Hi Michelle, I went through that with Matthew. I had to either keep him in one piece shirts or one piece sleepers or tuck his shirts in so good he couldn't...
hello, i've wrote you before but her it is again. my daughter lennon has angelman's syndrome. her mother, jen, had rhogam with both her children. Brodey-Lee is...
hi everyone ,anyone had any angels, who have been on klonopin. dec has clusters of seizures around 30-40 in one day then none for a couple of weeks . He,s...
Hello, I found it very amusing to read this e-mail. I woke up this morning to see Lennon standing in her bed with poop all over her face, hands, bottle, bed, ...
... Angelmen Syndrome Hello, Would you like me to add your name to the list? ... Heres what I have so far... Donna: Son Kevin, Rhogam during pregnancy,...
OH My GOSH! I am SOOOO happy we are no longer in the play with the stuff in the diaper stage. Once Olivia got her hands in her diaper, her "find" would usually...
Dear Donna Yes, Olivia's gait was only mildly affected. There was some leaning forward issues and her walk was very stiff. Also, she did not have the facial...
I had the rhogam shot in late 1990. My daughter is diagnosed with Angelmen Syndrome Donna <donna.arnold@...> wrote: Im putting a new study together on...
Hi Donna, My two children might have AS. My oldest yes looks like the "typical" AS child. Corwin on the other hand has the wide mouth, and the wide spaced ...
Just a Hello to all. Hoping all is well and everyone is still Hanging in there:) "LOL" Was wondering though?!?! Does anyone have a problem with their...
Hello Donna, Our son Brandon was diagnosed by a geneticist with AS when he was 4 mo old. It took approx 4 mo to get the results of his blood test. Brandon...
I recently introduced myself and my daughter, Rebecca. We are waiting for an appointment with a geneticist to see if she has AS. In the meantime, I have 2...
As amazing as it may sound many people do not realize how easy it is to LEGALLY stop paying for their groceries! This is how the one hour television show began...
Hello Everyone. Sorry its been a few days for me. I had to read and catch up. Got to love them Angels, have had one home for the last 3 days sick.. You can...
Im putting a new study together on mothers who were injected with mercury via rhogam or the flu vaccine during pregnancy, I have recieved numerous emails after...
Rakisha, At one time we added on Zonegran to Keppra and it increased seizure frequency (partials) - and that's one of the only times we also saw an atonic...
Hi everyone my son (Duane) has recently started having seizures and was placed on depakote. A week after being on it he started to have more seizures. He is...
What happens when you inject pregnant women with mercury? This is from a report from OEHHA in regards to Bayers petition to take Thimerosal off the list of...
hi it,s sarah . In the uk where we live declan has just seen his first snow. He thought this was fantastic . every time a flake hit him he,d shudder,and blink...
Dear Friends My apologies that I have not answered my emails. One of olivia's hidden talents is to somehow magically delete everything when my attention is at...
Hello Leah, I'm Ami and my angel baby is 13, soon to be 14. It is nice to read someone with an older angel. I'm not sure for the chat room, but if you would...
Since this group has been so active lately I thought I had better say hello. My name is Becky and my daughter was diagnosed 2 years ago with Angelman Syndrome....
Welcome again to the new comers. Those who don't know me yet. I like to babble..:D LOL I have 2 Angels, which are yelling at me right now as well. but we live...
Well I'm soooo glad to see this group is Evolving. So many are coming in and I fist want to welcome any new comers. I have said a lot about my Angels. and Know...
hi everyone i,m sarah .Ihave a 2 1/2 year old angel declan. we live in the uk .declan is the usual little angel he loves life laughing his way through the day....
Hi my name is Rakisha I live in Indianapolis. I have a 2 year old son with AS. Knowing this has been very hard for my husband and I this is our first child and...
hello everyone. my name is leah. i am a mother of four children. my youngest, olivia, is our angel baby. she is eleven; will be twelve this year. i am very...
Hello all! I have been gone for a long time and have missed a lot. I hope to get to know all of you and catch up with some old friends along the way. I...
Hello Donna I live in South Carolina and my son Christopher was diagnosed at 11 months. I didn't think anything was wrong with him until he still wasn't...
Hi, my name is Donna and I live in Northern Virginia with my husband and 4 children. My youngest daughter is 3 yrs 3 months with special needs and I am...
