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familiesofangelmansyndrome · Families of Angelman Syndrome - A place to talk about Angelman Syndrome

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Welcome to the Yahoo! Message Board for Families of Angelman Syndrome...
80 Nov 26, 2005
6:34 am

melissa
stmissy71
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HI SARAH MY NAME IS MONICA AND I REALLY WANTED TO TELL YOU HOW MUCH I ADMIRE YOUR STRENTH I ALSO AM VERY YOUNG AM 24 WITH THREE KIDS AND MY LITTLEST IS THE...
2 Nov 22, 2005
12:58 pm

Sarah Smith
imaginary62402
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HELLO MY NAME IS MONICA AND I LIVE WITH MY LITTLE ANGEL IN FRESNO CA I WOULD LIKE TO KNOW IF THERE ARE ANY FAM. FROM CALIFORNIA HERE IF THERE IS PLEASE LET ME...
5 Nov 22, 2005
3:03 am

monicacarpio_3
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THANKS EVERYBODY. I THOUGHT WE WERE GOING TO HAVE A PROBLEM W/ THIS. OBVIOUSLY IT'S JUST AN "ANGEL THING".THANKS FOR ALL YOUR RESPONSES. BY THE WAY - ANIYA...
1 Nov 21, 2005
7:12 pm

Yolonda Mclaughlin
ycherisem
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Hi- I have a friend who is moving with her 6 year old Angel to Moorhead Minnesota. It is very close to Fargo North Dakota. Does anyone with Angels live in...
2 Nov 21, 2005
6:09 pm

monica carpio
monicacarpio_3
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Dear Yolanda, My Julie tends to grind her teeth when she was teething and bored. I tell her to stop and distract her with something else. The grinding is bad...
1 Nov 21, 2005
5:02 pm

Cliff Nixon
srfyllynne
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Hi there. Does anyone have experience with Doman training for Angels? Regards Anja and Arthur...
2 Nov 21, 2005
4:53 pm

deletion15mom
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We suspect Angelman's, and are about to test,we have noticed from a previous blood draw she has neutropenia. She didn't have it in her first few months of...
6 Nov 19, 2005
6:21 pm

RM
miroberkel99
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HELLO AND THANKS FOR ALL THE SUPPORT _________________________________________________________________ Express yourself instantly with MSN Messenger! Download...
1 Nov 19, 2005
2:03 am

monica carpio
monicacarpio_3
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HELLO PARENTS OF LITTLE ANGELS I AM IN SEARCH OF YOUR HELP .... I WOULD LIKE SUGGESTIONS ON HOW TO GET ONE OF THE PARENTING MAGAZINES TO WRITE A TOPIC ON...
1 Nov 19, 2005
1:52 am

monicacarpio_3
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Hey There! It's Holly and Angel Aden-age 4 in South Carolina If you are living anywhere near Greenville, SC I wanted to let you know that Greenwood Genetics...
1 Nov 15, 2005
3:52 pm

deletion15mom
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Hi, I'm Holly and have an angel age 4 (deletion positve 2 yrs ago). I live in South Carolina and feel real lucky to have a Shriner's hospital, genetics lab,...
3 Nov 15, 2005
3:26 pm

deletion15mom
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Are there any parents on here of older teens or young adults that would be willing to share some strategies with me? My husband and I are in the process of...
1 Nov 13, 2005
9:58 pm

donka2
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HELLO GROUP, ANIYA WAS HOSPITALIZED FOR SEIZURES ABOUT 2 WEEKS AGO. WHEN SHE CAME HOME SHE SEEMED TO GET BETTER AFTER A FEW DAYS. BUT A FEW DAYS AGO SHE WENT...
14 Nov 11, 2005
12:21 am

Yolonda Mclaughlin
ycherisem
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HI all- I live in MA and we are adopting a child named Jake form the Philippines. He has been with us for 3 years. He is undiagnosed and we struggling with ...
3 Nov 10, 2005
3:23 pm

holly kopp
deletion15mom
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Hi, we are still waiting on the lab results on Kye to see if he is an angle or not. A little back ground on Kye-He started having seizures at age 8 months,...
6 Nov 9, 2005
7:20 pm

bobbie toole
sandylot_2
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Hi! I thought of one more thing I am interested in. What kind of devices do your children use to communicate with you and at school? Thanks!!!! Christine...
3 Nov 9, 2005
5:50 pm

ettinashee
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Are any of your angels color blind? There have been a lot of posts on the angelman-l listserve about the possibility, but I haven't heard anyone say that...
3 Nov 9, 2005
5:48 pm

ettinashee
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hi everyone, hope all your angels, and you are keeping well I would love to know if any of your angels talk ,how well , and how many words ,is it meaningfull...
10 Nov 9, 2005
7:41 am

lacey gutcher
tantansmommy
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Do any of your children have aides in the classroom, other than 504 aides? Is there such thing? I think Lydia may need a little more one on one help during...
2 Nov 7, 2005
6:11 pm

Jennifer Posey
jposey83
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I found out september first that I am the proud parent of an Angel. I really want to thank maria for the messages about lydia, on sept 1st I spent hours on...
4 Nov 5, 2005
7:49 pm

Ann Watters
tandawatters...
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Today tanner scared me to death...Tanner usually has partial seizures where he just falls asleep for a minute then wakes and is fine. Well today he had 3...
1 Nov 5, 2005
10:15 am

lacey
tantansmommy
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I know there are a few tests to run to check for Angelmans.. which one is usually done first? SHe said if this is negative no sense in running any other ones,...
13 Nov 3, 2005
9:59 pm

ettinashee
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Hi everyone! I am also a student at Elizabethtown College - actually Cathy and I are doing research on Angelman for one of our classes. I am a future...
2 Nov 3, 2005
9:53 pm

ettinashee
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Hi, I have found an Angelman list which is more active, and seems to have more people and therefore more advice than this one. You may want to give it a try. ...
4 Nov 3, 2005
9:39 pm

ettinashee
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Hi, My son Thomas is 11 years old and has never ending energy too. At 3 months of age he stopped taking any naps and really doesn't sleep much at all. We...
2 Nov 3, 2005
8:50 pm

ettinashee
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We have used chloral hydrate off and on with Lydia the past five years (mostly off). Since school started, like I posted before, she's had a harder time...
1 Nov 1, 2005
4:17 am

Maria
m_wiscombe
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This week My 4 year old Riley started walking I am so excited I can not believe it.One day she just started walking all over the place,it almost like she has...
4 Nov 1, 2005
4:01 am

lacey gutcher
tantansmommy
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Well we got the results, I think, the nurse called and said the doctor wrote yes by the word AS, I am serious, but yet she said it is all normal. I am shocked,...
2 Nov 1, 2005
12:16 am

lacey gutcher
tantansmommy
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Cheryl- My friend's son Nate speaks and exhibits a lot of the same behaviors as your son. She has been able to potty train him to urinate. He is 6 years old....
1 Oct 31, 2005
4:48 pm

Becca Moll
beccamoll
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