that you are going through this terrible time. If you are anything like me, you have so so many...
Dan and Michele Schif...
dmschiff@...
Jul 14, 2004 3:18 am
44
Well I have not been on for awhile and just came across all the new happenings here. First Congrats to those of you who found out you are pregnant or have just...
erintfrog
erinrae1979@...
Aug 9, 2004 2:17 am
45
Hi Claire, I'm sorry for taking so long to reply. I've been trying to change my email address for this group but it has not worked yet, so I'm replying from...
Erin, Thinking of you at this hard time. I think your reminder to us that we are lucky if we have children is a good reminder. When I am stressed, I just ...
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