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30
We will have to check that restaurant out. Ya if you are ever here let me know.......I know how our angels are so cute and you can't help but love them. I can...
sweetemma2
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Jun 6, 2001
12:13 am
29
Do we have ato come to this site every time we want to post to this club? I have tried to post to an email address and have yet to see them show...
angelmum01
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Jun 5, 2001
11:30 pm
28
Hi, Im Frifoley. I have a daughter with AS who is 6yrs. old her best friend who is 5yrs. old has an extra chromosome #15 her parents were told she could have...
frifoley
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Jun 5, 2001
4:25 pm
27
Bonnie - Just wanted to say Hi and to let you know that I am from Indiana - 2 hrs. away. My son does live in Louisville at the present time. He just graduated...
bwilson_46173
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Jun 5, 2001
2:57 pm
26
Susan - Sure you do have a lot of info for those of us who have contact with younger angels. The angel in my life is Ali who will be 3 June 16th. Just leaving...
bwilson_46173
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Jun 5, 2001
2:43 pm
25
By the way. I know I have a strange user name. It is my Star Wars name. My name is Susan....
fersu_jobai
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Jun 5, 2001
10:02 am
24
Hi Lori ,<br>We also have a son with AS del+. Kris will be 17 next week. I like talking to other Angelman Parents too. We have a lot to offer those parents ...
fersu_jobai
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Jun 5, 2001
10:00 am
23
Hi everyone! My name is Bonnie and I am the proud mom of two great kids. AJ is my angel and he is 8 and deletion positive and Emily is 4 going on 20 LOL. Winna...
sweetemma2
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Jun 4, 2001
9:01 pm
22
Hi, my name is Lori. My husband Mark and I live in Fancy Farm, Kentucky with our 2 sons, Jonathan (AS, del+) will be 16 this month, and Matthew is 4 1/2....
lorilou1966
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Jun 4, 2001
2:44 pm
21
Barbara~Good luck with your move. Keep us updated as to how things are going. I am glad that you did get attent one of the conferences. I'm hoping that ...
wsj88
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Jun 4, 2001
7:01 am
20
Hi Wendy,<br>We won't be going to the conference this year either. We are moving from Maryland to New Jersey in a couple of weeks. We did attend when it was ...
bwieckowski2001
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Jun 4, 2001
2:21 am
19
Hi Barb~ I live in Portage, Indiana(NW~close to Chicago). I wish I could say that I was going to the comference on July, but finances won't allow it this time....
wsj88
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Jun 3, 2001
4:41 am
18
Hi Winna,<br><br>My son Stephen who is also 7 was diagnosed at the<br>age of 31/2 years. He is a clinical dianogsis.<br>So I know what a relief it is to...
bwieckowski2001
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Jun 2, 2001
4:34 pm
17
I have heard the term UPD and that very well is the case. We have not gone throw the blood work yet on myself or my husband though. Do you know of other ...
Flash_NC
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Jun 2, 2001
11:28 am
16
Wendy -<br><br>My name is Barb Wilson. I also live in Indiana - Rushville (which is 45 min se of Indy). I have an adopted granddaughter who will be 3 June 16th...
bwilson_46173
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Jun 2, 2001
5:10 am
15
Would duplication mean possibly that there are two paternal 15's. If that is the case I would call that UPD? That testing would require both parents blood...
angelmum01
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Jun 1, 2001
8:59 pm
14
I was wondering how Don got my email address.<br>I was also wondering how many of you guys are on the listserv. <br>My daughter is 7 clinically dxed and seven...
angelmum01
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Jun 1, 2001
8:54 pm
13
Thanks Don for the invite! Hi Penny! Hi everyone!! I am looking forward to getting to know everyone in here.<br><br>A little about me and my family:<br>I'm...
wsj88
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May 31, 2001
3:46 am
12
My Name is Andrea Glossenger and i think this Club is a great Idea. My sons name is Dean, he was diagnosed with AS 4 Years ago. He is 7 now.We live in N.C . He...
nine_27239
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May 27, 2001
12:22 pm
11
HI Flash,,, dont know much about PWS but i know lots about angelmans, we thought our little granddaughter had it but the test was normal so we are stil ...
starr5959
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Mar 21, 2001
4:01 pm
10
My daughter is 14yo. We knew at 2 months she had delays but didn't know why. We've had and MRI, EEG, Fragile X testing, and a few years ago cytogenetics ...
Flash_NC
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Mar 20, 2001
2:12 pm
9
HI! Did i read your posr right? it only tooktwo weeks to get the results back? wnder why they told us it would be months before we got anything back??? Maybe...
starr5959
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Feb 10, 2001
2:21 pm
8
It was two weeks later after our son William was tested for Angelman Syndrome that they sent us a letter and a packet of info on Angelman Syndrome telling us ...
donaldtyrrel
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Feb 9, 2001
5:55 pm
7
HELLO! I POSTED SOME PICTURES FOR YOU TO SEE, HOPE THEY MAKE YOU SMILE TODAY, WE WILL WAIT FOR THE TEST RESULTS AND THEN SEE WHAT HAPPENS,,,,<br>ALEXIS WILL...
starr5959
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Feb 9, 2001
2:26 pm
6
HELLO , <br>OUR LITTLE GRANDDAUGHTER ALEXIS-MARIE WAS GIVEN THE BLOOD TEST YESTERDAY TO CHECK FOR ANGELMANS, NOW WE WAIT.....HOW LONG DID ANY OF YOU WAIT TO ...
starr5959
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Feb 9, 2001
2:16 pm
5
HI , thanks for writing back, I had added you to my pager, I am starr5959 on the yahoo pager. We have been thru most of the stages so far, awaiting the ...
starr5959
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Jan 24, 2001
7:48 pm
4
Welcome to this club starr5959. I know how the testing stages can be tough & not knowing a diagnosis can be. We knew when our son was three months old that ...
donaldtyrrel
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Jan 24, 2001
7:08 pm
3
we are still in the testing stage, so far everything has come back normal, even the EEG , but with all the seaching I have done, Anglemans fits the criteria,...
starr5959
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Jan 24, 2001
1:58 pm
2
The two photo albums that I've added were taken at the Drury Inn's swimming pool the night before the 1999 Angelman Syndrome Family Picnic at Danville, ...
donaldtyrrel
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Jun 30, 2000
3:01 am
1
Welcome to the Yahoo! Message Board for Families of Angelman Syndrome...
donaldtyrrel
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Jun 28, 2000
4:33 pm
Messages 1 - 30 of 2802   Newest  |  < Newer  |  Older >  |  Oldest
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