Dear Parent, We want to make sure you know about our upcoming Conference on Epilepsy Syndromes in Childhood. The 2-day conference will take place in Lakewood,...
310
Mickey
micy1974
Mar 10, 2005 3:18 am
I am SO sorry to hear your daughter is having a hard time;( I to go through this with the twins. for ever they are fine and then out of the blue, WOW like...
309
sazcopey
Mar 9, 2005 9:46 pm
my son was on lamotrigine. which is the same as lamotical (i think). we slowly increased to right dosage ,then after about a month dec started to have alot...
308
Jennifer Posey
jposey83
Mar 9, 2005 6:11 pm
Hello everyone it's Jennifer my son Christopher is 3 years old and has Angelmans. Today I took him to the doctor because he was running a high fever the...
307
klyngraham
Mar 8, 2005 5:47 pm
Julia is on lamictal for siezures that started in '03 her dr. has slowly increased the medicine and she had no more seizures. The lamictal ,I was told keeps...
306
Donna
kevysmom04
Mar 7, 2005 10:58 pm
Sisters' sacrifice ensures loving care Amid debates over Medicaid costs and cuts, family strives to keep a developmentally disabled child at home By MATT...
305
Mickey
micy1974
Mar 5, 2005 8:08 pm
This page describes what AS can be or what your children may have to have it.. anyways. Take a look at this web site about AS!...
304
sazcopey
Mar 4, 2005 10:16 pm
I,ll mention that one at the hospital.we actually live in uk. so it might not be available.chris sounds just like dec, he has one fit after the other and...
303
Trish
jontrigo
Mar 4, 2005 2:05 pm
Vell, Yes, AC has been in Early Intervention since she was 7 months old and her pediatrician noticed how floppy she was and couldn't sit yet. Thanks, John ......
302
Vell Sweeney
firestorm71_...
Mar 4, 2005 1:31 pm
John, The best place to look at is: www.angelman.org <http://www.angelman.org/> this site has a lot of important information on Angelman Syndrome. I would call...
301
Trish
jontrigo
Mar 4, 2005 4:46 am
She just turned two. Would you mind describing the 4 - 5 types of AS? How do I ask for testing of these? From my understanding the one AS that is...
300
Mickey
micy1974
Mar 4, 2005 3:52 am
WOW Im So glad I am not the only one with the STINK :) problem... I have tired many things, They always wear onesy. Because of the mickey button. I NEVER put...
299
Vell Sweeney
firestorm71_...
Mar 3, 2005 10:30 pm
Hi John and family, I hope you don't mind me emailing you off of the list. My two children are possible Angelman Syndrome children. How old is your daughter?...
298
Jennifer Posey
jposey83
Mar 3, 2005 5:54 pm
Hello Everyone! sazcopey have they tried keppra with your son? That is what Christopher takes he is 3 years old and I've only had one break though seizure...
297
P Gonzalez
jontrigo
Mar 3, 2005 4:11 pm
hello all, My daughter is now being tested for Angelman syndrome. She is developmentally delay, along with having some facial characteristics that we don't...
296
red head
redheadedrav...
Mar 3, 2005 12:22 pm
Sure ... Angelmen Syndrome Hello, Would you like me to add your name to the list? ... Heres what I have so far... Donna: Son Kevin, Rhogam during pregnancy,...
295
Kathy Leonard
candlecrazy_...
Mar 3, 2005 3:17 am
Mickey, I've been there right with you,, imagine how surprised I was when i woke up one morning and found both my daughters in that condition! Talk about a bad...
294
Donna
kevysmom04
Mar 3, 2005 12:37 am
... Hi J.W, Im sorry I must have missed your email. I will add your children. The thing with Rhogam is....Mercury was in some of the rhogam until 2003. Mercury...
293
wsj88
Mar 2, 2005 10:25 pm
Hi Michelle, I went through that with Matthew. I had to either keep him in one piece shirts or one piece sleepers or tuck his shirts in so good he couldn't...
292
J.W. Archer
ditchlicker_...
Mar 2, 2005 9:57 pm
hello, i've wrote you before but her it is again. my daughter lennon has angelman's syndrome. her mother, jen, had rhogam with both her children. Brodey-Lee is...
291
sazcopey
Mar 2, 2005 9:29 pm
hi everyone ,anyone had any angels, who have been on klonopin. dec has clusters of seizures around 30-40 in one day then none for a couple of weeks . He,s...
290
J.W. Archer
ditchlicker_...
Mar 2, 2005 9:16 pm
Hello, I found it very amusing to read this e-mail. I woke up this morning to see Lennon standing in her bed with poop all over her face, hands, bottle, bed, ...
289
Donna
kevysmom04
Mar 2, 2005 4:36 pm
... Angelmen Syndrome Hello, Would you like me to add your name to the list? ... Heres what I have so far... Donna: Son Kevin, Rhogam during pregnancy,...
288
leah
lblyrics04
Mar 2, 2005 3:59 pm
OH My GOSH! I am SOOOO happy we are no longer in the play with the stuff in the diaper stage. Once Olivia got her hands in her diaper, her "find" would usually...
287
leah
lblyrics04
Mar 2, 2005 3:47 pm
Dear Donna Yes, Olivia's gait was only mildly affected. There was some leaning forward issues and her walk was very stiff. Also, she did not have the facial...
286
red head
redheadedrav...
Mar 2, 2005 3:18 pm
I had the rhogam shot in late 1990. My daughter is diagnosed with Angelmen Syndrome Donna <donna.arnold@...> wrote: Im putting a new study together on...
285
Vell Sweeney
firestorm71_...
Mar 2, 2005 1:40 pm
Hi Donna, My two children might have AS. My oldest yes looks like the "typical" AS child. Corwin on the other hand has the wide mouth, and the wide spaced ...
284
Mickey
micy1974
Mar 2, 2005 3:52 am
Just a Hello to all. Hoping all is well and everyone is still Hanging in there:) "LOL" Was wondering though?!?! Does anyone have a problem with their...
283
Ann Watters
tandawatters...
Mar 1, 2005 8:19 pm
Hello Donna, Our son Brandon was diagnosed by a geneticist with AS when he was 4 mo old. It took approx 4 mo to get the results of his blood test. Brandon...
282
Donna Hammond
dkh1128
Mar 1, 2005 7:17 pm
I recently introduced myself and my daughter, Rebecca. We are waiting for an appointment with a geneticist to see if she has AS. In the meantime, I have 2...
