I have a 13 month old son with Angelman Syndrome (del+) and have an interest in conversing with others that have infants with AS, either through messenger or...
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mpwife00
Oct 3, 2001 5:38 am
My daughter is 4 years old with microcephaly, severe developmental and physical delays, and then some. I was researching syndromes that might fit her in hopes...
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mpwife00
Oct 6, 2001 6:23 am
I created a web site just for my daughter, listing all her problems and abnormalities along with pictures of them in hopes someone will see them and have some...
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starr5959
Oct 9, 2001 1:45 pm
Hello, we also have a two year old with developeental delay and no speech, e had her tested to angelmans and it was normal , so that wasnt it, the parents i...
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angelmum01
Oct 9, 2001 7:58 pm
Karrie,<br>Don't beleive everything you read about the kids with AS. Your best sourse of information is talking to other AS parents. Have you tried the list...
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wsj88
Oct 10, 2001 3:50 am
Welcome Karrie! I think you may be on the right track. Although my son does NOT have vocabular I do know of several AS children that do have some speech. Maybe...
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wsj88
Oct 10, 2001 4:04 am
Anotehr thought that I have heard others talk about is a syndrome that is called Rett's Syndrome. From my understanding it is only in girls and it resembles AS...
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angelmom1175
Oct 11, 2001 8:59 pm
Hi,<br>My name is Joni and I am the mother of a 26 year old daughter Stacy who has Angelman Syndrome. We are experiencings some major behavior problems with...
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angelmum01
Oct 12, 2001 6:25 pm
Boy, I couldn't tell you a thing, my angel is only 7.5 and we have not gone through any of this tuff yet, but I may be asking these same questions later ...
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fersu_jobai
Oct 13, 2001 10:33 pm
Hi all. It has been awhile since I have written. I have a 17 year old Angel. We are trying now to find help to take care of him in our home. I interviewed a...
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fersu_jobai
Oct 15, 2001 1:06 pm
I have an older Angelman Syndrome boy. He is 17. He does have a few negative behaviors like hitting, grabbing, spitting and yelling. We are using Risperdal to ...
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angelmom1175
Oct 15, 2001 9:56 pm
Hi Susan,<br>Thanks for the infor. Stacy is on Valproic Acid for the seziures she hasn't had in 24 years. However, the Doctors are reluctant to take her off of...
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fersu_jobai
Oct 18, 2001 10:04 am
Hi Joni,<br>I want you to know that your decision to place Stacy in a group home was a brave and right decision. You have got to do what is right for your...
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camcl2
Nov 14, 2001 8:56 pm
Hello All,<br><br>I am a mom of an 8 year old boy who I suspect has AS. I've never heard of this before yesterday, I have my pediatrician reviewing all of my...
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angelmum01
Nov 14, 2001 11:18 pm
Hi, My daughter has a clinical diagnosis of AS, here area few characteristics that she doesn't have. There are a few other places that you can join that are ...
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fersu_jobai
Nov 17, 2001 1:44 pm
Hi,<br>Try 12 years before getting a correct diagnoses. Our Kris is 17 years old. For 12 years we thought he had cerebral palsy until a perfect stranger ...
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ronandalyson
Apr 8, 2002 2:56 pm
I have a seven year old daughter with Angelman Syndrome. She recently had her first seizure. The Neurologist has recommended putting her on medication....
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wsj88
Apr 9, 2002 4:35 am
... Ron, I have not had experience with this seizure medication, but find that the internet is a wonderful resource. Have you posted on the listserv? There...
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mikenmadisonsmom
mikenmadison...
Apr 17, 2002 5:07 pm
Hi, I have a 3.5 yr old and we're just looking into whats wrong with him. My doctor seems to think its mild autism but reading a little about angelman syndrome...
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cherrycherry28
Apr 17, 2002 6:31 pm
Tracy: Have you been to www.angelman.org? There is a lot of useful information there. There is also a lot of outdated (and scary) material regarding Angelman...
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angelmum01
Apr 18, 2002 12:26 pm
Hi, YES!!!!! My daughter is concidered high functioning, yet she has no vocabulary, I know of a clinical girl that has a good vocabulary and I positive girl...
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nellymatt
Apr 25, 2002 8:28 pm
Dear familiesofangelmansyndrome Members, I am a graduate student in Speech Language Pathology. I am doing a presentation on Angelman Syndrome for one of my...
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Eric Butzow
skbutzow
May 7, 2002 2:07 pm
My name is Sandi and I have a 16month old son who has been diagnosed deletion positive. We are starting a research study this week at Children's Hospital in...
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Kathy Leonard
candlecrazy_...
May 7, 2002 3:01 pm
Hi Sandy, My name is Kathy, welcome to the group. Are you also on the other AS list? That is a big one with lots of good advice. There is also a chat available...
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Eric Butzow
skbutzow
May 8, 2002 5:33 pm
Hi Kathy, Thanks for the reply. What is the name of the other group? I am definitely interested in the chat on Wed. evenings. I am in the process of getting...
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Kathy Leonard
candlecrazy_...
May 9, 2002 12:40 am
Hi Sandy, I sent the invitation to the chat, it should come from MSN communities. Yes both my angels get children's special health care. I can't say it helps...
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Kelley Smith
kds8465
May 13, 2002 3:23 am
Hi my name is Kelley and my daughter is 5, with deletion positive. I Would like to know more about the research that is going on. I am intersested in any type...
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wsj88
May 13, 2002 2:24 pm
Hi Kelley, Welcome to the group. My son is almost 10 and deletion positive also. I have not been involved in any of the research as of yet, so I can't really...
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familiesofangelmansyn...
familiesofangelmansyn...
Jun 6, 2002 3:27 am
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the familiesofangelmansyndrome group. File...
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patty153
Aug 25, 2002 2:20 pm
Hi, I am a special educator of seventeen years. This year will be my first year teaching children in a "Life Skills" class. That's what we call the class in...
