HELLO , <br>OUR LITTLE GRANDDAUGHTER ALEXIS-MARIE WAS GIVEN THE BLOOD TEST YESTERDAY TO CHECK FOR ANGELMANS, NOW WE WAIT.....HOW LONG DID ANY OF YOU WAIT TO ...
HELLO! I POSTED SOME PICTURES FOR YOU TO SEE, HOPE THEY MAKE YOU SMILE TODAY, WE WILL WAIT FOR THE TEST RESULTS AND THEN SEE WHAT HAPPENS,,,,<br>ALEXIS WILL...
It was two weeks later after our son William was tested for Angelman Syndrome that they sent us a letter and a packet of info on Angelman Syndrome telling us ...
HI! Did i read your posr right? it only tooktwo weeks to get the results back? wnder why they told us it would be months before we got anything back??? Maybe...
My daughter is 14yo. We knew at 2 months she had delays but didn't know why. We've had and MRI, EEG, Fragile X testing, and a few years ago cytogenetics ...
HI Flash,,, dont know much about PWS but i know lots about angelmans, we thought our little granddaughter had it but the test was normal so we are stil ...
My Name is Andrea Glossenger and i think this Club is a great Idea. My sons name is Dean, he was diagnosed with AS 4 Years ago. He is 7 now.We live in N.C . He...
Thanks Don for the invite! Hi Penny! Hi everyone!! I am looking forward to getting to know everyone in here.<br><br>A little about me and my family:<br>I'm...
I was wondering how Don got my email address.<br>I was also wondering how many of you guys are on the listserv. <br>My daughter is 7 clinically dxed and seven...
Would duplication mean possibly that there are two paternal 15's. If that is the case I would call that UPD? That testing would require both parents blood...
Wendy -<br><br>My name is Barb Wilson. I also live in Indiana - Rushville (which is 45 min se of Indy). I have an adopted granddaughter who will be 3 June 16th...
I have heard the term UPD and that very well is the case. We have not gone throw the blood work yet on myself or my husband though. Do you know of other ...
Hi Winna,<br><br>My son Stephen who is also 7 was diagnosed at the<br>age of 31/2 years. He is a clinical dianogsis.<br>So I know what a relief it is to...
Hi Barb~ I live in Portage, Indiana(NW~close to Chicago). I wish I could say that I was going to the comference on July, but finances won't allow it this time....
Hi Wendy,<br>We won't be going to the conference this year either. We are moving from Maryland to New Jersey in a couple of weeks. We did attend when it was ...
Barbara~Good luck with your move. Keep us updated as to how things are going. I am glad that you did get attent one of the conferences. I'm hoping that ...
Hi, my name is Lori. My husband Mark and I live in Fancy Farm, Kentucky with our 2 sons, Jonathan (AS, del+) will be 16 this month, and Matthew is 4 1/2....
Hi everyone! My name is Bonnie and I am the proud mom of two great kids. AJ is my angel and he is 8 and deletion positive and Emily is 4 going on 20 LOL. Winna...
Hi Lori ,<br>We also have a son with AS del+. Kris will be 17 next week. I like talking to other Angelman Parents too. We have a lot to offer those parents ...
Susan - Sure you do have a lot of info for those of us who have contact with younger angels. The angel in my life is Ali who will be 3 June 16th. Just leaving...
Bonnie - Just wanted to say Hi and to let you know that I am from Indiana - 2 hrs. away. My son does live in Louisville at the present time. He just graduated...
Hi, Im Frifoley. I have a daughter with AS who is 6yrs. old her best friend who is 5yrs. old has an extra chromosome #15 her parents were told she could have...
We will have to check that restaurant out. Ya if you are ever here let me know.......I know how our angels are so cute and you can't help but love them. I can...
Hi Barb,<br>Yes, Kris was misdiagnosed until he was 12 years old. The doctors thought he had cerebral palsy. He does have seizures, but they are under control ...
As I have said before my daughter is 7 and clinically diagnosed. In my area I have come across 8 other possible angels, out of those, two now have positive ...
Hi Winna and all who are reading this,<br>This Yahoo club feels more like a one on one experience to me. It is also cool when we get on Yahoo Messenger ...
we have not gone thru with our blood work neither.<br>We are living in N.C, too. we live about 15 min. outside of Asheboro. Were do you live? maybe we be able ...
Thanks for the info. Does Kris have a speaking vocabulary. Ali's speech therapist is sure she says hi and hey. Not sure. She has begun waving hi and bye again....
