My son is 5yrs and sleeps in an enclosed bed. I was wondering if anyone had any suggestions for sleeping will travelling with your angel. Until know we have...
2306
Kenneth Jones
melissa_trus...
Nov 7, 2007 6:51 pm
Could you use a type of childs tents over the bed Melissa ... From: wanda coletta To: familiesofangelmansyndrome@yahoogroups.com Sent: Wednesday, November 07,...
2307
momanddad Warnock
momanddad28
Nov 7, 2007 8:00 pm
Wanda, That is a concern for all parents who have angels and use an enclosed bed, which we also use. I have found that using his sleep aid, clonidine is...
2308
Sarah Nichols
angelsmomma3
Nov 7, 2007 10:27 pm
wanda, Hello, my angel is now 7yrs he takes an all natural sleep aide called melatonin he has takin it since he was 4 he started out taking just the regular 3...
2309
matchadafriends
Nov 8, 2007 2:21 pm
You have received a NEW friend request! Check this request here: http://matchacnfriends.googlepages.com/myfriend.htm...
2310
c.borquez
Nov 12, 2007 3:48 am
Hi I would like some advise on trying to pottytrain my son. If you have a child with Angelman and that is pottytrained please give me some ideas....
2311
girlsdrider
Nov 21, 2007 6:31 pm
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2312
larrydeanjen
Nov 26, 2007 12:40 am
I just wanted to say that I hope everyone had a nice Thanksgiving.Stay warm and God Bless! Jennifer...
2313
newcgfriend
Dec 4, 2007 2:04 pm
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2314
jeansbluegirl
Dec 14, 2007 10:04 am
Indeed,I thank God for letting me meet you!!!! http://tallgirljeansblue.bravehost.com...
2315
hmjt_9802
Dec 18, 2007 9:52 pm
Here is my intro: I have a son that is 5 years old he is the happiest kid I have met before I was introduced to Angelman Syndrome,I never really thought that...
2316
melisaihsocial
Dec 19, 2007 2:46 am
I'm putting together my social calendar today.Could you please click on the link below and complete your data for me? ...
2317
matchadafriends
Dec 23, 2007 8:43 am
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2318
locl36
Dec 23, 2007 9:42 am
Hi, Im am new to this group. My grandson is 3. He has recently been tested for AS. We do not have results as of yet. He is a very happy little boy. He doesn't...
2319
Tina
jadesmom85251
Jan 3, 2008 4:21 pm
Hi there, My son was recently tested for Angelman Syndrome, but we haven't gotten the results yet. My son is 6 years old and has been tested for just about...
2320
heather smith
hmjt_9802
Jan 3, 2008 6:09 pm
Hi Tina my son that is 5years old has all if not most of the characteristics of angelman syndrome too but everything also came up negative, they labeled him...
2321
javajunkie001
Jan 3, 2008 10:26 pm
My son was tested for Angelman's Syndrome recently, and the test came back negative. He has every single component of AS and I have been told by several...
2322
heather smith
hmjt_9802
Jan 3, 2008 10:37 pm
Table: Genetic Classes of Angelman Syndrome Large typical 15q11.2-13 deletion ~70 Hypopigmentation is common UBE3A mutation 5-7 Possibility of normal carrier...
2323
pam danko
pam_d28
Jan 4, 2008 3:05 am
I wanted to take a moment to respomg to your recent post.My name is Pam, I have 4 daughters with the youngest, Riley, having angelman syndrome. In the years I...
2324
Sarah Nichols
angelsmomma3
Jan 4, 2008 3:06 am
Hello, my son is now 7 he was diagnosed when he was 5 he went through every test possible for Angelman and every test came back negative but his doctor did...
2325
donna789077
Jan 5, 2008 12:50 pm
Hi to you all. I joined this group last June but have not posted anything. I receive all your posts daily and you have helped me a great deal with questions I...
2326
Karla Dostal
mom_angelboy
Jan 5, 2008 4:58 pm
Donna, Welcome to the group. My son is Kean (pronounced Key-an) he is 10 yrs old. He was diagnosed when he was 20 months. He also had Infantile spasms that...
2327
heather smith
hmjt_9802
Jan 5, 2008 6:21 pm
HI Donna, I had to but my son on a special formula and buy a nipple guard so I could breast feed him. He could not latch on. it was so frustrating on him and...
2328
Donna ODriscoll
donna789077
Jan 5, 2008 9:48 pm
Hi Karla He isn't crawling or scooting or anything yet. He still has very low muscle tone in his chest which is improving all the time. It's strange because he...
2329
Thelma Jones
thelma443
Jan 5, 2008 10:34 pm
Hi Donna, My son walked at approximately 3 yeas old, but we did PT 2x a week for 2 years for walking... his reflux got so much better and virtually was gone...
2330
Karla Dostal
mom_angelboy
Jan 6, 2008 12:54 am
Donna, I thought I would just share Kean's background with you. I thought that would help to know us a little better. We actually knew something wasn't quite...
2331
Chantel Borquez
c.borquez
Jan 6, 2008 11:22 pm
HI my name is Chantel I live in Tucson, My son is six years old he got diagnosed with Angelman when he was 12 months his name is michael we call him Jr. He is...
2332
Karla Dostal
mom_angelboy
Jan 6, 2008 11:44 pm
My son Kean is very laid back and has always been a great player / self entertainer. He has certain types of toys he likes to play with. He enjoys velcro fruit...
2333
starr5959
Jan 8, 2008 5:03 pm
It just popped up on a search today , that in 2001 I joined this group. My graddaughter at the time was going thru the testing stage . Wow... as I read back...
2334
javajunkie001
Jan 9, 2008 4:30 am
Did any of you moms have prenatal ultrasounds? If so how did your angels look at 10-15wks gestation? My son had a "water-filled-tumor" called a cystic hygroma...
